Life Lately | Hello Spring!

Howdy!

Since this is the last full week of April, I thought it was only right to blog about life.

Last week I mentioned that it’s been a whole month since I had blogged at all, and I don’t really know why I decided to do take such a long break but it happened. This year I manged to come up with three separate series, two of them are on here and the other on my blog’s Facebook page. I did a lot of work to get everything organized that I think I started to expect a lot of myself that the pressure mounted so much that I began to feel overwhelmed by everything, but once I stopped blogging for a couple of days, I just all of a sudden felt better about things and I didn’t look back.

I’d like to say I got a lot of other things done while I was on my hiatus, but I didn’t. I think the only real thing I worked on the whole time was my “name pairings” Pinterest board! I didn’t take advantage of the time off to read or anything so that’s one thing that makes me angry, because that would have been a perfect hobby to do! I didn’t even watch that very many movies or TV shows either. I was pretty much consumed by Pinterest! It’s so sad to say out loud and of course read it on here too!

One thing that I’ve been really enjoying lately is our weather. Well, technically we had a few strange days where it was producing late spring weather, where the temperatures were like in the 60-70’s and unfortunately, our new house does not have an air conditioner yet. So, for a large number of days we had to rely on opening our windows and leaving our fans on all day long just to cool down. For 4 days alone, my room’s temperature was around 78-80 degrees! At night, it was miserable because when I have my fan pointed one way, but if I wanted to lay on the other side I was hot as hell! I actually spent one day completely in a short sleeve shirt with a pair of very tight shorts. On the day I wrote this post, the temperature had calmed down so much that it was 39 degrees outside! It was also very comfortable in my room too!

A feature about our house that I am starting to really enjoy is I get to see the morning sun. I’m such a nature girl at heart, so the morning sun makes me extremely happy! Now there is one bad thing about my room. Since it’s placed so far back, I am around a lot of trees so whenever it storms, I am in a constant state of paranoia because we have some very tall trees in our backyard and we have had some limbs crash down in various places in the past. One large branch was responsible for tearing a hole in our trampoline! So, being surrounded by trees has its bad notes too.

I have been spending a lot of my time hanging out with my nephew Nolan. He’s grown so much since my last update. I have thought about creating another one, but it’ll be his birthday in about two months so I have decided to hold off until then, but I doesn’t mean I can’t share anything with you though.

Do you remember when he was like three or four months old and he was obsessed with my hands? Well, now he’s starting to fall in love with my feet! When he was around two months and he used to sit in this seat, and he would watch me get a drink and put on my blanket – I literally told him once that I would treat him how I do that. At seven months old, the little goofball learned how to put on his own blanket with his feet! He’s such a smart cookie. He loves grabbing things with his feet, and I’m surprised with myself because I figured I would be offended by the fact he was using his feet to do stuff, but I’m not. I’m just proud to see him paying that much attention to what I do because I think it’s just part of my daily life, I don’t like to think of it as a special thing, but he’s made me think about it differently now.

Whenever he was really little though, I was often upset that I wasn’t able to hold my cutie pie (my nickname for him!) the only way I was allowed to be up close with him was when mom or Blondie would bring him into my room, to take a nap on my bed. We would wrap up in fleece blankets and while he got to sleep next to me, I was making mental images of my little buddy. Now he’s somewhat mobile, since he can army crawl around I haven’t had that one-on-one time with him. Well, he recently exchanged that with giving Auntie Meggie many, many hugs! Yes, he is a big hugger! I love it. In a way, I think that makes up for the fact that I couldn’t physically hold him as a itty-bitty baby too.

Well I think I’m done for now. What is your favorite thing about spring? What is your favorite activity out of your normal routine that you like to do?

VISIT MY “NAME PAIRINGS” BOARD ON PINTEREST!

Howdy!

It’s been a while! I have not blogged in a month. Well, technically, if I had held off for another week, it really would have been for a month. The last blog post that went up was my annual post of my papaw’s death and the last post I wrote was the one that’s coming tomorrow! I’m hoping to do another “Life Lately” post next week but we’ll see what happens.

