A-Z Disability Challenge | G : Long Term Goals


For today, this post will hopefully be lighthearted; the kind to make you smile with some of the things that I’ve been collecting as part of my long term goals to accomplish in the future. It’ll have the same format as the other post about my goals for 2019, but I’ll explain a little more about each one, so you will understand why they are important to me.

I like to think there’s a big difference between a bucket list and long term goals. In my Pinterest board for my bucket list things, are not very realistic. You’re wishing to do them rather than actively trying to seek them out. Now, I’ve seen a lot of people who make bucket lists and actually cross off certain ones, but not everybody is that lucky. I’ve never thought about having or even listing out my own personal long term goals like this before, but since I wrote out my other top five goals for the year, I figured maybe I’d be lucky and actually push myself a little bit to actually make a dent in my list. I’m hopeful that’s all that matters to me!

When I created this list, I tried to list them in some kind of order, but we all should know that life doesn’t always follow this rule all the time, but at least it’s organized for me to explain each one for you below!

Write A Cookbook 

I’ve always wanted to write a cookbook, between being my dad’s guinea pig for years and the beloved recipes that my nana was taught by her parents, and then papaw’s family, I just feel like this is the next step! What I find interesting is that I have these big plans of writing it and including inventive gadgets that could help other disabled aspiring cooks and/or bakers, but I still have yet to actually do anything in the kitchen.

When I was with my nana, I could convince her to let me help her mix or pour the various things into the bowl, but I can’t even do that with my own parents! Recently, I went out into the kitchen to watch my mom make broccoli and cheese soup and she would not let me do anything. In her defense, she hadn’t made it in a long time so she was basically panicking making sure she had everything and it was all coming together. I was basically there to express my cooking knowledge with her, which that part was fun, but I yearn to actually do something. I’d love nothing more than to make my parents dinner one day, but these two goofballs won’t let me!

Go To The AMC Convention 

In 2012, I found out about the Arthrogryposis Multiplex Congenita Convention. This was also the same year, I found the whole mother-load of fellow AMCers and the fact that we even had an awareness day for us! I was extremely happy because I love to talk to people, especially family members of kids that have various types of disabilities. Parents and guardians are always looking for others that may have experienced similar situations, and I enjoy being a voice to the younger generations to gain some independence and be who they want to be. This was one of the main reasons why I created my blog in the first place!

It wasn’t until 2017, when the AMC group basically announced to everyone where they were going to host the next convention – because they go to a different state every year, so it keeps things interesting for everybody that attends. Well, I usually like to look on their Facebook page on the last day to see where they will be going to, and for 2018 they were going to Louisville, KY. I was happy! I showed it to my mom, who basically told me “if you can talk your dad into it, then maybe.” Now this came out at the end of July, my sister announced to us in October that she was pregnant and that she was possibly due at the beginning of July… So, my nephew was the reason why we basically dropped that idea from ever happening.

I would love to go to the convention one day, which is why I have included it onto this post. I would love to meet other people to see how they’ve managed to do things. I also think it would be a good thing for my family too, because I’m always hoping that they’ll want to help other families, especially my sister, she’s very helpful and I think she’d enjoy meeting the siblings and basically talk to them about her experiences of being the younger sister of someone with such a physical disability. I just think it would be a great experience for all of us!

Speak On A Panel At AbilitiesExpo

A couple of years ago, I heard about the AbilitiesExpo. I know there is one in Chicago and the other is in Los Angeles. I saw a vlog on YouTube of an attendee that jacked a tripod onto the foot pedals of his wheelchair so he didn’t need somebody else holding his camera for him. I was stunned at this, and I immediately showed it to my dad, we’ve been tempted to do something similar to mine. Anyways, I think the expo is very cool! It is usually for three days, and includes small sections of different companies for fashion, wheelchairs, biotechs, etc.

I have had the same recurring dream of speaking on a panel with other wheelchair users, it usually included Tiphany Adams, Jordan Bone, and myself. These ladies are very special to me as they’re always talking about their experiences of becoming a wheelchair user, and what keeps them going and thriving! I think being able to speak to a large crowd with several other fellow disabled ladies would be interesting! We could discuss real topics like sex and relationships, and give people another outlook to women with disabilities. I don’t know if AbilitiesExpo has ever done anything like this, but I thought it would a cool idea to do in the future!

