A-Z Disability Challenge | K : Why Kids Should Be Educated About The Various Types Of Disabilities

When I was busy coming up with the letters and their themes, I was a little worried whether it would be a good idea to basically talk about children and how they view people with disabilities twice. After discussing it with my mom, she pretty much convinced me that it would be interesting to speak up on different ages, because as I’ve found out over the years, children under the ages of 5 are curious of their surroundings but they want to learn about everything! Kids in that are higher in age and in school may hang out with friends that can influence them to bully other kids. So, this is what we will be talking about on today’s post!

I remember when I was in grade school, we were all in separate classes for all of our subjects. The only time you basically got to see the other students was at lunch and recess. I knew at the time that there was one other kid with a disability, we never saw each other but only on the occasional field trips and grandparent’s programs. That was it! So, I was hardly ever around somebody that was remotely like me, until I had my surgeries in 2002.

The reason why I bring this up is because throughout my entire time in elementary school, I was basically taught to be like everyone else. I never really experienced any bullying although there was one girl who didn’t like me, but we were at least civil with each other. Anyways, I grew up actually hating to be around other kids with disabilities, because they acted differently than me and my friends–now of course, I feel horrible thinking that way but that was my mindset back then; I wasn’t like them but yet I was!

You can never really tell what a kid thinks about things unless they tell you, but when they don’t ask you questions, they will almost go through life not knowing the real answers. They will begin to seek them through their friends, and you hope that everything those kids have been taught are saying good things but unfortunately not all children are being told that having a disability of any kind can be a beautiful thing. Instead they are fearful by what they don’t understand and relying on that information to others.

I always wished that there were more motivational speakers that came to schools with a variety of disabilities. Unfortunately, I also worry if this were to happen, if they would appericate it because I know everytime we had people come in and talk with us, it would literally go in one ear and out in the other. However, there is that small chance that a few kids that enjoy learning about everything, so it could be a positive experience as well!

I think it would be useful for these youngsters to see a plethora of differences in their bodies, we are not going to look like athletes or supermodels, and it’s important to remember that at any age!

I had a thought the other night about this subject. For some reason, all of the speakers that came to talk to us were all adults. What if kids saw teenagers or someone in their early 20’s? If I saw more women and talking about her disability, I wonder if that would have made a difference because I didn’t learn how to love myself until two years after I graduated from high school altogether. It really sucks to know that not only .did I have to be away from my classmates and watch X-Men: First Class to feel like I can love being the way that I am!

When you were in school, how did you view the speakers that came to talk about the aftermath of drunk-driving or their disabilities? Do you think there should be more people talking about other topics that could be helpful to children as they continue to get older?

Vloggers That I Love #4

Howdy!

I am so happy that I brought this series back because it seems everybody has been enjoying the last one a lot, so I figured it was time to come back for another post. This time we will be talking about family orientated YouTube channels. I have been loving these types of channels mostly because even though it’s usually a small fraction of their lives being recorded for us, they’re always so fun and interesting. I really look forward to a new vlog every week!

Now as much as this will be discussing the family side of these people, I really picked them for the fact that they’re all mothers but you get to see their interests in various things than besides their children. I was going to only list two for this post to keep up with my list, but I thought the last one fits better with this post than having to give it to another theme. Here are the channels that I think you should check out next!


Natalie Bennett | lifestyle + motherhood


Natalie has a second channels that includes her husband an their whole families. However, for this post, we are only highlighting her main channel. There are similarities to both of them as the kids: Liam, Judah, and Hailey are featured in several of her videos. I mean, you can’t expect her to turn off that part of her life. She does a lot of fun videos that include them right into the theme, like holidays, homeschooling, food, and even her daily routines.

As far as the lifestyle part, the term itself means “anything goes” so she does talk about beauty, fashion, health, and God. She’s had some issues with her health for the past few years, that involves her stomach, mostly it’s her GI tract and the woman has had a lot of changes in her diet between having to go both vegan and gluten-free at the same time. I mean, that in general is usually a choice you make on your own, but for some people it was recommended by your doctors. We haven’t had a proper update about her progress in a while so I hope she is doing better!

One of the things that I was surprised I wasn’t turned off about was the fact that both channels talk about their relationships with God. They do not shove it down your throat, but it does come up quite a bit in their vlogs. If you watch her morning routine video, you get a piece of it as she likes to take time out in the mornings to read sections of the Bible and incorporate it into her outlook of the day. I think because she has such a soft voice that whenever she does talk about her religion, it’s almost comforting and the fact that the kids want to learn about it is really cute too!