This post is about a project I’ve somehow created while I was on hiatus. You all should know by now how much I love baby names. I’ve talked about my favorite styles on here before, but at the end of March I was looking through Pinterest at various boards of other people who make those adorable wood name signs and as I would continue to pin and scroll through the many, many names I kind of found myself somewhat bored with my limited choices so one night I thought, “well I can’t find what I want, I might as well create them!” I have to add I’m not doing wood signs like them, I’m purely using my Paint software on my laptop to make things easier on myself. What I thought would be a cute little board of my favorite name pairings turned into a board full of 400+ names in a matter of a few weeks!

Originally I made the board of names I have always loved and have in my phone’s notes. After that, I found others on a baby names Facebook group I recently joined and anything I enjoy in the local newspaper, on Nameberry’s birth announcements, etc. Finally, after all of those inspirations, I would even literally come up with in the middle of the night, and yes, it happens a lot! I also went back and forth about creating little mini boards for the different sexes, I even have a board of both unisex and unique styles too! Ultimately it just kind of got out of control to the point now my whole lower half of my body hurts after about an hour or so!

Here are some of my recent uploads to the board.

Click here to visit the official board of baby names!

I myself have a wide array of styles, I always tend to stay in between classical and quirky ones. Since doing this, I’ve also realized that I have a LOT of constantly used names, such as “Catherine,” “Rose,” “Alexandra,” and “David.” I tend to overuse several of my family’s names as well. I mainly do that to see what all could fit with each name. It’s one of the most frustrating thing about older names, sometimes you just get stuck and began to experiment with all sort of combinations.

Unfortunately, I don’t really pay that much attention to meanings. It would just depend on the name itself because I have looked up some of them in the past so I have a few stored up in my brain. If you’re interested in a name and have issues what kind of middle name(s) could fit with your chosen favorite, you can always talk to me on my blog’s Facebook page. Send me a message to my inbox and we’ll figure it out together! You could also scroll through the many others in the boards too, and see if you like anything in there too!

What is your favorite of the 6 names posted above? If you’ve visited the Pinterest board already, do you like any in the mini sections? If you want, you could send me requests too!

Dear Papaw III

Dear Papaw,

Tomorrow marks three years you’ve been gone. It may have been years, but it honestly still feels like yesterday. The whole week before and the days that came after play on a loop in my head. Originally, I had a totally different way about how I wanted this letter to go, but I’ve never wanted these to be too snappy. You wouldn’t have liked that anyways. I miss you a lot, even if some people don’t think I do. I think of you whenever I watch basketball, and I often wonder what you’d think of my knowledge about it and the four professional teams I watch on a daily basis. I think you’d be like dad and hate on the Lakers because of LeBron. I don’t blame you. I don’t care for him being on the team either. I wonder if you’d like the Rockets though since they’re the ones I seem to watch and root for the most of course! I understand why you didn’t like it because of how many attempts a player will take to shoot the ball and the whole scoring process, I’m still not understanding that part yet, but I’m slowly getting there.

On the day I wrote this letter, I went looking for a picture for the banner. I was going to attempt to find one of “Alex” with your old Butler shirt but then I found an album that nana made for us in the family to share memories and old photos, and I found one dedicated to you. I had array of pictures to choose from, but once I saw this one, I knew I had to use it. You’re wearing a Butler shirt and if you’ve been watching them from heaven, you know they’re in a desperate need of a miracle, getting through the Big East tournament and March Madness, which will all probably be over with by the time this post goes out, but you know!

I always thought it was funny how Rick would continue to buy you a Butler shirt for your birthday or Christmas and you’d wear it once maybe and then stuff it back in the closet. You were pretty consistent with your fashion in your old age. We all thought you looked adorable in anything you wore, even if you had food spills down your shirt and pants, we didn’t care. We laughed at you, and apparently you’ve been getting back at us for doing so, because we all tend to spill our food on our shirts a lot more than we usually do.