Visit England

I think everyone knows about this one. I actually didn’t have it in the original line-up, I had a totally different goal but I realized that it kind of went with the first one, so I switched it out.

I’ve talked about how much I love England, and yes, most of it goes with the royals, but I have become kind of obsessed with the overall history of the country. I love the cities, London being my favorite! Bath and York are two of my favorite cities that like to show off their impressive structures, from the cathedrals to a row of houses.  Recently, I’ve been loving various pictures of the countryside. The villages are beautiful, they’re completely different compared to what I see here in the United States. Buildings and houses that were built in the 1600’s still being used to this day, the architecture is gorgeous! If you’d like to know all of the places I’d like to visit one day, click here.

Have A Baby

For a long time, this was the only long term goal I ever had and as the years go by, it continues to go further down the list. I’ve talked about this in the past, so I’m going to attempt to keep this as short as possible.

Years ago. I did include the words “get married” before it, but I’ve sort of lost my interest in wanting to do that. Even though I have my parents and sister’s marriages to look at for inspiration, marriage as a whole in this day and age doesn’t appeal to me. People make vows and sign a certificate but will cheat on their spouses anyways. I don’t want to say because of my disability, I’d always be faithful, because I am not invincible to anything, especially my own temptations.  However, being attached to someone that could be the one to give a child frightens me, because they could always come up with a story that I could be a bad mom, adding to the stereotypical image of people with disabilities can’t bear and raise children.

I’ve always wanted to be a mom. My maternal instincts come out whenever I am around young children. I want to teach them how not to be afraid of someone like me. It is hard sometimes to be around my sister and nephew together, I still get fairly jealous that she has a son to call her own, but I also have to tell myself that I get the easy job as an aunt, but I’ve always wanted to do the things that she does on a daily basis. I have met with other disabled moms out there and they do ease the questions of whether or not, if it’s possible to have a child, but it’s getting to that point where I can fulfill that dream of mine that feels impossible. Hopefully one day it will happen.

Do you have any long term goals? What have you done to try accomplishing them?

Bucket List Chat Questions

12011191_10205112973764179_8859821034477901116_nIt’s the third week of the month and last night I hosted my second US blogger chat on Twitter! It was definitely a success! Literally one day after the first time I already figured out what I wanted to talk about for the next time and I was so excited. Now that I know this is kind of permanent, I have decided that I would do my chat a little bit differently than how others host their chats.

Even though these chats are mostly for bloggers living in the United States. Sometimes I see others from Australia, England, and/or Ireland joining in while it’s either very late at night or early in the morning. Anybody is allowed to join the chats as long as they use the hashtag in their tweets so they can join the real conversation with others. I wanted to create a comfortable environment for everybody. Since everybody seems to enjoy those random topics that allows you to relax and they’re not always about blogging at all. That’s why I chose to talk about music in the first chat I hosted. It was new for me, an easy topic to come up with questions and I wanted something fun and hopefully people would enjoy it just as much! This time I wanted to talk about bucket lists!

I have a giant Bucket List – actually I have three of them total! The main one and then there’s the other two: Things I’ve Done and Things I Don’t Want To Do. I first came up with my list back in 2012 but I’ve always had one stuffed back inside of my head of different places I want to travel to one day. When I discovered Pinterest that’s when it all actually became a list. It grew into an actual list of crazy, random things that do not go together at all! The others formed a little bit afterwards. I’ve done some pretty interesting things in my life. I’ve played mini golf, never gotten a hole in one, but it’ll come one day. I’ve owned a varsity jacket and own a bunch of cats. And then there are the ones that are little good things to cross off your list. People might think they’re little things that nobody would care about like going to the zoo or have bare feet all day. People would love to be able to cross of those two things off their lists but they may not be able to. As far as the things I never want to do, surprisingly that’s a small list. At the top of my head the things I don’t want to is skydive (because I’m deathly scared of heights) or be rich.

This week’s questions have shortened a bit. From 10 of last month, I came up with only 8 this time around! I added two more as little bonuses! I would really like to read your answers. Leave a comment below or post on my wall of my Facebook page! At this point I have no idea what I want the next topic to be about. It might be about childhood favorites or standards as a person/blogger. I have a whole month to figure out! Next month I’ve given up my normal time to another blogger to host so I’ll be back in November! =)

Have you came up with your own bucket list? When did you start building it?