Megan Fox Unlocked | millennial, Mennonite & mom.


Now, if you’re thinking the actress Megan Fox made one heck of a life change, you’re wrong! This Megan Fox was born as a Mennonite in Pennsylvania. She lives a basically normal life, as she is a wife and mother of two: Evonne and Fletcher.

When I found this channel, I was a bit stunned but I really feel like I wasn’t the only one that has discovered her in the recent year or so! She has a whole video talking about others assumptions of what it is to be a Mennonite. It really did help at figuring out her way of life. For the most part, I’ve been around the Amish community, but hadn’t met anyone as a Mennonite until 2016. There are differences between the two, so before you go all judgmental, you need to really see her channel for yourself.

In a lot of ways, Megan and Natalie have a lot in common than besides their views in religion and motherhood, Megan also has a really nice voice. She doesn’t talk too fast or too quiet. She just seems like she wants to be your friend really, as she’ll give you some great tips about various things, such as decorating. I have grown to love those types of videos in the last month or so! She loves fashion, and the fact that she knows how to sew, she likes to make a lot of her own skirts and dresses, and even some household items like curtains too!


SparklyFamilyVlogs | teen parents of 3 living in Hawaii


The final YouTube family I love to watch is SparklyFamilyVlogs! Liola and her husband Na’ia are in their early twenties, parents to three beautiful, blond babies: twin boys Kekai and Koda, who have to be around four and daughter Everleigh who is under the age of two I think. They all live in Hawaii. Liola is a stay-at-home mom. They are basically homeschooling the children and they all live a vegan lifestyle.

How I managed to find them was interesting, because I think I was watching a vlog about a vegan dish and their newest video was on my right side, calling to me basically! I clicked it and was immediately curious about one of their sons, because they were running around behind their mama Liola, I wasn’t able to get a good look at the front of this child but I could see a familiar feature of the shoulders. They looked exactly like mine!

Little Koda has Arthrogryposis Multiplex Congentia too. No, I haven’t messaged them yet, I want to, but I don’t to overstep any boundaries so I’m still thinking about my approach before I go making a mess of myself! One of the reasons why I love watching their videos is because of him. He is so brave and living life to the fullest. Actually, the vlog I watched showed him trying to climb a tree with his brother. Koda can walk, he just can’t extend his arms, they’re bent at the elbow like mine. So, the fact that he basically walked on the bottom part of the tree was good enough for him. He was just excited to get that far I think! Liola is very nervous about him and how she’ll have to explain the differences and struggles to him and his siblings as they get older, but I think she and Na’ia will be just fine in the long run.

Before I go, I wanted to say that I didn’t think all of these families had more things than one in common with each other! I knew about the homeschooling and religion parts but it’s crazy to see it all written out in front of me! I know what I like, and that is an authentic sense of family even if it is on YouTube. They’re not bragging about the money that they could be gaining with their sponsored items, every vlog is like you’re hanging out with your best friend and since I can’t physically get out to be with my friends, this is enough for me!

Are you a fan of family YouTube channels? Do you watch any of the ones I mentioned above? If you have a favorite, please share them with me in the comments!

A-Z Disability Challenge | H : Asking For Help

Yes, I am going to try to get back to my A-Z Disability Challenge! I have been kicking myself for not doing it for so long but I think I am finally ready to start on it again. If you have missed any of the other letters, I have them at the bottom of this post so you can check them out afterwards.

This week I will be talking about the notion of asking for help. Although it is a fairly popular topic of other disability bloggers and YouTubers out there, I think it’s a good idea to have many pieces out there for people of different generations in multiple point of views to help people learn more about what they should do if they ever found themselves in a situation where they want to help, but are not sure on what to say or do at the time.

I will be firstly talking about why a disabled person will probably never ask for help. It’s honestly a mixture of things, I think the most important reason is because we don’t want to look weak. We actually love doing things for ourselves. Every ounce of independence we get, we relish in it for as long as possible. However, the day it runs out, it is a heartbreaking day. For example, after I had my back surgeries in 2002, I wasn’t able to jump back into my regular physical therapy, we did a lot of moving around and my body wasn’t used to all of that yet. Our main objective for me to learn consisted of how to transfer from wheelchair to couch, chairs and toilet. I finally re-learned how to transfer again two years after I recovered. Unfortunately I never learned how to get on my bed by myself, which was probably the biggest blow out of the whole thing. I can scoot down off, but I do not have the strength to pull myself back up anymore.