We are all in agreement that you visit little Nolan. Em posted a video of him reaching up to an invisible spirit; it gave me goosebumps! He is so smart! He actually reminds me of you in the fact that you wouldn’t really flaunt your smarts, sorry, I couldn’t think of a better word there! I think you would have loved him dearly. Now, if you can talk ChiChi into letting him pet her easier, that would be nice. He is so curious about his surroundings, and ChiChi is the only animal that is afraid of him. Honestly, if you saw him in his walker or “car” as we call it, you’d be terrified too! The best way to compare the experience is a four year old me racing around the house in my wheelchair!

Hope you are enjoying yourself wherever you are, and watch over all of us down here too, not just the youngsters. We’re still a quirky bunch but we all need an angel at our side sometimes. Although, I feel like you’d be like a bit of a jokester still, so be good too. You don’t want to get on God’s bad side! So no pranks with some of your friends up there. You told me way too many stories of you growing up with them to know that you all can get into some mischief. Anyways, I love you.

Your granddaughter,
Meg-han.

My New Wheelchair!

Howdy!

This seems so strange to talk about online, because it’s been an incredible long journey getting to this point where I can say “I got a new wheelchair” with a smile on my face! What I find to be even weirder is that, this is the first wheelchair announcement I’ve ever done on my blog! I got my first chair dubbed “the purple chair” when I was four! Honestly, I still don’t think children under the age of four, need a power chair. The only reason why I say that is because of how much of a monster I was driving around in it! I managed to scare everyone I came into contact with, because I was either speeding, not watching out for others, and running over feet left and right. I was a terror on the loose!

In 2006, I received the hot pink chair two days after Christmas. Thankfully, by this time I had sort of grown out of the menace stage, but I still loved to drive fast and threaten people that if they didn’t behave accordingly, I would run over them. So, maybe I didn’t grow out of it after all! If you’re looking at those dates and wondering why there’s such a big gap in between them, honestly, you’re not supposed to have a power chair longer than five years, because of the way your body changes and grows overtime, but after the mess of getting the pink chair, I had both of them passed the five and even 10 year mark! My logic was if it still worked, then why switch to a new one?

For this chair, the journey started back in 2012, when I was in physical therapy for the first time since I was in middle school. My pink chair had officially crapped out on me. It no longer wanted to charge for us. This was also the time where my mom exchanged it with this puny $20 transfer chair, that I would end falling out of close to six times from 2015 to like mid-February! This is why it is literally called, “the death trap” within my family. My dad would do anything to pitch it because he hates it that much! By the end of 2017, I was basically done with anything and everything that had to do with getting a brand new chair, because we kept being stopped by our insurances. It was exhausting and frustrating at the same time!

I want to say a couple of days before we moved into our new house, we got some papers back of things that we wanted included on the chair, that were approved; I was shocked! The only thing that worried us was the fact our wheelchair provider had to order it before the end of the next month. The government doesn’t allow a lot of leg room! And then, we were finally told to look forward to the first week of February, because that was when they were going to deliver it to us! Again, I was stunned! My dad was even surprised on how fast this was now going after waiting almost 7 long years. One of the main reasons why everything was going so quickly was because we had been waiting so long, that we all just wanted a wheelchair that had a joystick on the left side of pedals and it all worked, that’s it. I am supposed to have a whole custom seat put on it soon, but that’ll only happen when the weather improves and my dad can work on the deck and ramp to get me out of the house, because right now I’m a little stuck!


Try to ignore the commode in the background, okay?

The wheelchair itself is very different compared to the previous chairs, because I tend to look at them as the standard powerchair, motor underneath the seat, joystick at the feet. Okay, so maybe that last part isn’t really standard, but is it for me! Anyways, this chair is really bulky. It has a lot of structure and weight, because of the improvements that was put on it,  that wasn’t on my last two.

When I first saw the chair, I was a bit wary of it. After we were told that we would be receiving it soon, I immediately got very nervous of the prospect of having a motorized wheelchair again. I didn’t think it would have been such a big deal at first, because I was mobile while I was in the manual chairs, why was this suddenly becoming an issue? I still haven’t found the answer to that overwhelming question, because I actually haven’t spent a lot of time in it yet to finally feel comfortable with it yet.

