Battling Weight Issues As A Disabled Woman

Howdy!

I thought this topic was appropriate since everybody has decided on their new year resolutions. Most people put “lose weight” on their lists because it’s something that is important to them and if they’re tired of looking at themselves in a certain way, I believe everybody has the right to do something for themselves, it’s not a selfish decision at all. If they admit that it’s time then they should be able to take the whole twelve months to figure out how to lose the right amount of weight to make them happy!

My weight is another story though.

When I was busy having my surgeries years ago, it did become a bit of a struggle because I was so small. They wanted to bulk me up. I didn’t have to drink those disgusting protein “milkshakes” right away, the gap between my second and last surgery was pretty short, and I was really low on my weight so I think I had to drink two of these drinks a day for a week. Once I was home, I never had to drink another one of those again. However, when I was really sick my doctor recommended PediaSure because again, I would get very skinny because I wasn’t able to keep any food down. I think I tried both the chocolate and vanilla. Surprisingly, I liked the vanilla better! I’m hoping they taste better than what they did in the early 2000’s!

Now that I’m an adult and over 80lbs, I can get pretty down about my weight. I’ve never really had a problem with it though. It wasn’t until after I got out of high school, when I was being left out with my “friends” so I began to blame my weight and on top of that, my disability.

When somebody you love is attempting to lift you up out of bed or into the car and they grunt and grumble with every movement, it can get you down very easily. Every one of my family members has some sort of aliment. What’s interesting is that I don’t have the same strength I used to have before I had my surgeries. I used to be able to get on and off the bed without any help. I can still get myself down and we’ve learned to do pivot transfers which has been very helpful so hardly anybody has to really lift and/or carry me to an area. I think I’m scared of getting any bigger because I don’t want my legs to give out on me.

Now I know, it had nothing to do with my disability, but my weight is still at the forefront of my problems. I am noticing different areas. My waist and what my mom calls them “fat rolls” because I am constantly having issues with my pants, they’ll get twisted and pinch my skin underneath this patch of fat and skin. When you’re not able to untangle them yourself, and when it happens at night where everybody else is sleeping, you feel kind of hopeless. One of my least favorite places is my chin though. I definitely have a double chin and I absolutely hate it.

I’d like to find a balance in my weight, because I don’t want to be under 60 lbs and have a bad immune system. So there are a few things on Pinterest for people with disabilities to do in and out of their chairs and I wanted to include an example for yoga, so you can stay in your chair.

Chair yoga can be great for the disabled, but it's also wonderful for anyone who is not feeling quite up to a more challenging yoga routine that day.

And then of course you have YouTube, where you can visually watch somebody else doing it in front of you and you can make sure what you’re doing is right too. Honestly I think watching them on YT is better anyways, so you can feel comfortable with it, before you actually do it.

This is a four minute workout you can do.

And this one is a little longer workout that I liked too.

If you have a disability, what do you do as far as trying to lose weight? Do you have any good tips that you can share below?

snowflake

DIY: Painting Pumpkins!

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Howdy!

I actually have a new Halloween/pumpkin craft for you! I am so excited! So I guess I should explain why I didn’t think I’d ever do a craft again and how exactly we got these pumpkins.

My poor nana and I, we really loved doing our crafts, and we got in such a system to do them every September so the posts I’d write of them would go up sometime later that month or early October. They were basically everybody’s favorite thing to read during those two months and I always had a lot of writing them up, while trying to remember what all we did, spills and all! So when she went to the hospital and eventually went to stay at the nursing home, I kind of didn’t want to admit it but I knew my days of doing our Halloween or any crafts weren’t going to happen as much.

I have a creative soul and I’ve been hating the fact that I’ve had to basically shut down those desires and saying that makes me laugh because I hated painting in school. I’ve had these urges to purchase some paints since the end of August because it would be that time of the year where we’d be getting ready and so I’ve been really sad. My mom doesn’t carry the craft bug and you all should know about my dad by now! I also didn’t want to ask Blondie and Brandon because I didn’t know if they really wanted to do anything like that or had the time to do it. So I’m just kind of left to do nothing and it really sucks!

