Nolan Update

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Howdy!

Before I officially begin with this post, I thought I would mention to everybody reading this, to not steal my pictures used below! They’re not yours and if you want to ruin my generosity to freely show him off on here, you will ignore the urge to take the photos! Thank you.

It’s been a long time since I talked about my nephew, the only post I’ve managed to publish is his birth announcement back in July! It doesn’t really seem that long age since that day, but it has! I constantly fight with my parents (and sometimes my grandparents) to stop calling me a “baby” when I’m clearly not one anymore, but I get why they never stopped calling me that because now I’m saying it about him! We all call him “our baby”, which really ticks off my sister and she’ll tell you right off that he’s not ours, he is her baby!

So, knowing I have about four months to get you updated with what’s been going on has been a little daunting for me, because there has been lots of things happening, but let’s start at the beginning, okay?

1st Month:

I have to say, my sister and brother-in-law have been doing a very good job at raising him, since neither one have really been around a baby before. Blondie had never held a newborn before Nolan, so this has been a totally new thing for her, but I think she really loves it! Brandon has really young cousins in his family, but I doubt he’s been up and down throughout day and night because of a crying baby before this!

Unfortunately, my sister gave up on breastfeeding him in the early part of July, because she honestly didn’t feel comfortable and was always worried she wasn’t producing enough milk for him. She really didn’t want to give up and felt extremely guilty but I think she felt better giving him formula and knowing he actually eating well. Although when he is hungry, in the way he cries (and screams) he expects that bottle to be there immediately, and it doesn’t matter who’s around him at the time. There’s only so much I can do to console the little guy, but I did figure out he likes to have his head rubbed, there’s only a 50/50 chance it’ll work but hey, at least I try!

38600263_1050894211753906_3251158598029410304_nThe animals are really great with him. Chipper is very curious and protective of his little brother. The cats are interested in him too, they want to be around and even try to touch him. There’s a cute video of their gray and white cat Gru attempting to pet him on the head and he’s being incredibly gentle, it’s so cute! Blondie and Brandon try to keep them at a small distance so neither one hurt each other by accident.

During the first month Nolan was here, we (my parents and I) were basically fighting to be the first ones to have him when they came down. I always felt that my time with him was short and somewhat shared with other people who came to check on the two of us, but after a while I grew out of that because as he grew and created more facial expressions, there would be someone else to bring out that smile of him. I wouldn’t get him to be happy like that as easily, but we quickly figured out what he really enjoyed while being with me. My bed.

When he was real little, and it was time to switch and let him have some Aunt Meggie time, everybody would put him out on the right side of my bed where I have two layers of velvet blankets and if he wouldn’t roll over on his side on his own, somebody else would, so I could see his little face. He loved being so close to me, and frankly I loved getting baby hugs and giving him kisses on the top of the head too. Everytime they’d bring him and I cuddled up to him in my blanket, I’d talk about all of the animals in the world, plus superheros and the Transformers, and eventually he went to sleep. Sometimes when he’s a bit fussy I’ll sing to him a made up lullaby for him that he just loves and my dad thinks is adorable too!

I think we were shocked to see how fast he started to really discover emotions. We don’t think he was trying to make faces at us, but there were expressions he’d make during that first month that would make great pictures and videos. At this point, they were trying a lot of things to keep him entertained and one of the things he kind of fell in love with was the movie Moana. He just loves the music and would get excited at different scenes and songs. This movie is about the only thing he’ll calm down to, and I think they started it was when they introduced tummy time to him. He was always fussy in the beginning and then he’d hear a familiar song and his mood would change instantly.

2nd Month:

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Despite the fact that he was constantly teething (and still is!) August was interesting because he slowly showed how smart he is, the first thing being how he managed to talk or in this case “sing the music of his people” (cry) his way onto Blondie’s chest day and night. He also loves Snapchat filters, and I know that’s weird to say out loud but this kid loves seeing himself on the screen in different scenarios, like one of his favorites is the “Dog” filter that allows you to have a fake tongue of a dog stick out with the nose and ears. Well, he had finally figured out how to get his tongue out, he’d do it instead! Everytime she told him to open his mouth, he’d stick out his tongue!

One last thing he learned to do was keep his head up on his own. Shockingly, he was already trying this out probably three days after the little dude was born! He was an overachiever as he was rolling around at that time too! Whenever he was doing tummy time, they’d put him up on his small pillow so he had some help leaning up on his arms, but he was still bobbing his head some days, for the most part he’d nod at you and look around the room. I think he really loves tummy time, well maybe for the most part!

3rd Month:

So, this past month has been fairly normal, except for the fact that everybody had been showing signs of allergies and/or sickness, and we having to be really careful with Nolan as we don’t want him to get anything either. No kissing on the cheeks, only on his little hairy head and everybody’s been washing their hands plus using hand sanitizer if they want to hold the kid. I know it’s for his own good so I’m not too bothered with it!

