One thing that is equally important to a disabled person’s life is having unconditional love and support from their family and friends. I have always had a large group of people in my corner and as blessed as I am with all of this love, I also know that there are others like me who don’t have anybody there for them.
I have been very lucky to have loving parents that believed in me, even as a baby! They are the ones that stopped the doctors at Riley’s, when I was a few months old, to operate on me to make me look ‘normal’ when there was a small chance it wouldn’t help me. They just let me figure things out on my own. Even if that meant, I used my feet for everything and was a wheelchair bound for the rest of my life. I have never given my parents much credit to this decision because it was a risk not knowing how this little girl would be able to do things for herself. Thankfully, I did learn things on my own or with some help from other family members/physical therapists.
I wasn’t aware of how other young teens or adults with various disabilities lived without this kind of love, until I was a senior in high school.
I wish the emotions I was experiencing had sunk in as I feel like it would have helped me understand loads what everyone in my family was trying to relay to me about their worries of me living on a college campus. Now I get why they were so concerned and agree that I was not ready for that kind of commitment. However, when my mom started working at a nursing home that had residents with various levels of mental disabilities, and the stories of some of them being left at the door with trash bags full of clothes and other stuff, really broke my heart!
I do understand that some people cannot handle some traits that certain people produce but you don’t give up on your family like that. A friend of mine has a daughter who is autistic. I have never met her, but have been around other children with autism in the past. So, I am familiar with their quirks and I give kudos to the parents out there dealing with a child like this, but I’ve heard of autistic kids being left behind or being killed because the families just cannot deal with them anymore. Those are always the worst to see online, but when you feel like you’re at your wits end, what is really your next step?
So, I have a questions to my fellow disabled readers out there, did you have a good support behind you growing up? Or were you basically left to be your own hero? If you said “yes” to that, how do begin to trust others that they’re not going to abandon you at the end?
I think one of the most popular subjects I tend to talk about, whether it’s online or out in public, is my Scoliosis and time I spent in the hospital to receive my rods in my back to help fix that problem. Honestly, I would like to stop doing it, because I really do speak up about it a lot! So, I’m hoping that this post will mark the end of it for a while.
I was a newly eleventh year old when I finally had my third and last surgery at Shriner’s Hospital for Children in St. Louis, MO. The surgery actually took place at the Children’s Hospital since it was a major operation. My family and I were already familiar with it, because I had my second surgery there too! I’ve never been too sure about how long I was under but I want to say about eight hours. I’m sure some of my family members will comment below the correct time range if I’m wrong.
I spent about three weeks recovering from the “right side” surgery, which surprised the crap out of my doctor, so they made a schedule to get the final surgery done within a week later. It wasn’t that long of a gap between these two, but neither was the timeline to go home either. I feel like I was there for another week and a half because we came home just before Thanksgiving. For the operation itself, it consisted of stretching out my body, inserting the crushed rib they took out during the previous surgery, placing it into small spaces where the cartilage in the spine is suppose to be, afterwards putting the titanium rods in place; plus the metal pins at my hips. The last thing they did besides sew me back up was unscrew the metal halo I had attached to my skull for almost four months. Yes, we asked if we could keep it, but were told various stories about why that wouldn’t be a good idea. .
Now after 17 years, it is still pretty weird to see these really bright objects pop up on recent X-Rays. Even though I’ve only had one done that wasn’t for a check-up at Shriner’s, was even more surreal because for the whole of my childhood that’s where I went to get a look at the inside of my body, besides the time I got an MRI at Children’s Hospital, just before I was to have the second surgery! Other than that, I really forget that I have them. I mean, don’t get me wrong, I can definitely sense when the weather is changing drastically because of my rods and I’m certainly not a fan of going through a metal scanner and hearing it go off like crazy and it’s not all because of the wheelchair!