What are your Top 5 places to travel? Or if you are a travel blogger, what were you’re favorite places so far?

We can’t forget about the food, if you were to become a foodie. Which state or country would you like to explore?

Since I’ve discussed my other lists, are there things that maybe you don’t
want to do? What are some of the smaller things you’ve been able to accomplish in your life?

We all have things we want to live to see accomplished, what is yours?

What is holding you back from doing what you want to next?

Tell me what is the craziest thing that you wish you could do?

What was the last thing that you thought you wouldn’t do but yet you did?

A Place I’d Never Sit Foot In Again…

Source: perfectbucketlist.tumblr.com

The other day I was working and fixing my bucket list on my little tab at the top. It definitely needed to be cleaned because in ways it felt very chaotic and hard to read. I am very happy that I decided to make my own list but at times I feel like I wasn’t being realistic enough. As much as I’d like to get inside a taxi and say to the driver “follow that car!” and hit somebody over the head with a frying pan. Let’s face it, those things will never happen no matter how hard I try!

I was looking through my Pinterest board of things that I have on my original list. I’m sad to say that I’ve chosen to remove this one. To a normal person this would be a dream come true, but not for me.

I have never liked my voice being recorded, when I hear it, it sounds like squeaky and I feel so embarrassed by it, but it’s never kept me away from choir. I’ll be honest I don’t know what I was thinking in late 2009 early 2010, all I knew was I had to find a college to continue to educate myself. Even in middle school, I never had an idea what I wanted to do in life. At one point, I wanted to be a fashion designer and I actually took a class specifically to see if I’d really like it. I loved the class, but since I still needed help controlling a sewing machine I lost interest in it. I hate having help! It’s a normal pet peeve for ones with any kind of disability deals with on a daily basis. Anyways, the only music based class I have ever taken were the ones you had to have in middle school plus choir. That was it! I have always been interested in learning more about music. How to make it and record it. So when I found out that a college nearby my hometown had an audio recording program and that our school was taking a group of juniors and seniors to that exact college, my mom and I decided it would be a good idea for me to check it out.

Before even deciding that I was going on this college tour trip, I had actually been in contact with the director of the program. He was extremely sweet and genuine believed that there could be a way for me to do this. I was very upfront about my disability, explaining that I did everything with my feet and had trouble with tables being too high and such. He sounded like things could modified for me and that’s when things started to freak me out a little, but I’ll get to that later on. The day of the trip, it was just my aide and I on the short bus. Thank god for iPods because I was a nervous wreck the whole drive there! When we got there, we were all in the student union? Is that what it was called? I don’t remember, but we had to hear a few of the students talk about finding the right career and what college life is really like from their perspective. Afterwards, we were separated from our friends and into different programs we signed up for that the school had, audio recordings was mine of course and I was paired up with a junior boy. Within five seconds later a very tall man came up to us and looked down at me and said, “are you Meghan that I’ve been talking to?” I said “yes” and he took us on the tour of the music department.

I don’t remember much of the actual tour but he did a pretty good job at it though! He talked to both of us including my aide. It was nice to brig a voice and face to a person I had only met through emails. We took a couple of elevators because there were a lot of stairs. We got to meet a few of the different instructors and we finally got to see the rooms where the students get to play their instruments and learn the recording process. When we walked into both rooms I felt as though I was in heaven! It was so roomy and he explained to me that tables could be lowered or raised higher if needed. We also got to meet some of his present students, including two boys that I went to school with and I was a little weirded out about that. They were nice but I know different looks from people – they had the look of “why is she here? How is she going to attempt this?” It was pretty cool just being in the rooms with all the equipment. The experience itself was neat! After our little tour was over, he took us back to be with our classmates in the lunch area. Before we left the school completely, we had one last tour of the whole campus and that was great too because I hadn’t been through the whole grounds since 2004 when my mom signed up for the start of her nursing degree.