And then one evening my mom came into my bedroom, I had thought she had went to bed about a half hour before so it freaked me out at first. She came in to tell me that we’ll have to get me some paints because dad found some pumpkins out in the field and I was instantly happy! He literally brought home like seven of these large pumpkins and they sat on our porch for like a week or so, and then one morning my mom came in again and she said that Blondie and Brandon were coming over to paint the pumpkins. According to mom, it wasn’t even Blondie’s idea, it was Brandon’s! Poor guy had to work that day but he still wanted to paint pumpkins afterwards!

What you will need for this:

  • Pumpkins
  • Old newspapers
  • Paper plates
  • Toilet Paper Roll
  • Water Bowl
  • Paints
  • Brushes
  • aaand some ideas ahead of time!

We started out doing this outside because that would have been a smart choice or so we thought! I have to say, it wasn’t too bad sitting outside on the porch but the bugs were driving us nuts throughout the time we were out there. Poor Blondie was covered in mosquito bites, mostly on her right side – she had a total of 12 bites!

Now when I do this with my nana I am usually sitting in my wheelchair and use a chair or box to prop the pumpkin up to a certain level so I can reach it on all sides. Well, I didn’t have any of those for this so mom just had Brandon put me on the ground and I will admit it had been a while since I did that because it is so difficult to get me back up since I am so low. However, it did make things a lot easier for me but I definitely forgot about my legs and feet falling asleep every ten minutes! So I had some issues with gripping my brushes and figuring out how to sit again.

If anybody noticed the last bullet, the three of us were having a tough time figuring out ideas to paint our pumpkins. The only idea that I knew I really wanted to do was a minion. I am obsessed with these characters and yet, I have not seen them on a movie! I like to think of them of little Twinkies! So I had a rough idea on how to make one, I also had references considering I was still in my pajama bottoms with them on it. This time, I knew I had them on and didn’t do what I did with Brandon’s Christmas gift bag last year! Over the years of doing these crafts, I’ve learned to relax and not be such a perfectionist while working on these different characters. Poor Blondie hasn’t mastered that and was really giving herself a tough time with her sugar skull. I think it looked awesome but of course she was growing to hate it as she was finishing it. I’m glad I’m no longer like that anymore!

It had actually become a sort of game for both Blondie and Brandon because they definitely didn’t have any ideas to do for their pumpkins so they went on Pinterest and that’s where Blondie found hers. I still don’t know if Brandon used Pinterest but we were having the most difficult time guessing what his could be. He was not telling anyone and it even started to bother dad after he got up and looked at all three of us and our big mess! He finally had to tell us or maybe Blondie actually guessed it? I don’t remember how it came about, but I did catch a glimpse of it on his phone when he went inside for something but I will admit I had no idea what the hell he was making, all he said was it was a DC character and it wasn’t The Flash. Dad kept saying it was either Ant-Man or Iron Man, but we were all stumped. It is Red Hood, all he gave us as a hint was that he was once a Robin.

After we had finished our first pumpkins, we were thinking of stopping altogether but Brandon wanted to continue. He cracks me up sometimes! So dad made the suggestion of moving our stuff into the kitchen. So we packed up everything and moved into the center of our kitchen, the cats were confused because we were at the door but not paying attention to them. They actually never came up to the front porch to investigate, which was probably good or else some would have ended up with different colored paws and we would have little paw prints up and down the porch! As cute that would have been, they wouldn’t let us clean their little toes!

Anyways, we got started on our second batch of pumpkins. What was different for me in this round was that I had two ideas but only memories of what they looked like on Pinterest. I didn’t make any real reference like I had for my minions, so I just had to wing it and this was where I like not being a perfectionist. I decided to do a Jack Skellington from The Nightmare Before Christmas and I have to say, I did a fairly good job on it. I was very proud! I also put the word “Boo” on the back of it in a baby blue because I kept seeing it in the corner of my eye and I thought, what the hell? This one will hopefully go to my Aunt Cindy soon, if we don’t get any more rain beforehand!