As time rolls by, the less sensitive my back has become to being touched. I use to try to move away from my mom’s hands whenever she gives me a shower, because it was so painful internally, but I’m happy to say I love being scrubbed down because it acts like a mini back rub too! Of course, I still have days where I do not like to be touched back there and it’s usually because of something that I’ve done, like slept in a different way or popped it, and yes, I try not to do that on a daily basis!
Here’s an interesting question for you, do you have any titanium plates or rods in your body? Also, do you get sick and tired of talking about how you got it like me?
Last Friday was my birthday. If you didn’t know I had a blog post go up that day, talking about things that make me happy. So, if you haven’t seen that yet, maybe after this post you will go visit it and take a look at what I included inside?
For today though, it will be one of my favorite type of posts to create and that is an outfit of the day! It has been so long since I’ve actually done an OOTD it’s actually a first for 2019, which sounds so weird considering where we are on the yearly calendar.
There was really only one thing that I truly wanted for my birthday and there’s a special reason behind it too.
Although I have strong opinions on various things in the disability community, I have never belong to any of the groups. I follow my own path as everyone should, but for once I found a person that knew I was ready to accept my life for what it is, a proud disable woman. Alex Dacy is the creator of the company Wheelchair Rapunzel & Co. Even though I have only been following her for a short time, I love the message she’s trying to share with the world. We are beautiful, our bodies are amazing and gorgeous! We should be proud of our different shapes and sizes.
Alex recently updated her logo for her company a couple of months ago into this watercolor painted person in a wheelchair sign with a giant sunflower blinded into it. I would be lying if I Didn’t mention that sunflowers are my favorite, but it wasn’t the driving force to make me ask for it, when I really loved the combination of both the sunflower and wheelchair were on it, plus knowing it was time for me show off how beautiful I am.
Now it’s time to talk about the actual outfit.
On the Wheelchair Rapunzel’s website, you can get the same design I have but in the colors gray or pink. Since I’m not really a pink girl, I went with the gray instead. Honestly, my mom and I have found some common ground in my closet since everything that fits now is in that exact color! Where she use to complain about how much black I had in my life, has turned to gray! Anyways, this is a much lighter shade than anything I have so that was afferent for us.
As you can see the logo is located right in the middle of my arms. Thankfully it is large enough where they don’t cover a lot of it, so you can still the yellow of the sunflower and certain spots of the wheelchair too. For my legs, my mom was going to put me in my basketball pants, that are in the same color of the shirt but has a thick white strip going down my waist to my feet. These are one of two favorite pants lately, but I thought another pair I had would be a better fit. I hoped she wasn’t washing it or this wouldn’t work out well for me, but it wasn’t. I wore a pair of leggings that are a darker gray with what my mom described as “cobblestones” pattern throughout, which I could agree with because I have been calling them “floral” when they don’t look like any flowers to us!
Lastly, I want to say that as much I don’t enjoy taking pictures of my outfit indoors, it was extremely cold outside. When I got up that morning, I had a chance to see my kitties on the back patio doors, the ground had frost on it! It had snowed on Halloween too! I saw so many people say that “well, it’s snowing! Can I put up my Christmas tree now?”. I was just happy that it was sunny as crap on my birthday.
When my parents came in to sing to me “happy birthday” although my dad was telling himself instead, he does this with pretty much all of us! My mom gave me two packages of chocolate candy: a large bar of Hershey’s dark chocolate and a jumbo pack of Reese’s. However, my dad stayed true to tradition and brought me some nice flowers, and yes, there were three sunflowers! However, since I had a vase of sunflowers and daisies from the other day when my mom went to the store, these went into the kitchen because we are running out of places to put them in! However, we used as a prop for the pictures and I thought they were a great addition to the piece. For once everything turned out right that we may need to do this again!
Before I go, I think you should look into Alex’s story and purchase any of the shirts or anything else that she has on her site. Tell her Meghan sent you! Okay, I have to go now! Hope you are enjoying your Wednesday!