That January, I applied for the school and got my letter in mid-March. The same day I brought home one of my drawings for my dad to make a frame out of it for me. I remember my mom crying because she was so happy that her oldest daughter was going to school at the same one she went to. In May, our hometown newspaper puts all of the graduates’ majors and schools they were going for and I was the only one with “Audio Recordings” on it. I felt weird again, along with other feelings too! Once I graduated, we kept getting mail for college campus tours for the parent’s and I wanted to go to the one in June. We should have went to that date but we couldn’t because of my mom’s schedule. We didn’t even get started on my Voc Rehab stuff until mid-August. I signed up for my classes and met my advisor, within three days later we realized that I wasn’t going to have my books or an aide for my first week of classes so my cousin was comfortable with filling in. The day I was supposed to start my classes, my mom had been on the phone with my advisor and switched all of my classes to online. That’s when my real depression started. After that, I’m surprised that I didn’t grow a hatred for music, since I didn’t I learned to distance myself from everybody else.

What still gets me though, that September I started emailing a student I had seen on that campus trip, I thought if I could get him to give me some advice about my situation and learn more about the program I’d feel better about it. He was really nice and was honest with me. He told me if I really wanted to learn about music then I’d like doing this career wise. At that point, nothing was really working with me and I quit my studies in October. Before all this, I knew I was in a wheelchair and did things with my feet, but I didn’t fully accept myself. I don’t normally like getting help from anybody, trust me both my papaw and dad are bad at this still! I also don’t like modified tables and things of that nature, I feel as though I can push myself to deal with it. I’ve used random chairs as my desks way too many times. I think I signed myself because I needed to do it and thought it sounded the most interesting! I didn’t care for anything else. I think my mom was right, maybe I just wanted to go to college to join all of the parties.

Now I have a new sense of myself as a person and have a new respect for musicians. I have also added quite a few artists and bands onto my long list on my iPod and Spotify. They say things happen for a reason. Maybe I needed to have this little downfall to rise back up who knows. I do know that even though my music preferences have advanced far from everything that I could imagine, that I never want to set foot or in this case “wheels” into a recording studio. I don’t think I’d ever feel the same as I did that first time. I might feel ashamed or sad and then I’d have to explain why I feel like that to a stranger. So that is my entire reason why I’d never go back but I might apologize to the director for leading him on like that, but it’s funny though he was one of the only people who ever had faith of me being in the program. So I’d probably tell him “thank you” for that part. Yeah, now I’m done.

15 Things For 2015


It’s the first full week of 2015. Schools should be back in session and here I am thinking about things I want to accomplish in the new year. Other bloggers are sharing their fifteen things to do in 2015, so I thought I should too. Of course, I can’t be like the rest I have to do mine in another way. In my first post of the new year, I talked about wanting to have more adventures and keep working on myself. So I’m splitting this list up in two group of ten things. Hopefully this won’t overwhelm my brain with too much. Last year when I created a whole list of books to read, I only managed to read one or two books off that list. I’m hoping to actually scratch a few things off of each list this time around. So wish me luck!

5 Things Off My Bucket List:

Some of these are more realistic than others, like the doing more DIY project. I learned to do a lot of things that I could do with my feet, and I’d like to find some DIY crafts that I wouldn’t have to ask my nana or mom for help. I would LOVE to go to HogRock this year. It’s another bike rally, but bigger and apparently crazier than Plummer. Dad’s already we’re going to Plummer. We should not had been taking about bikes or the rallies this early in the year. I’d like go see Avengers: Age Of Ultron at a midnight screening. That would make me very happy! I’d also love to go my first Blogger Meet up, hoping it’s close enough where traveling wouldn’t be that difficult to do. Lastly, I’d love to go attend a cooking class! It just sounds like fun idea to do!

10 Things To Work On:

I have a LOT of insecurities that I still need to work on. It’s normal to have both good and bad days. Going through and figuring these ten things was easier than up top. I can come up with a lot of scenarios in my head. This is what I do and been doing since I was a kid, I feel like my imagination isn’t as good as it once was. Even though I still have some pretty wild dreams at night, it’s not as crazy like I used to. I want to be able to trust myself, not just my heart to lead me in the right place but also my body. Since my mom and I like to do transferring from one place to another, I would like to trust my body to know what to do next. I’m not saying brace itself, I’m saying even if I haven’t done it a lot but take a couple of steps to help my mom so she doesn’t have to stress herself out a lot. I am the worst about being a damn perfectionist, especially during these DIY projects. I need to remember to breathe slowly and walk way, or in my case “roll” away from things I may not want to do. It worked last year, it might work again. Don’t go looking for love. Always accept things for what they are, trust me after you’ve accepted this, life really does get easier.