If you were raised like me, you basically had full rein on what you could do, and it made you feel “normal” for once. We love to challenge ourselves in our daily lives. and being able to learn something new is the biggest drug we can seek out. Unfortunately, some of these challenges can be more complicated with some of our limited movements. So, we can sometimes be slower than not only we would like, but for other people too. I’ve realized in the recent years is that our families are usually the ones that have the lowest points of patience of the bunch for some odd reason! They don’t like to see us struggling, especially our fathers, so they want to “help” us. What they don’t know is that they’re doing more harm, as it is better for us to learn how to complete a task than leaving it for someone else.

I do understand the reason why people feel like they should help us. Even though you should always ask that person if you can lend a hand, we will try our hardest to make sure to let you know we don’t need you. Something you may not know is that we have a huge sense of pride within ourselves. Giving up on anything that lets us be like everybody else is the worst thing possible ever. So, when we can’t finish what we started, we will reluctantly ask for help. We will not be very happy with ourselves, but at that time it will be something that needed to happen.

I have always had a difficult time accepting help. One thing that I despise is when someone close to me will automatically do something for me, when they know I can clearly do it. I love trying to find new things to do with my feet, nothing really makes more happy in life than discovering new ways to do ordinary tasks around the house or out in public, but it does make people nervous, they think I’m going to get hurt, so they try to dodge that obstacle as fast as they can and yes, it is very annoying but you have to let it go and hope for the next time. You have to realize your patience is not the same as others so in a way, I think both sides need to keep that in mind when it comes to these things. It also ultimately depends on them on if they can learn to grow to trust you with the various tasks you know or learn later in life..

Here are previous letters and their links if you want to check them out now!

Arthrogryposis Multiplex Congenita | Building Trust | Be Truthful To Your Children | Dear Disability Community | Events | Treat Your Friends The Way You’d Want To Be Treated | Long Term Goals

The Cake Flavored Book Tag!

Howdy!

It’s been a long time since I’ve done a tag, and I’ve been searching for fun things to post on here that wouldn’t consist of me doing a lot of thinking (much less move around!) so I have been reading other blogs in the last month and I have somebody who loves tags just as much as I do, and that is Shaa and she is a book blogger, so majority of the tags she’s done are about her favorite books. I checked it out, and I thought this would be a really fun thing to do. It is similar to the Books & Cookies tag I did a couple of months ago, but this is about cakes so how I can turn this down?!

Chocolate – A dark book that you loved

I thought about this question quite a bit because the word “dark” can literally mean different genres. At least I think it does, so I came up with two books that I think are “dark” in every sense of the word and they are Helter Skelter: The True Story Of The Manson Murders by Vincent Bugliosi with Curt Gentry and Night by Elie Wiesel. I remember reading both books in my Novels class and was absolutely floored by the horror each one discussed so that’s my answer.

Vanilla – A light read

This one was somewhat easier on me. However, there is more darkness to the story, but it is a very short book. I read this story while I was in my Short Stories class, literally a semester after completing the Novels course! It is The Yellow Wallpaper by Charlotte Perkins Gilman. It’s about 64 and a really haunting read if you’re into that sort of thing!

Red Velvet – A book that gave you mixed emotions

Oh boy! There’s only one book that belongs with this question and it is The Ring and The Crown by Melissa de la Cruz. I thought the story of Princess Marie-Victoria was really good but unfortunately there was way too much information and far too many characters to keep up with so I had a love/hate relationship with the book itself.

Strawberry – A sweet book

A sweet book. Hmmmm…. I think I would have to say To All The Boys I’ve Loved Before by Jenny Han. I really loved that book. It just brought me back to my high school days and I really enjoyed being able to look back at those memories with a smile instead full of regret as I use to do! I really need to get back to reading the sequel sometime. I might wait to reading it in the summertime. That sounds like a good idea!

Cheesecake – A book that you would recommend to anyone

Oh jeez. I have a lot of books that I would recommend to people, but I think if anyone wants to experiment with the erotica genre, and use something else besides Fifty Shades; maybe you consider Roxy Sloane’s novella series The Invitation. The first book is just 50 pages but it’s page turner and if you love British men, this will be right up your alley, trust me!