Nolan really likes books now! My mom and I each bought him a book after a visit to Walmart earlier in the month, and we got him a baby book that he can hold in his little hands and put into his mouth to chew on, but it’s a mini fabric number book, that has different animals of the pages. He really loves it! The book I got him is a baby touch and feel type of book, it’s about Baby Animals and on each page has a small portion that a child can touch to feel the various textures whether they’re soft or rough on their skin. I showed it to him while he was in his vibrating chair at the foot of my bed, and he just stared at it as I propped it up on the side. I desperately tried not to drop it while I was attempting to turn the pages in the process. He was so calm and seemed to be really happy too!

41379676_10204657428033710_379528470192979968_nHe has recently learned how to “talk” now! So far he’s favorite word is “nuh uh” and it’s freaking adorable! I swear I even hear him say “mama” every once in a while, but he hasn’t said it on command yet. The day he does say “mama” or “dada” is when we’ll all start crying for joy! He is a storyteller himself, even if you can’t understand him yet. It’s so cute on how he’ll be very quiet and take a big sigh before start talking to you. He seems to love it when papaw (my dad) threatens to ground his mommy, I mean literally, the kid has the biggest smile on his face everytime he tells him that.

I mentioned in the beginning that whenever he is in my room, he is laying out on my bed? Well, by the middle of August, it was too difficult to see his face without him rolling over to where I can’t move him back without feeling like I could hurt him, so I started sitting up with him and now I can really talk to him and if he wanted to, he could watch TV since we usually try to prop him up a bit so he’s not lying flat on the bed. He loves to watch both Tom & Jerry, Paw Patrol, and Bubble Guppies. Whenever the last show is on, I like to say “bubble-bubble-bubble guppies” at a very fast pace which usually makes him laugh at me. We discuss the animals and what they’re doing, and everytime  they have music on, I try to get him to dance or wiggle, he likes to watch me wiggle than do it himself, but I don’t care. I like keeping him entertained!

Recently he experienced a “leap” where he has a growth spurt and gets very curious (apparently more than he already is!) of his surroundings, and I’ve noticed that he’s been watching my arms a lot lately. It’s incredibly tough to explain to a child that small what a disability is; he loves to kick and feel my right hand since it’s lower than my left, but one day when Blondie had a hold of him, he just stared at my hands. He doesn’t really understand why my hand can’t grab him like everybody else’s, but instead of frowning at the Tarzan like movement I do when around him, he smiles his head off. He’s a curious baby that’s for sure!

4th Month:

Since it’s the start of a new month and the fact that he doesn’t really turn four months old until next weekend, I think it would be kind of silly to really discuss his accomplishments for October! I’m sure he’ll do a lot though. One thing that I keep telling him is how long it is until basketball season, because he’s finally big enough to fit in his little Butler Bulldogs onesie! The weird thing about it was my mom also put me in my Butler shirt without knowing he was wearing his too! Of course, the picture was so adorable as he gave a slight smile behind his chubby little hands.

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I do want to end this with an interesting fact about Nolan. When he was born, my sister noticed something about his feet, one both feet his index and middle toes were webbed together. The nurses and his doctor told him that was common with premature babies. Nolan was supposed to be born on July 2nd, but he came on the second week of June instead, so he is considered a premature baby. Everybody has told them that it should fix itself in time but it doesn’t and he’s not able to walk, then they’ll worry about it. So far, nobody in either family has any feet defects, but one of my fellow Arthrogryposis made the point that it could be an effect by AMC itself, but we’re really not sure about it. I think it just makes me him unique, but I still hope he will be able to walk nonetheless!

I think I’ll wait to do my next post probably before NYE, so I can get his Halloween costume and what he wears (and eats, as he’ll be starting on solid foods soon!) for both Thanksgiving and Christmas! I also have another baby post coming as my cousin Kristi recently had her new baby a few weeks ago, so I’ll try to have that name reveal and update on them soon!

So did you enjoy this little update about my nephew? Do you think I should continue these types of posts or not?

snowflake

 

OOTD: Bossy!

Hi 🙂

I’m back with another outfit of the day! I knew once spring decided to come around that my mom, nana and I would be able to go back to these posts again! I generally love working on them and showing off my style with all of you too!  I know I had mentioned in my previous OOTDs that I was going to start wearing more colorful outfits but you all should know about my love of black by now too! I don’t see the problem of wearing too much at one time!

This shirt is new, it was included into that fairly large shopping spree back in February, it is a regular graphic tee with “Not Bossy, Just Better” written on the front of it. When I saw it on the rack I couldn’t help myself, I had to get it. Something you may not know about me is that I have a strong personality, sometimes people confuse my attitude with being “bossy” but I feel like I am far from that. I just have strong beliefs and don’t like being told certain things, as a disabled woman seeking independence I don’t like when people assume and judge me. I think I can do the things you are able to do, but maybe even better and this is where people get carried away and automatically think I’m stuck up when I’m not. So this is probably my third shirt that I’ve worn that has a true statement about something I truly believe in some way!

This was also around $7 because it has a saying on the front of it. I’m sorry if you have trouble reading it through my hands, that’s the one negative about it, the font is fairly large and my hands take up most of the space on it.

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I feel like I’ve worn these pants in a blog post before, but I’m not for sure so I had my mom and nana take them just in case I was wrong!