When it comes to society, words can be popular among the different generations. In the 1960-70’s, the thing was “groovy” at least, I think it was! I’m basing this off what I saw on Scooby-Doo! Currently the word that everybody uses is “bougie” which I still haven’t learned how to use or figured out what it even means! This isn’t the first time this has happened so don’t feel so bad for me.
Usually the “in” words are innocent like this, but some are not. What everybody doesn’t understand is that there is a medical term that is running around causing havoc among the disability community. Something tells me that may already know what it is, but for those who don’t, it the “r” word. Retard in all forms.
It is sad reality when a word like this has the power to degrade so many people at one time without anyone’s knowledge. This is one of the issues of today’s society is that it’s become so popular that these young kids probably don’t even know what it actually means, much less care about it anyways! The adults are even worse, because sometimes it’s like a cuss word they say on a daily basis and can’t stop themselves from saying it. However, these reasons are even good excuses for anyone that has some sort of disability.
I wasn’t too familiar of the meaning or the history of it when I first started to notice it around. I’m not for sure how I found out about it, that memory has been stripped away, but I remember the impact was big, because I am a huge advocate to erase it from the public.
For a time, both my mom and sister said the word a lot. My mom is a nurse, so it was used to describe a few of her patients, whereas my sister was a teenager and it would just fly out of her mouth left and right. The fact that I was able to be enough inspiration (there’s another word I hate!) to get them to stop using it for good. My sister has even been telling other people around the two of us to not say it either and sometimes we get good response, so that’s a positive sign!
Unfortunately, I don’t think it’ll ever go away completely. It’ll still show up on films and the medical world will probably still continue to use it, but hopefully with this post maybe you’ll understand that even though something is in that you have to follow suit. You don’t. There are tons of others that can take its place. You can be popular in another crowd, and even respect people like me with not speaking about it again. Do you think you can do this?
I don’t know about you, but I still love birthdays, especially my own. As much as I really hate being the center the attention for anything, I can make an exception for this occasion. One day of the year for me is a great thing, as long as I don’t let it go to my head too much!
So, for this post I thought I would talk about the things that make me happy. However, I feel I bit off more than I can chew because figuring 28 things at once is a lot when you only have two days to basically get this blog post finished! Originally, I was going to make this longer with pictures for certain things but I figured a link of a post that goes along with it will work even better!
Here are 28 things that make me very happy!
I love spending time with my family! Everybody thinks they’re a comedian and the sole purpose in life is to make you laugh to the point where you have tears coming out of your tears and you feel like you could pee in your pants at the same time, The funny part is that my nephew doesn’t even know he is one yet!
Children are a real weakness for me, but Nolan has become my little buddy. He has a gentle soul and love in his eyes, but has a devilish side too!
Everybody already knows this but I am really into baby names! I have so many notebooks–both digital and coiled wire with paper–of hundreds of names from different countries and spellings! If you’re in need of suggestions for any reason, just let me know!
Something else you might know is that I enjoy blogging a lot. I was never successful at keeping a diary or journal when I was younger because I thought somebody was going to read it… Yeah, this doesn’t make sense to me either!
I love comedy. but I am very strict with it. I really don’t get this generation’s humor. I am just starting to enjoy puns after not understanding it for years! I will talk about my favorite male comedians soon, but you can go ahead and read my top female comediennes though!
Movies are a big thing to me. I like all kinds of different genres, but after some time of basically denying myself of watching romantic films, I am getting back into the groove. My list has increased in the past couple of years.
You know how much I love music! I am actually using the shuffle on Spotify, even though there’s no need for it because I enjoy almost every sort of genre out there. I have been really reliving my childhood days with the tunes I loved listening to back then. So, lately there’s been tons of rap music ranging from the early 1990’s to now!
As much as I hate overthinking, it does have its good points like being able to spot things that most people wouldn’t; the sort of connect the dots concept! This can translate to many different things for me, between the lines of family trees, letters of my family names, and music. I always find that watching Xenia: Warrior Princess and Evanescence’s first album “Fallen” were able to be my starting points into my love of both cinematic and instrumental music. I put them in separate parts because I like the pop-rock cinematic releases like what Tommee Profitt, Hidden Citizens, and Unsecret do, but of course I love Hans Zimmer and James Horner as sometimes I just want something with no words to distract me.