Coffee Cake – A book that you started but never finished

On my Goodreads profile, I have a total of five books that I’ve started by never finished but I think the two that have bothered me the most are Harry Potter and The Prisoner of Aszkaban by J.K. Rowling and Glass Sword by Victoria Aveyard. The reason why I haven’t finished HPATPOA is because the movie has probably been my favorite out of the entire series, so I have trouble with comparing them side by side thus I’ve never been able to complete it. The other one is mostly because I go in and out of fantasy/magic genre. Originally, I stopped because I wanted a break… oops!

Carrot Cake – A book with great writing

Personally, I think there are at least three books that have had really great writing and they are: The Yellow Wallpaper by Charlotte Perkins Gilman (again!), Me Before You by JoJo Moyes, and Red Queen by Victoria Aveyard. The reason why I’ve chosen these three stories are because I thought they each have their good notes, but the one common bond they all share is that you can clearly picture everything that is going on within the story. I have a permanent image and to each one of them.

In The Yellow Wallpaper, I still have a sense of grief and am completely terrified to see anything on my walls. Whereas Me Before You brings me hope of understanding emotionally and physically as a  disability person. And finally, Red Queen means a lot for me. The fact that the writing itself was so vivid that I could see Mare running away, basically ducking and jumping out of a window; this somehow made me want to write a story with that much action and detail.

If you like mixing cake with books, you should do this tag too! Link it back to me if you remember, okay? Have you read any of the books I listed above?

Life Lately | Hello Spring!

Howdy!

Since this is the last full week of April, I thought it was only right to blog about life.

Last week I mentioned that it’s been a whole month since I had blogged at all, and I don’t really know why I decided to do take such a long break but it happened. This year I manged to come up with three separate series, two of them are on here and the other on my blog’s Facebook page. I did a lot of work to get everything organized that I think I started to expect a lot of myself that the pressure mounted so much that I began to feel overwhelmed by everything, but once I stopped blogging for a couple of days, I just all of a sudden felt better about things and I didn’t look back.

I’d like to say I got a lot of other things done while I was on my hiatus, but I didn’t. I think the only real thing I worked on the whole time was my “name pairings” Pinterest board! I didn’t take advantage of the time off to read or anything so that’s one thing that makes me angry, because that would have been a perfect hobby to do! I didn’t even watch that very many movies or TV shows either. I was pretty much consumed by Pinterest! It’s so sad to say out loud and of course read it on here too!

One thing that I’ve been really enjoying lately is our weather. Well, technically we had a few strange days where it was producing late spring weather, where the temperatures were like in the 60-70’s and unfortunately, our new house does not have an air conditioner yet. So, for a large number of days we had to rely on opening our windows and leaving our fans on all day long just to cool down. For 4 days alone, my room’s temperature was around 78-80 degrees! At night, it was miserable because when I have my fan pointed one way, but if I wanted to lay on the other side I was hot as hell! I actually spent one day completely in a short sleeve shirt with a pair of very tight shorts. On the day I wrote this post, the temperature had calmed down so much that it was 39 degrees outside! It was also very comfortable in my room too!

A feature about our house that I am starting to really enjoy is I get to see the morning sun. I’m such a nature girl at heart, so the morning sun makes me extremely happy! Now there is one bad thing about my room. Since it’s placed so far back, I am around a lot of trees so whenever it storms, I am in a constant state of paranoia because we have some very tall trees in our backyard and we have had some limbs crash down in various places in the past. One large branch was responsible for tearing a hole in our trampoline! So, being surrounded by trees has its bad notes too.

I have been spending a lot of my time hanging out with my nephew Nolan. He’s grown so much since my last update. I have thought about creating another one, but it’ll be his birthday in about two months so I have decided to hold off until then, but I doesn’t mean I can’t share anything with you though.

Do you remember when he was like three or four months old and he was obsessed with my hands? Well, now he’s starting to fall in love with my feet! When he was around two months and he used to sit in this seat, and he would watch me get a drink and put on my blanket – I literally told him once that I would treat him how I do that. At seven months old, the little goofball learned how to put on his own blanket with his feet! He’s such a smart cookie. He loves grabbing things with his feet, and I’m surprised with myself because I figured I would be offended by the fact he was using his feet to do stuff, but I’m not. I’m just proud to see him paying that much attention to what I do because I think it’s just part of my daily life, I don’t like to think of it as a special thing, but he’s made me think about it differently now.