Here are some new things that was put on this chair!

  • It has 3 controllers!
  • I have two different speed features – indoors & outdoors!
  • It can lean back while I am still in the sitting position.
  • The joystick and foot pedals can move up and down.
  • I have 6 wheels!
  • While I change directions from left to right, the middle tires stay straight but upper part of chair and little wheels turn instead.
  • The armrests lift up like a Lamborghini
  • I have headlights but no turn signals unfortunately.
  • When you look at the back of it, you’d swear I was a damn Transformer!
  • Oh, and it’s red.

I think the two things that has everybody freaking out is first the fact that I can lean all the way back. I could actually sleep in my chair! Once I get my new seating, I might just be doing that if it’s really comfortable! When I sat in it, that was one of the first things that I was shown because the dude that helped us get it, Shelby, is as much of a goofball as I am! However, since I was already nervous about having a wheelchair again, this happens.

I was way too happy to be back to normal, sitting upright again, after he showed us the rest of the changes made to it. The “main” controller really is cool, because a lot has changed since my first chair where I only have the color coordinated lights of how much battery there was, and knobs for the power, horn and of course the joystick. These newer models are progressing to the point where they have a good quality screen, it’s easier to read and understand. You can apparently hook it up to your phone to move it even if none of the controllers want to work for you! Even though, I have one controller that is situated on my left armrest that is purely for what I’ve just explained a little bit ago, I can also do it on my own screen using the buttons and stick to alternate how back or forward I need to be. This feature is on all three controllers on the chair!

Now we get to discuss the color preference. This was actually really easy compared to the second chair, which I will stand here and tell you that I never picked one out. I would never chose hot pink for anything! I even tried to talk my sister out of having me wear baby pink for her wedding! I thought since I was her maid of honor, that I could get away with wearing it in silver, but nope. I lost the battle. So, this time I was determined to pick a color for this chair to hopefully avoid this disaster again.

This time around, there wasn’t a large amount of colors to pick from, but even then I still felt obligated to get purple because I love dark purple, but then I saw both the electric blue and red. I thought about having a blue chair for my love of Butler basketball and of course my papaw, but once I saw the red, I knew I would automatically go for it. I was asked twice how color I wanted my chair and both times I said red. If you’re unsure why I decided on red, well it’s for my love of another basketball team: Houston Rockets. Even though I love and watch four separate teams, I just felt like I needed to choose a team and color that I know I enjoy watching during the colder months. Since I picked out the color back in October, you should have seen my reaction to the color of my new camera I got for Christmas! It’s navy blue like Butler!

What do you think of my new wheelchair? For those of you wheelchair users, were you ever nervous before getting your chair? Do you have any special reasons for the color of it too?

A-Z Disability Challenge | G : Long Term Goals

Howdy!

For today, this post will hopefully be lighthearted; the kind to make you smile with some of the things that I’ve been collecting as part of my long term goals to accomplish in the future. It’ll have the same format as the other post about my goals for 2019, but I’ll explain a little more about each one, so you will understand why they are important to me.

I like to think there’s a big difference between a bucket list and long term goals. In my Pinterest board for my bucket list things, are not very realistic. You’re wishing to do them rather than actively trying to seek them out. Now, I’ve seen a lot of people who make bucket lists and actually cross off certain ones, but not everybody is that lucky. I’ve never thought about having or even listing out my own personal long term goals like this before, but since I wrote out my other top five goals for the year, I figured maybe I’d be lucky and actually push myself a little bit to actually make a dent in my list. I’m hopeful that’s all that matters to me!

When I created this list, I tried to list them in some kind of order, but we all should know that life doesn’t always follow this rule all the time, but at least it’s organized for me to explain each one for you below!

Write A Cookbook 

I’ve always wanted to write a cookbook, between being my dad’s guinea pig for years and the beloved recipes that my nana was taught by her parents, and then papaw’s family, I just feel like this is the next step! What I find interesting is that I have these big plans of writing it and including inventive gadgets that could help other disabled aspiring cooks and/or bakers, but I still have yet to actually do anything in the kitchen.