I need to remember that when I am down about anything big or small that I have three (well technically four) Pinterest boards full of different quotes that I can look at and build me up. I’m also thinking about redoing the quotes on the back of my door, using normal white paper and bright/dark colors so I can see the words clearly. Less lyrics this around too. Even though, there are two that should stay up there. Anyways, moving on. I want to be more optimistic, thankfully this has been another one that’s worked wonders for me over the past year. When I say the words, “be optimistic Megz” I instantly feel something taking over me, like weight lifting off my shoulders. And finally, after mom having to remind me while we were out shopping last month, I need to stop apologizing. I am REALLY, really bad at this one. I apologize for the stupid things too.

What are you planning on doing in 2015?

So I Tried To Play Pool….


It’s a Monday, it’s been a dull one but not as bad as I figured it be honestly. I am getting to the point where I’m actually liking my weekends again. Since we hardly ever get together at my nana’s anymore (except for this past Saturday of course!) but I usually spend my weekends at home. Over the summer, I would go with my dad to the barn at our neighbor’s house and then several weeks ago, we started going over to another neighbor’s house, they have a garage. They usually grill out and watch the football game or NASCAR race. Sometimes during the commercials they go back and forth between the two of them. Lately, we’ve been doing Sunday get-together and it’s been very fun! Ju-Ju usually makes the sides as my dad likes to be the one who does the grilling. Last weekend, Ju-Ju made Tacos, but dad made us a quesadilla which was delicious! This week, dad grilled out burgers and then another one of his friends brought deer meat. I actually wanted to try it, but didn’t get to. Earlier that day, my folks made pot roast and I cleaned my plate. Three hours later, I was surprised I was even in the mood to eat a cheeseburger, plus the corn pudding that Ju-Ju made along with it.

When I first got there, I was trying to figure out how much movement I could make in my wheelchair. My dad wanted to dress me to where I wouldn’t be cold while sitting in the garage, because even though they have a nice little heater in the back, they try to leave the actual door up so everybody and including myself can get in and out better. My dad dressed me in a regular T-Shirt, plus my old NHS hoodie. I wore a stretchy leggings with an extra pair of sweatpants on top of that. Thank God, he only had me wear one pair of socks over my feet. Well, Ju had been sitting out there for a while and was freezing. I asked my dad to fix my sleeves and they raised the door down. When the door was down, I had my dad take off my sock on my left foot so I could use my phone. I can’t text with my sock on, well I can but in tighter socks, well after he took it off John, Ju’s husband kind of freaked out because he thought that foot would get cold. He even tried to put a jacket over it, but I tried to tell him twice that since that foot is already cold to begin with, there’s no use in making warm or anything. I have weird feet. I actually stayed pretty warm last night, had to take off my hoodie later that night as the heater and amount of people in there were creating a hotter environment.

My mom and Sammy and her family didn’t come until much later in the evening. So that led me and Ju to being the only females in that garage. I love it! When everybody else came over then did things kind of take off from there. Ju’s oldest son Pat came home and he and everybody else played some pool. Even my mom played a couple of rounds, she did pretty good! After watching everybody play and argue back and forth about the “rules” on how to play and the fact we’re not allowed to gamble over rounds, while majority of the guys were outside Vern, Rex, and Sammy’s boyfriend Tepe stayed inside setting up for the next game. I finally voiced if I could, you know try to see if I could do it. It does look complicated but I just wanted to see and after the fact I said that it was on my bucket list, then everybody try to see if I could. Vern split one of them in half because the whole stick was too heavy for me to lift up. They set me up a little part and as much as I got discouraged those first 3 times of going to click it. Everybody was really good about it, after doing it once and figuring out I need a little work. I realized nobody took video or anything, so we had to do it again. It wasn’t that bad. If that’s on any part of my bucket list I can check it off of there. I’m just glad I did it while everybody was outside. Not that much pressure on me!

My mom freaked out that I had Sammy take off my seat belt because I knew I wouldn’t be able to get my feet up to the railing with how much material I had on. I kept telling everybody if I fell on the ground, I’m pretty sure my ass wouldn’t feel a thing!