Whenever he was really little though, I was often upset that I wasn’t able to hold my cutie pie (my nickname for him!) the only way I was allowed to be up close with him was when mom or Blondie would bring him into my room, to take a nap on my bed. We would wrap up in fleece blankets and while he got to sleep next to me, I was making mental images of my little buddy. Now he’s somewhat mobile, since he can army crawl around I haven’t had that one-on-one time with him. Well, he recently exchanged that with giving Auntie Meggie many, many hugs! Yes, he is a big hugger! I love it. In a way, I think that makes up for the fact that I couldn’t physically hold him as a itty-bitty baby too.

Well I think I’m done for now. What is your favorite thing about spring? What is your favorite activity out of your normal routine that you like to do?

My New Wheelchair!

Howdy!

This seems so strange to talk about online, because it’s been an incredible long journey getting to this point where I can say “I got a new wheelchair” with a smile on my face! What I find to be even weirder is that, this is the first wheelchair announcement I’ve ever done on my blog! I got my first chair dubbed “the purple chair” when I was four! Honestly, I still don’t think children under the age of four, need a power chair. The only reason why I say that is because of how much of a monster I was driving around in it! I managed to scare everyone I came into contact with, because I was either speeding, not watching out for others, and running over feet left and right. I was a terror on the loose!

In 2006, I received the hot pink chair two days after Christmas. Thankfully, by this time I had sort of grown out of the menace stage, but I still loved to drive fast and threaten people that if they didn’t behave accordingly, I would run over them. So, maybe I didn’t grow out of it after all! If you’re looking at those dates and wondering why there’s such a big gap in between them, honestly, you’re not supposed to have a power chair longer than five years, because of the way your body changes and grows overtime, but after the mess of getting the pink chair, I had both of them passed the five and even 10 year mark! My logic was if it still worked, then why switch to a new one?

For this chair, the journey started back in 2012, when I was in physical therapy for the first time since I was in middle school. My pink chair had officially crapped out on me. It no longer wanted to charge for us. This was also the time where my mom exchanged it with this puny $20 transfer chair, that I would end falling out of close to six times from 2015 to like mid-February! This is why it is literally called, “the death trap” within my family. My dad would do anything to pitch it because he hates it that much! By the end of 2017, I was basically done with anything and everything that had to do with getting a brand new chair, because we kept being stopped by our insurances. It was exhausting and frustrating at the same time!

I want to say a couple of days before we moved into our new house, we got some papers back of things that we wanted included on the chair, that were approved; I was shocked! The only thing that worried us was the fact our wheelchair provider had to order it before the end of the next month. The government doesn’t allow a lot of leg room! And then, we were finally told to look forward to the first week of February, because that was when they were going to deliver it to us! Again, I was stunned! My dad was even surprised on how fast this was now going after waiting almost 7 long years. One of the main reasons why everything was going so quickly was because we had been waiting so long, that we all just wanted a wheelchair that had a joystick on the left side of pedals and it all worked, that’s it. I am supposed to have a whole custom seat put on it soon, but that’ll only happen when the weather improves and my dad can work on the deck and ramp to get me out of the house, because right now I’m a little stuck!


Try to ignore the commode in the background, okay?

The wheelchair itself is very different compared to the previous chairs, because I tend to look at them as the standard powerchair, motor underneath the seat, joystick at the feet. Okay, so maybe that last part isn’t really standard, but is it for me! Anyways, this chair is really bulky. It has a lot of structure and weight, because of the improvements that was put on it,  that wasn’t on my last two.

When I first saw the chair, I was a bit wary of it. After we were told that we would be receiving it soon, I immediately got very nervous of the prospect of having a motorized wheelchair again. I didn’t think it would have been such a big deal at first, because I was mobile while I was in the manual chairs, why was this suddenly becoming an issue? I still haven’t found the answer to that overwhelming question, because I actually haven’t spent a lot of time in it yet to finally feel comfortable with it yet.

Here are some new things that was put on this chair!

  • It has 3 controllers!
  • I have two different speed features – indoors & outdoors!
  • It can lean back while I am still in the sitting position.
  • The joystick and foot pedals can move up and down.
  • I have 6 wheels!
  • While I change directions from left to right, the middle tires stay straight but upper part of chair and little wheels turn instead.
  • The armrests lift up like a Lamborghini
  • I have headlights but no turn signals unfortunately.
  • When you look at the back of it, you’d swear I was a damn Transformer!
  • Oh, and it’s red.