When I was with my nana, I could convince her to let me help her mix or pour the various things into the bowl, but I can’t even do that with my own parents! Recently, I went out into the kitchen to watch my mom make broccoli and cheese soup and she would not let me do anything. In her defense, she hadn’t made it in a long time so she was basically panicking making sure she had everything and it was all coming together. I was basically there to express my cooking knowledge with her, which that part was fun, but I yearn to actually do something. I’d love nothing more than to make my parents dinner one day, but these two goofballs won’t let me!

Go To The AMC Convention 

In 2012, I found out about the Arthrogryposis Multiplex Congenita Convention. This was also the same year, I found the whole mother-load of fellow AMCers and the fact that we even had an awareness day for us! I was extremely happy because I love to talk to people, especially family members of kids that have various types of disabilities. Parents and guardians are always looking for others that may have experienced similar situations, and I enjoy being a voice to the younger generations to gain some independence and be who they want to be. This was one of the main reasons why I created my blog in the first place!

It wasn’t until 2017, when the AMC group basically announced to everyone where they were going to host the next convention – because they go to a different state every year, so it keeps things interesting for everybody that attends. Well, I usually like to look on their Facebook page on the last day to see where they will be going to, and for 2018 they were going to Louisville, KY. I was happy! I showed it to my mom, who basically told me “if you can talk your dad into it, then maybe.” Now this came out at the end of July, my sister announced to us in October that she was pregnant and that she was possibly due at the beginning of July… So, my nephew was the reason why we basically dropped that idea from ever happening.

I would love to go to the convention one day, which is why I have included it onto this post. I would love to meet other people to see how they’ve managed to do things. I also think it would be a good thing for my family too, because I’m always hoping that they’ll want to help other families, especially my sister, she’s very helpful and I think she’d enjoy meeting the siblings and basically talk to them about her experiences of being the younger sister of someone with such a physical disability. I just think it would be a great experience for all of us!

Speak On A Panel At AbilitiesExpo

A couple of years ago, I heard about the AbilitiesExpo. I know there is one in Chicago and the other is in Los Angeles. I saw a vlog on YouTube of an attendee that jacked a tripod onto the foot pedals of his wheelchair so he didn’t need somebody else holding his camera for him. I was stunned at this, and I immediately showed it to my dad, we’ve been tempted to do something similar to mine. Anyways, I think the expo is very cool! It is usually for three days, and includes small sections of different companies for fashion, wheelchairs, biotechs, etc.

I have had the same recurring dream of speaking on a panel with other wheelchair users, it usually included Tiphany Adams, Jordan Bone, and myself. These ladies are very special to me as they’re always talking about their experiences of becoming a wheelchair user, and what keeps them going and thriving! I think being able to speak to a large crowd with several other fellow disabled ladies would be interesting! We could discuss real topics like sex and relationships, and give people another outlook to women with disabilities. I don’t know if AbilitiesExpo has ever done anything like this, but I thought it would a cool idea to do in the future!

Visit England

I think everyone knows about this one. I actually didn’t have it in the original line-up, I had a totally different goal but I realized that it kind of went with the first one, so I switched it out.

I’ve talked about how much I love England, and yes, most of it goes with the royals, but I have become kind of obsessed with the overall history of the country. I love the cities, London being my favorite! Bath and York are two of my favorite cities that like to show off their impressive structures, from the cathedrals to a row of houses.  Recently, I’ve been loving various pictures of the countryside. The villages are beautiful, they’re completely different compared to what I see here in the United States. Buildings and houses that were built in the 1600’s still being used to this day, the architecture is gorgeous! If you’d like to know all of the places I’d like to visit one day, click here.

Have A Baby

For a long time, this was the only long term goal I ever had and as the years go by, it continues to go further down the list. I’ve talked about this in the past, so I’m going to attempt to keep this as short as possible.