On Tuesday, it was National Cat day so you know I have to squeeze a little spot for our kitties! Even though we have nine cats, I only claim Stormy, Felix and Tavis as my babies. I love them all, but these guys really show me that they love me by staying around if the others are ignoring me!
A second thing that makes me happy about our cats is that I love when they make biscuits and purr against you. It is one thing I miss the most about not being able to sit on the porch with them, because they like to either lay out beside me or right in between my legs and drift off to sleep while I take numerous pictures of them!
Animals in general make me extremely happy! I think watching the Animal Vet shows like Dr. K’s Exotic Animal ER and Dr. Oakley Yukon Vet have helped me see that my fear in snakes and even some spiders is dumb. My sister was interested in sharks when she was younger and she saw through the stereotype of the Great Whites, she even made me see them in a different way! Although I on’t see this working on all creatures, more importantly, did you see I said “some” spiders above? There is no way in hell that I will be okay with all of insects but I can never say never though!
There are two things that I enjoy watching at Thanksgiving, one is Gone With The Wind and the other is Westminster dog Show. My parents and I have become a little obsessed with it in the past three years! We all enjoy seeing if our favorite breeds will win their group or the whole thing.
If you were curious which breeds were my favorites, they are: Pit Bulls, Siberian Huskies, Cocker Spaniel, King Charles’ Cavalier Spaniel, and Bernese Mountain.
I am hoping this is the final “animal” section but you never know! Birds actually make very happy. I think they’re all amazing, but I have always been into hawks and Eagles the most. When I was younger, I use to think that parrots and other tropical raptors were annoying, even though they were beautiful. Thankfully, I have changed my outlook on them. Besides watching funny cat videos on YouTube, my second favorite is bird videos!
Let’s talk about something else. Oh, it must be the girly girl in me but I love having flowers in my room. Personally, I have always enjoyed having them but I would be happy with fake ones than real. In the past few months, my mom and I have been displaying lots of roses, sunflowers and daisies. Hopefully by the time spring comes around, I’ll talk her into getting me some cherry blossoms and tulips because those are I love them too! My flower aesthetic board is below for you to check out afterwards!
Despite not liking drawing anymore, I really love painting! Whenever I paint, I feel like I can relax and go at my own pace. I still have the perfectionist mentality sometimes but I am not as bad as I use to be, so I’ll take that!
One thing I think people will probably freak out about, is my love of game shows! I definitely share it among my parents, but I feel like I took it to a whole nother level though because right now I have close to 20 episodes of Jeopardy on the “FUN GAMES” folder that I created several weeks ago! I have thought about talking about this on a future post, would you be interested in it?
Speaking of games, I am watching basketball again. The first Butler game to be televised will be on next Wednesday, which I am so excited but when I saw which NBA team was playing at almost the same time, I felt a bit crushed! This is my third year of watching professional basketball and I have cracked down on the amount of teams this season. I followed Ingram, Ball, and Hart to the New Orleans Pelicans, but I kept the Houston Rockets (even though I’m still unsure of the Harden/Westbrook tag team), Los Angeles Lakers, Philadelphia 76ers, Milwaukee Bucks and Boston Celtics.
This might scare you a little, but stuffed animals make me happy! I have a stack of “doggies” as Nolan likes to call them, by my window and I still want to get some shelves in my room so I can proud displaying them but more importantly get them out of the boxes in the closet!
On the day I wrote this post, it was the day before Halloween, so I think it’s only right to discuss my love of chocolate! I wouldn’t say I am a chocoholic but I can get some very strong cravings! Are you taking full advantage of the discounted candy at the stores? If you are curious about what kind I enjoy, click here.