I think the two things that has everybody freaking out is first the fact that I can lean all the way back. I could actually sleep in my chair! Once I get my new seating, I might just be doing that if it’s really comfortable! When I sat in it, that was one of the first things that I was shown because the dude that helped us get it, Shelby, is as much of a goofball as I am! However, since I was already nervous about having a wheelchair again, this happens.

I was way too happy to be back to normal, sitting upright again, after he showed us the rest of the changes made to it. The “main” controller really is cool, because a lot has changed since my first chair where I only have the color coordinated lights of how much battery there was, and knobs for the power, horn and of course the joystick. These newer models are progressing to the point where they have a good quality screen, it’s easier to read and understand. You can apparently hook it up to your phone to move it even if none of the controllers want to work for you! Even though, I have one controller that is situated on my left armrest that is purely for what I’ve just explained a little bit ago, I can also do it on my own screen using the buttons and stick to alternate how back or forward I need to be. This feature is on all three controllers on the chair!

Now we get to discuss the color preference. This was actually really easy compared to the second chair, which I will stand here and tell you that I never picked one out. I would never chose hot pink for anything! I even tried to talk my sister out of having me wear baby pink for her wedding! I thought since I was her maid of honor, that I could get away with wearing it in silver, but nope. I lost the battle. So, this time I was determined to pick a color for this chair to hopefully avoid this disaster again.

This time around, there wasn’t a large amount of colors to pick from, but even then I still felt obligated to get purple because I love dark purple, but then I saw both the electric blue and red. I thought about having a blue chair for my love of Butler basketball and of course my papaw, but once I saw the red, I knew I would automatically go for it. I was asked twice how color I wanted my chair and both times I said red. If you’re unsure why I decided on red, well it’s for my love of another basketball team: Houston Rockets. Even though I love and watch four separate teams, I just felt like I needed to choose a team and color that I know I enjoy watching during the colder months. Since I picked out the color back in October, you should have seen my reaction to the color of my new camera I got for Christmas! It’s navy blue like Butler!

What do you think of my new wheelchair? For those of you wheelchair users, were you ever nervous before getting your chair? Do you have any special reasons for the color of it too?

A-Z Disability Challenge | G : Long Term Goals

Howdy!

For today, this post will hopefully be lighthearted; the kind to make you smile with some of the things that I’ve been collecting as part of my long term goals to accomplish in the future. It’ll have the same format as the other post about my goals for 2019, but I’ll explain a little more about each one, so you will understand why they are important to me.

I like to think there’s a big difference between a bucket list and long term goals. In my Pinterest board for my bucket list things, are not very realistic. You’re wishing to do them rather than actively trying to seek them out. Now, I’ve seen a lot of people who make bucket lists and actually cross off certain ones, but not everybody is that lucky. I’ve never thought about having or even listing out my own personal long term goals like this before, but since I wrote out my other top five goals for the year, I figured maybe I’d be lucky and actually push myself a little bit to actually make a dent in my list. I’m hopeful that’s all that matters to me!

When I created this list, I tried to list them in some kind of order, but we all should know that life doesn’t always follow this rule all the time, but at least it’s organized for me to explain each one for you below!

Write A Cookbook 

I’ve always wanted to write a cookbook, between being my dad’s guinea pig for years and the beloved recipes that my nana was taught by her parents, and then papaw’s family, I just feel like this is the next step! What I find interesting is that I have these big plans of writing it and including inventive gadgets that could help other disabled aspiring cooks and/or bakers, but I still have yet to actually do anything in the kitchen.

When I was with my nana, I could convince her to let me help her mix or pour the various things into the bowl, but I can’t even do that with my own parents! Recently, I went out into the kitchen to watch my mom make broccoli and cheese soup and she would not let me do anything. In her defense, she hadn’t made it in a long time so she was basically panicking making sure she had everything and it was all coming together. I was basically there to express my cooking knowledge with her, which that part was fun, but I yearn to actually do something. I’d love nothing more than to make my parents dinner one day, but these two goofballs won’t let me!