Years ago. I did include the words “get married” before it, but I’ve sort of lost my interest in wanting to do that. Even though I have my parents and sister’s marriages to look at for inspiration, marriage as a whole in this day and age doesn’t appeal to me. People make vows and sign a certificate but will cheat on their spouses anyways. I don’t want to say because of my disability, I’d always be faithful, because I am not invincible to anything, especially my own temptations.  However, being attached to someone that could be the one to give a child frightens me, because they could always come up with a story that I could be a bad mom, adding to the stereotypical image of people with disabilities can’t bear and raise children.

I’ve always wanted to be a mom. My maternal instincts come out whenever I am around young children. I want to teach them how not to be afraid of someone like me. It is hard sometimes to be around my sister and nephew together, I still get fairly jealous that she has a son to call her own, but I also have to tell myself that I get the easy job as an aunt, but I’ve always wanted to do the things that she does on a daily basis. I have met with other disabled moms out there and they do ease the questions of whether or not, if it’s possible to have a child, but it’s getting to that point where I can fulfill that dream of mine that feels impossible. Hopefully one day it will happen.

Do you have any long term goals? What have you done to try accomplishing them?

A-Z Disability Challenge | E : Events

This was originally supposed to go to a fellow blogger’s site that fall, but by the time I had the time to work on it, she was booked on her blog. So, when I came up with this series, I thought about putting this subject on my blog instead. I hope this post helps with creating or attending your next event.

We all make some type of events with our friends, coworkers, etc all the time. A lot of people love being the person that comes up with the ideas and puts it all together. I will give kudos to anyone that does that job, because I would have a headache going into it. Anyways If you are the one that plans for the entire thing, you usually have it all planned out in your notebook or tablet, just to keep everything organized, you might be missing some things that you wouldn’t necessarily think about needing to know right away.

If you invite somebody that has a disability, whether it’s physical or invisible, you need to cover all areas to fit that person’s needs. Now how do you do that? Well here are some of the basic things you need to remember to do.

  • You need to make sure the place where you will be having the event itself is handicapped accessible.

  • If you’ve invited somebody who is deaf, hire an interpreter.

  • Put things to at eye-level, so that everybody can reach for things easily.

  • Allow them to have their own food brought in, if they can’t have what you’re serving.

  • Brings plastic ware like forks, knifes, spoons, and even multiple straws.

  • Ask the person if they need help, especially if they didn’t bring somebody with them.

  • Make sure they are included in every aspect.

I was going to explain each one of the helpful hints in full, but I thought some were pretty self-explanatory. The first one needs to be discussed is making sure the area is accessible to everybody. For somebody with a disability, we always look out for certain things, like ramps, elevators, and a large bathroom. As a warning, from the moment we get out of our vehicles, we are like hawks, making sure everything is how it should be. You have to be as honest with them as you can as well. If you tell a person with a disability, that the building is accessible, you have to mean everything! If there are stairs, there has to be an elevator. If there is a curb, you have to say “there’s no ramp”. If the bathrooms are tiny as hell, you have to tell them!

Nowadays, lots of people have different food allergies. They might have an allergy to gluten, milk, peanuts, etc and since these are pretty common, a lot of people will respect their wishes and make sure to leave out these foods for that person. However, if you’re on a special diet, and this goes for vegan/vegetarians too, things can be a little bit more difficult for the planner. You want to serve food that everybody will enjoy, but when more than one person cannot have a certain dish, you can’t just change it for them. This is why I included allowing people to bring a small bento box of food that they know they can have to eat, but also I say this for those, who are only allowed to be feed through a tube as well!

To me, this last one just seems mandatory for anybody hosting or planning an event. You need to make sure that everybody in the room is getting attention. Whenever I’d go to events at school, I always felt like I wasn’t included on a lot of things my classmates were doing, and it made me feel really conflicted and sad, because you don’t want to pull somebody or a group of people away but you also don’t want to be lonely at the same time. One thing I do want to say is that, when you do have somebody with a disability at your event, don’t watch them like a hawk. We don’t want your full-on attention, we just want to be included with the rest of the group, so just treat us like in the way you would want to be treated.