Blondie made a very cute Nemo from Finding Nemo and it is genuinely the cutest thing, I kind of like it more than her sugar skull and you guys know how much I like my skulls! Poor Brandon though, he tried doing the Greek lettering of his fraternity but couldn’t get it to turn out right so he ended up covering it up with an old school American flag. You have to give the boy some props for trying it out though!

After a good two or three hours in two different spots, we were finally done! Well, technically there’s still one naked pumpkin left but it’s sort of big so nobody may paint him. Blondie and Brandon took pictures with their pumpkins and when she came back inside with my minion to take mine, I realized I forgot to paint a mouth on my minion so Brandon being a good boy, he took two brushes of black and white and made him a cute little mouth for me!

What are some of your favorite ways to decorate a pumpkin? Do you carve it, paint, or use sharpies? 

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snowflake

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OOTD: Black + White

Howdy!

Today I have a new outfit post for you! I originally wanted these pictures to be taken outside but since my dad helped bring me inside that day, I never got the chance to ask mom to do them over again. And there’s no point in asking dad because he doesn’t necessarily get it, so in ways we have to be grateful that my mom decided to do this while we waited for the doctor to see me!

On Friday, I decided to pick out something in my closet that I have yet to share with you guys. The top is actually the last of the clothes I bought back in February! I tried to talk my mom into wearing her shirt too since she bought the same one, so we could be twins but she voted against that. The shirt is long sleeves, which probably wasn’t the best thing to wear out in the month of June without a cloud in the sky. It sort of has a jersey style to it as the arms and around the upper part of the chest is all black while the rest is white.

The only design on it is a giant black skull with hearts as eyes on the front. Yes, that was the whole reason why I bought it. However, that wasn’t my mom’s reason, she purchased it because it was comfortable! It’s pretty soft to the touch, if you sweat in it the feel of it is annoying but it’s cotton. What I find interesting is that the upper half I explained is in like a deep black whereas the skull itself is like fading into a dark gray, I don’t know why both sections are two different colors, but as long as I have a few more shots to wear it out in public I’m fine. I’ll just have to wait until mid-September to wear it again.

My leggings were part of another outfit I had back in 2014 or ’15, I get confused of which year it was given to me, but I do remember getting it on Christmas Day along with another outfit that was similar to it. One was purple with sequins and the other was zebra print. Unfortunately the tops were too small for my arms because it had the shirt and small jacket attached to each other, so getting it off and on was difficult for us. So I mostly just wear the pants now! I’ve outgrown the purple pair and I’m pretty sure this was the last time I’ll be able to wear these as they were very tight around my waist and stomach.

Despite the tightness, they are very nice to wear. It would be easier to wear them while I’m not moving the push chair by myself. They are very slippery as my parents call them. I generally like that material but it does have its drawbacks with the “silky” texture and the different temperatures just go right through it; they’re the worst to wear in the winter because you feel the cold breeze very easily and if you are sitting out in the sun for a few minutes, the heat just goes right into your thighs and you feel like you’re melting! I like them, but as you can see they’re not a favorite among my parents!

What do you think of this outfit of the day? Yay or nay?

snowflake

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OOTD: Wonder

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Howdy!

Today is the day that the new Wonder Woman movie comes out starring Gal Gadot, Chris Pine, Robin Wright, and Connie Nielsen! This post is not sponsored, I just bought a new WW shirt and decided to publish the outfit post because it felt right!

This will also my second DC superhero T-shirt that I have in my closet after the Batman shirt that my mom swore was apart of Marvel – you should have seen her face when I told her that Wonder Woman wasn’t part of it either! Anyways, I bought it when I got the other shirt at Walmart; I don’t remember if I had mentioned it in my last post that I found both of the shirts in the men’s section because half the time when I purchase tops they don’t fall off my shoulders! The necklines are so nice to me!

The shirt is mostly in different shades of gray, but has a comic version of Wonder Woman on the front. She’s located right in the middle of the shirt, she’s basically the only colored part of my shirt. She has her red and gold colors that everybody is familiar with. My mom made the comment as soon as I looked down on my arms, “well, one hand is covering up her face and the other has her hoochie!” Thankfully whenever I move my arm over on the armrest you can actually see her face, which makes me feel better! I can’t do much about the arm because it’s too low!