Go To The AMC Convention 

In 2012, I found out about the Arthrogryposis Multiplex Congenita Convention. This was also the same year, I found the whole mother-load of fellow AMCers and the fact that we even had an awareness day for us! I was extremely happy because I love to talk to people, especially family members of kids that have various types of disabilities. Parents and guardians are always looking for others that may have experienced similar situations, and I enjoy being a voice to the younger generations to gain some independence and be who they want to be. This was one of the main reasons why I created my blog in the first place!

It wasn’t until 2017, when the AMC group basically announced to everyone where they were going to host the next convention – because they go to a different state every year, so it keeps things interesting for everybody that attends. Well, I usually like to look on their Facebook page on the last day to see where they will be going to, and for 2018 they were going to Louisville, KY. I was happy! I showed it to my mom, who basically told me “if you can talk your dad into it, then maybe.” Now this came out at the end of July, my sister announced to us in October that she was pregnant and that she was possibly due at the beginning of July… So, my nephew was the reason why we basically dropped that idea from ever happening.

I would love to go to the convention one day, which is why I have included it onto this post. I would love to meet other people to see how they’ve managed to do things. I also think it would be a good thing for my family too, because I’m always hoping that they’ll want to help other families, especially my sister, she’s very helpful and I think she’d enjoy meeting the siblings and basically talk to them about her experiences of being the younger sister of someone with such a physical disability. I just think it would be a great experience for all of us!

Speak On A Panel At AbilitiesExpo

A couple of years ago, I heard about the AbilitiesExpo. I know there is one in Chicago and the other is in Los Angeles. I saw a vlog on YouTube of an attendee that jacked a tripod onto the foot pedals of his wheelchair so he didn’t need somebody else holding his camera for him. I was stunned at this, and I immediately showed it to my dad, we’ve been tempted to do something similar to mine. Anyways, I think the expo is very cool! It is usually for three days, and includes small sections of different companies for fashion, wheelchairs, biotechs, etc.

I have had the same recurring dream of speaking on a panel with other wheelchair users, it usually included Tiphany Adams, Jordan Bone, and myself. These ladies are very special to me as they’re always talking about their experiences of becoming a wheelchair user, and what keeps them going and thriving! I think being able to speak to a large crowd with several other fellow disabled ladies would be interesting! We could discuss real topics like sex and relationships, and give people another outlook to women with disabilities. I don’t know if AbilitiesExpo has ever done anything like this, but I thought it would a cool idea to do in the future!

Visit England

I think everyone knows about this one. I actually didn’t have it in the original line-up, I had a totally different goal but I realized that it kind of went with the first one, so I switched it out.

I’ve talked about how much I love England, and yes, most of it goes with the royals, but I have become kind of obsessed with the overall history of the country. I love the cities, London being my favorite! Bath and York are two of my favorite cities that like to show off their impressive structures, from the cathedrals to a row of houses.  Recently, I’ve been loving various pictures of the countryside. The villages are beautiful, they’re completely different compared to what I see here in the United States. Buildings and houses that were built in the 1600’s still being used to this day, the architecture is gorgeous! If you’d like to know all of the places I’d like to visit one day, click here.

Have A Baby

For a long time, this was the only long term goal I ever had and as the years go by, it continues to go further down the list. I’ve talked about this in the past, so I’m going to attempt to keep this as short as possible.

Years ago. I did include the words “get married” before it, but I’ve sort of lost my interest in wanting to do that. Even though I have my parents and sister’s marriages to look at for inspiration, marriage as a whole in this day and age doesn’t appeal to me. People make vows and sign a certificate but will cheat on their spouses anyways. I don’t want to say because of my disability, I’d always be faithful, because I am not invincible to anything, especially my own temptations.  However, being attached to someone that could be the one to give a child frightens me, because they could always come up with a story that I could be a bad mom, adding to the stereotypical image of people with disabilities can’t bear and raise children.

I’ve always wanted to be a mom. My maternal instincts come out whenever I am around young children. I want to teach them how not to be afraid of someone like me. It is hard sometimes to be around my sister and nephew together, I still get fairly jealous that she has a son to call her own, but I also have to tell myself that I get the easy job as an aunt, but I’ve always wanted to do the things that she does on a daily basis. I have met with other disabled moms out there and they do ease the questions of whether or not, if it’s possible to have a child, but it’s getting to that point where I can fulfill that dream of mine that feels impossible. Hopefully one day it will happen.

Do you have any long term goals? What have you done to try accomplishing them?