Have you ever hosted and/or planned an event before? If you invited a person with a disability, did they explain to you what you needed to look out for to abide by their needs? If you’re disabled, please comment below with some of our helpful hints you think people should know when inviting disabled people to events. 

A-Z Disability Challenge | D : Dear Disability Community

Howdy!

For today, I am basically writing a letter to the disability community. This post is going to a very strong, opinionated piece. I have been keeping a lot of these thoughts locked up for a long time and I think it’s time to unleash them on here. So you’ve been warned!

I feel like the disability and feminist communities are fairly similar with the way people within it can be quick to judge you if you don’t agree with a certain subject. Everybody thinks we all should have the same feelings about the main topic that both groups discuss, like equality and you role as a human being. I’ve been thinking about the role and where I stand on the various topics that both groups fight for on a daily basis, but I’m mainly targeting disabled people.


I think I’m an army of one. I’ve always thought that, because I was kind of taught that over the years. The only back-up I have is my family and maybe some close family friends, but hardly any of them share the same feelings as me, especially about disability in general, because they’re not in my shoes, or maybe in this case we’ll say “wheels?” It’s not their fault by any means, and I’ve kind of learned to live with it. I’ve become more of a silent advocate for the community. I don’t join a lot of the discussions of bigger topics, like politics. When I was in high school, we were taught how to register to vote and if you already 18, you were allowed to go ahead and do it in class. When I was asked to do it, I said no. There was a lot of backlash for it, one person even told me that I wasn’t allowed to complain if a person you’re rooting for doesn’t win because I didn’t vote. Fast forward to 2016, after seeing the chaos, I don’t think my vote would have mattered because Trump had bewitched the public into letting him into the White House anyways.

The second reason why was because I was afraid of basically breaking rank in my household. My parents are strong Republicans and being somebody, who supports the opposite committee or person, is literally the worse thing you could possibly do. So, I try my best to stay far away from politics at home and even online within my own community. Despite the fact that the majority of the disabled people out there, hate our President as much as I do, there are some very extreme people who will do anything to “stand up” for their rights.

At the start of 2017 I think, I saw a video of a news channel filming people with various disabilities, some of them removing themselves out of their wheelchairs, lying on the ground, and being carried away by security and police officers to jail. I’ve never been in a position to feel like that was my only option, but I was conflicted at the thought of seeing how far people in different circumstances doing anything and everything to plead to people, even making a spectacle of themselves. However, whenever a bill that contains something about disabled people, I am concerned but all I feel like I can do physically is pray.

The next topic I’d like to discuss is about the death of Stephan Hawking. There was a cartoon drawing of Stephan ascending to Heaven, free of his wheelchair, computer, and tubes, and he’s shown walking up the golden stairs to the sky. I thought it was a beautiful drawing, but a lot of wheelchair users were really angry about it. Immediately, there were arguments being made about being in a wheelchair is a form of being “free” and that the drawing just added to the myth that once we die, we’re free of all of our flaws: disabilities included.

Again, this was another thing that I chose to stay out of, because I did not agree with the disabled community on two things. Throughout my childhood, I was told by various family members that when we die, our bodies will be transformed if you will. As I got older, I began to believe this more and have always looked forward to that possibility. And the other was, I don’t believe my wheelchair gives me my freedom. Am I mobile? Yes, but I am not free to move around for a long distance by myself. I feel like I have the most freedom when I’m on the floor. Why? Because there’s more space to spread things out, I don’t need everything right beside me at all times. There are issues with reaching for things that are higher than me, but I always find my way around it.

I know I’m going to be attacked in some form by the words I’ve said in this post, but I still stand by what I believe and that is, we’re not all supposed to have the same feelings and nobody is going to make me convert to their way of thinking, trust me, people have tried their hardest to do this for years! I’ve heard many different sides of these two subjects online, mostly on Twitter and so far, nobody’s said anything to divert me in another direction, the only thing I’ve learned to do is hold my tongue and I’m perfectly fine with doing that for the rest of my life.

How do you stay out of the drama with your family, friends and/or online? Are there topics you do not discuss at all?