These are actually pants, not leggings! I don’t have very many of them in my drawers mostly because they’re a little hard to find and fit through my thigh and butt! I’ve always loved these though because the design of the skulls (not even sorry!) have like a black and white sugar skull theme on them. The material is nice and soft, they’re definitely made of cotton because they’re so thick, considering it’s “spring” it sure as hell didn’t feel like it! I was secretly freezing when that picture was taken up top and these were the only part of my body that was nice and toasty. I’ve learned to smile through the cold and hope to God that the sun can warm me up a little, it didn’t happen but hey, we still accomplished our mission!

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Unfortunately, I purchases these a few years ago so I don’t remember where we got them nor how much they were, but I’m thinking we got them at Wal-Mart too! I rarely find any skull bottoms anywhere besides Hot Topic! It’s a “once in a blue moon” motion whenever I find something at Wal-Mart! Oh, and don’t even bother asking how many skull leggings this is because even I don’t know!

I also wanted to try out an old hairstyle I modeled as a kid, while in grade school I had really long hair and a month or so before I had my back surgeries we were forced to get it cut short because of the metal halo that would be placed around my head. This was over 14 years ago and this is the first time I’ve had my hair just as long as I did back then. After July, I am getting a hair cut–maybe not a pixie but it will be short again at the end of the summer! I’m semi happy but sad too!

So what do you think of this outfit? Yay or nay? Do you have a shirt that reflects your personality to a T? 

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snowflake

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Why You Should Do OOTD Posts

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Two things that have never meshed well together is fashion and having a physical disability, for obvious reasons!

Being able to find clothes that actually fit every part of you, even your problem areas, can be very difficult! I’ve only had an issue once in my life and I’m thankful it’s only been that one time. As a kid, I had to have surgery on my side and eventually my back; I also had to have a metal halo placed onto my head. While waiting for each surgery I had my clothes had be altered a bit. They were cut in the back and placed back together with velcro! It was the only way we were able to wear shirts of any kind at that time! I had quite a few shirts fixed like this and I actually hated it because the velcro would always come undone!

I’ve had some issues with blue jeans and shirts with a wide or V necks. Technically, I, myself didn’t have any trouble with my jeans. It was everybody else who did, because nobody could pull them down. It was mostly because of my hips than anything else! As for the shirts, it’s been an ongoing love and hate thing I’ve had for years! Whenever I wear a wide neck or V-neck shirt, it always goes off one of my shoulders. I have days where I don’t care about it and I mean, it’s going to happen! It happens to every single shirt I’ve had! The only way to fix them is either to sew them tighter around the neck or use a safety pin and I don’t feel comfortable with those things being around my neck/back! Other than that, fashion isn’t too evil to me as some people with physical disabilities have to deal with on a regular basis!

At the end of 2014, I started thinking about adding something new to my blog. I started to read and love bloggers’ OOTD (outfit of the day) posts. It always gave me a snippet of their style and what they mainly went for while out shopping. Every once in awhile, I did talk about my style but I rarely talked or showed what I had in my own closet.

The main reason why I never did an OOTD post before this was because of my hands, with my condition (Arthrogryposis) my hands are bent at the elbow and I can’t unfold or move them away from that area without help. So whenever I wear tops that have graphic letters and scene on them, a person has to actually move my hand (mostly my right arm!) over to the side so they can read it. Thankfully, half of the time I wear shirts with more lettering than pictures so I can just say what it reads so nobody touches my hands. So I’ve sort of built up a resentment towards my poor hands over the years! It’s not that I don’t like them, they’re just there. I have limited movement in them–I have more movement in them than I was supposed to!

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When I started finding other bloggers in wheelchairs post their OOTD posts, I just decided I needed to break out of my shell and find the love for my hands. So on January 1, 2014 I published my first ever OOTD post on here of what I wore to the NYE party at my neighbor’s house! It was VERY casual! Luckily, I had been in talks with my mom, nana, and sister that I wanted to start doing this and since I didn’t have a way of taking a picture of myself at the time, my mom would have to do it for me! After that first time, I only did it like three times from January to March 2014. When it began to get warmer outside, we did it a lot more and I started to learn a little pose!

If I’m sitting in my push wheelchair, the armrests are higher up than my other chair, but it moves my arm out of the way of the shirt! It’s my go-to pose now! At the end of the year, I had a lot of posts I had ever dreamed of having and I was so happy and inspired to keep going with it! I still have problems with finding the love for my hands, but I feel like I’ll always have that issue with them. It’ll also take longer than one year to finally love them too!

Something that I don’t think a lot of people have noticed in my posts is that I don’t wear makeup in them! I’ve never been a big fan of it and so I have over 24 posts and I’m pushing the boundaries of “normal” fashion bloggers! If you have a disability of any kind and have a blog or maybe thinking of creating one soon, I recommend you start doing an OOTD post here and there as after awhile, it’s no longer about your condition, you’re talking about the clothes and it’s just like everybody else’s posts!

Do you like the OOTD posts? Would you ever consider doing them on your blog or instagram account?

snowflake

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