I feel like I should have put this when I talked about music, but dancing is a favorite of mine! I must have been a dancer in my past life because I can definitely get down when I want to. After Blondie’s wedding, my dad and I could totally do it again if it wasn’t for our hurting bodies! 😦
There is something that might sound a bit strange coming from me, but I have been loving HGTV like crazy! It started after the announcement was made about the Brady Bunch house transformation. The date I was originally told that special series was to air was wrong but I got interested with Property Brothers: Forever Home and Christina On The Coast at first, but now I have switched to Good Bones as my main favorite! I actually use to make fun of my parents watching countless episodes of Fixer Upper so the fact that I have like four shows that I watch is karma smacking me in the face really hard!
Something that goes along with this is that I love making this, any idea that comes to me is very clear in my head, my only issue is how do I explain it to my parents, especially my dad because he is the one that apparently gave me this trait but the majority of the stuff I want to accomplish are all disability related. I am still trying to figure out how I can get an semi-large office desk either in my room or probably in Nolan’s playroom since he doesn’t really use it as much.
I have grown to appreciate organization and tidiness I guess as I’ve gotten older, but being able to decorate makes me extremely happy because it gets my creative juices flowing, and the more I plan and set things out, I can also turn those things into future blog posts. So everything kind of works together like that sometimes.
Photography is another love, but I think what makes me unique is that I enjoy coming up the set ups for my blog materials than anything else! I have heard of other bloggers and their frustrations over blog photography, you know I can agree with them on some things but for the most part whenever I am in the zone, I am usually very calm with myself. I think this came with the fact that I have to be in this trance so I can keep myself balanced in my wheelchair, because any frustrations I act out, could lead to disaster! I could fall out of my chair because I’m not focusing on my lower half of my body or worse I can get stuck in a weird position and would need help fixing myself. It might seem like a small thing, but I don’t want either one of my parents watching over me or taking the pictures for me so I don’t end up like that again!
Besides my foot writing and disability in general, there is a weird quirk that makes me happy and that is my love of leggings! I have become known for all of my different colors and patterns! I still love my skulls and there is a pair that is my favorite but unfortunately like everything in my closet they’re starting to be tight around my waist which SUCKS because I’ve had them since probably 2010 and I am not ready to part with them! It will seriously be a sad, sad day when it happens! I’m not promising I won’t cry but you never know!
Since we’re talking about fashion, I didn’t think I would say getting clothes for birthdays or Christmas would be something I would look forward to, but I do! The reason for it is, thanks to the fact of doing those outfit of the day (OOTD) posts on here, really changed my outlook on how I see myself. What was suppose to find a way to fall in love with my arms became something bigger for me, and now I actually look forward to dressing up–whether it’s casual or night out, I know I feel comfortable with my body. If you would like to read more about my journey of doing OOTD posts, you can click here.
I have talked about traits that I was given by my dad but I feel like I should mention one I got from my momma. She has ALWAYS loved books! When I was younger, she would hang out in the living room with her feet up while reading silently to herself with the TV blaring in the same room. This was never a favorite thing of mine when I was little, but at the age of 14, I really became interested in it for the first time and after a long break, I am back to enjoying it again! I like both physical and ebooks, but I have realized I read a lot faster because I’m not too worried about the pages flipping on me or not being able to lift it because it’s so heavy! So for my final thing that makes me happy is finding a good book to get lost in, and the one I’ve been reading lately is Wicked Beat by Olivia Cunning! You can follow me my progress and check out my other books on my Goodreads profile at the tab bar on the right!
Whew! We are done! So, I actually did it in the way I said I wasn’t going to, because I had no time! Technically, this wasn’t too bad to come up with and I think that was what freaked me out in a way. I love doing lists, but this was a long one, plus I included lots of information because I can never go the easy route apparently! I hope you enjoyed the post! Thank you for the birthday wishes too!
Do you still enjoy your birthday? If not, when did it change for you? Can you name all of the things that make you happy with whatever you’re age is? Here’s some advice before you answer, I think it’s all mind over matter!