Now my pants are a pair of leggings I found on accident, they weren’t located in the regular section. They were in the middle of the walk way between the little boys and shoe sections! Out of all the leggings there, I only grabbed one because we were worried that they didn’t wash well, it was too strange for them to be there so my mom and I were having a hard time taking them seriously! Anyways, they’re a nice solid blue, on the left sleeve there is the word “Fearless” in caps and I always want to wear them with my superhero shirts and I think this one works well with them!

The cats in the background are eating leftover french fries and in the last picture, that was my sister’s arm on the side! 

What do you think of this outfit? Yay or nay? Are you going to see Wonder Woman this weekend? 

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snowflake

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OOTD: Spring Dress!

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Howdy!

Today’s post is about what I wore to my sister’s bridal shower last weekend! As you can see, I wore a dress!

I wanted to get something nice to wear at Blondie’s bridal shower and for some odd reason I just wanted to wear a dress. I have one in my closet but I haven’t tried it on since 2015 so I was unsure if it was going to fit and I didn’t want to wait until the last minute to see, so I had mysteriously committed myself to wearing a dress! One day we were at Walmart and we were looking around and they had a small amount of casual dresses in the store, but we had found these three different colored lace-y dresses and I was kind of into them, but I was still second guessing myself.

As I’ve mentioned in the past I have a lot of insecurity issues with different areas, mainly with my stomach and arms. I’m not considered skinny around my stomach and waist, sometimes I get down about that because I know I can’t say it’s muscle like I do with my butt, so I have a hard time feeling beautiful in my skin. The one place that tends to really bother me the most are my arms. They’re just there and get in the way of my tops that have pretty designs in the front.

We were in the food department and I kept thinking about them. So I talked my mom into taking me back to where they were and she and I agreed on buying the black one although I had seriously considered the baby blue instead! It came with a nice light brown belt that I really liked! The dress reminds me of like Spanish inspired, because of the neckline and ruffles of the sleeves. I really like the lace-y texture of course! I wasn’t really into the pink throughout, but I am slowly coming around to the color in general now! It has some baby blue flowers in there too – I just really loved it!

One of our concerns was obviously the shoulders, I can never find anything that will actually stay up on my right shoulder. So my mom had the idea for placing a safety pin on the back to help it from falling down. I absolutely hate safety pins! They make me feel uneasy and I always feel like it’s going to undo and poke me, and I do not want to do that anywhere around my back. So she thought about tying the clear straps that you put on your hanger together and hoping that it would be enough to keep it up and surprisingly it worked and I was very happy about that!

I wasn’t going to mention this, but figured I probably should. Since I was going to be around a lot of people and ended up participating in the shower quite a bit, my mom put me in a pair of shorts. I mostly kept my feet somewhat leveled but it was something that I just felt I needed to do so I wasn’t worried on how much I moved around. I also wore my “M” necklace with it, because my other one wouldn’t undo for us and I would love to wear it again, not exactly sure if it would go with the dress itself but you know! You might see it in a coming up post as my dad fixed it for us! As for my hair, my mom had half of it in a small clip, she thought I looked very elegant! While my nana thought I looked like a little doll!

So what do you think of my outfit? Yay or nay? When was the last time you wore like a cute and fun dress?

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snowflake

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OOTD: Faux Blue Jeans!

Happy Monday!

Yesterday on Twitter I made the announcement that I wasn’t going to post this today because I wasn’t feeling good but then later on I realized that on Saturday I celebrated 6 years of blogging on here and I had no post for it… Even I’m a little disappointed with myself!

Last Friday, my mom and I took a trip to see my nana. I hadn’t been able to hang out with her like one-on-one since the end of April, so we’ve been needing some time to chitchat. It was a lovely visit with even better weather! So I was able to do another OOTD but since I’ve stopped publishing on the weekends, you’ve had to wait a bit to see my outfit! In my last one, I mentioned that I had another pair of capris to show off and earlier in the week I went back to Walmart and purchased two shirts this time!

I’ll go from top to bottom. I got another superhero shirt! It is gray with various different superheros on the front with the word “Marvel” in big, bold, white letters that you cannot see thanks to my arms! I think I just buy these hoping to have at least one X-Men on it, but I don’t think I got lucky here. Honestly, the only ones I recognize on the entire shirt is Iron Man and Thor. I was really struggling to figure them out, there was no asking my mom. Apparently she can’t tell between “green” and “yellow”! Oh, in case anybody’s counting, this is my third Marvel shirt!

Now about my pants! The day we found these, I was a bit dumbfounded because I’ve had leggings that looked like jeans before. They were tight and the pattern was made so it looked like they’ve been worn forever and you had torn it to pieces! The difference was it was easy to put on and remove which is great for any wheelchair user! Unfortunately, they did have one downfall, the material use was rough and I didn’t actually wear them very much!

These are completely and 100% different as they are smooth to the touch on both top and underneath! They sort of remind me of “basketball pants” as my mom and I called them back in the day! They are sleek and soft, which is awesome for my legs! They retain heat just like regular jeans! They look like jeans and that’s what seems to freak my mom and I out, like where were these when I was in middle school?! My only negative thought about it is they are not skinny on my calves but hopefully I’ll find some others that are snug around that area!

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What do you think of my outfit of the day? Yay or nay? What do you think of faux clothing garments, like jeans? Do you think they can become a thing?

snowflake

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OOTD: Bossy!

Hi 🙂

I’m back with another outfit of the day! I knew once spring decided to come around that my mom, nana and I would be able to go back to these posts again! I generally love working on them and showing off my style with all of you too!  I know I had mentioned in my previous OOTDs that I was going to start wearing more colorful outfits but you all should know about my love of black by now too! I don’t see the problem of wearing too much at one time!

This shirt is new, it was included into that fairly large shopping spree back in February, it is a regular graphic tee with “Not Bossy, Just Better” written on the front of it. When I saw it on the rack I couldn’t help myself, I had to get it. Something you may not know about me is that I have a strong personality, sometimes people confuse my attitude with being “bossy” but I feel like I am far from that. I just have strong beliefs and don’t like being told certain things, as a disabled woman seeking independence I don’t like when people assume and judge me. I think I can do the things you are able to do, but maybe even better and this is where people get carried away and automatically think I’m stuck up when I’m not. So this is probably my third shirt that I’ve worn that has a true statement about something I truly believe in some way!

This was also around $7 because it has a saying on the front of it. I’m sorry if you have trouble reading it through my hands, that’s the one negative about it, the font is fairly large and my hands take up most of the space on it.

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I feel like I’ve worn these pants in a blog post before, but I’m not for sure so I had my mom and nana take them just in case I was wrong!

These are actually pants, not leggings! I don’t have very many of them in my drawers mostly because they’re a little hard to find and fit through my thigh and butt! I’ve always loved these though because the design of the skulls (not even sorry!) have like a black and white sugar skull theme on them. The material is nice and soft, they’re definitely made of cotton because they’re so thick, considering it’s “spring” it sure as hell didn’t feel like it! I was secretly freezing when that picture was taken up top and these were the only part of my body that was nice and toasty. I’ve learned to smile through the cold and hope to God that the sun can warm me up a little, it didn’t happen but hey, we still accomplished our mission!

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Unfortunately, I purchases these a few years ago so I don’t remember where we got them nor how much they were, but I’m thinking we got them at Wal-Mart too! I rarely find any skull bottoms anywhere besides Hot Topic! It’s a “once in a blue moon” motion whenever I find something at Wal-Mart! Oh, and don’t even bother asking how many skull leggings this is because even I don’t know!

I also wanted to try out an old hairstyle I modeled as a kid, while in grade school I had really long hair and a month or so before I had my back surgeries we were forced to get it cut short because of the metal halo that would be placed around my head. This was over 14 years ago and this is the first time I’ve had my hair just as long as I did back then. After July, I am getting a hair cut–maybe not a pixie but it will be short again at the end of the summer! I’m semi happy but sad too!

So what do you think of this outfit? Yay or nay? Do you have a shirt that reflects your personality to a T? 

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snowflake

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