A-Z Disability Challenge | H : Asking For Help

Yes, I am going to try to get back to my A-Z Disability Challenge! I have been kicking myself for not doing it for so long but I think I am finally ready to start on it again. If you have missed any of the other letters, I have them at the bottom of this post so you can check them out afterwards.

This week I will be talking about the notion of asking for help. Although it is a fairly popular topic of other disability bloggers and YouTubers out there, I think it’s a good idea to have many pieces out there for people of different generations in multiple point of views to help people learn more about what they should do if they ever found themselves in a situation where they want to help, but are not sure on what to say or do at the time.

I will be firstly talking about why a disabled person will probably never ask for help. It’s honestly a mixture of things, I think the most important reason is because we don’t want to look weak. We actually love doing things for ourselves. Every ounce of independence we get, we relish in it for as long as possible. However, the day it runs out, it is a heartbreaking day. For example, after I had my back surgeries in 2002, I wasn’t able to jump back into my regular physical therapy, we did a lot of moving around and my body wasn’t used to all of that yet. Our main objective for me to learn consisted of how to transfer from wheelchair to couch, chairs and toilet. I finally re-learned how to transfer again two years after I recovered. Unfortunately I never learned how to get on my bed by myself, which was probably the biggest blow out of the whole thing. I can scoot down off, but I do not have the strength to pull myself back up anymore.

If you were raised like me, you basically had full rein on what you could do, and it made you feel “normal” for once. We love to challenge ourselves in our daily lives. and being able to learn something new is the biggest drug we can seek out. Unfortunately, some of these challenges can be more complicated with some of our limited movements. So, we can sometimes be slower than not only we would like, but for other people too. I’ve realized in the recent years is that our families are usually the ones that have the lowest points of patience of the bunch for some odd reason! They don’t like to see us struggling, especially our fathers, so they want to “help” us. What they don’t know is that they’re doing more harm, as it is better for us to learn how to complete a task than leaving it for someone else.

I do understand the reason why people feel like they should help us. Even though you should always ask that person if you can lend a hand, we will try our hardest to make sure to let you know we don’t need you. Something you may not know is that we have a huge sense of pride within ourselves. Giving up on anything that lets us be like everybody else is the worst thing possible ever. So, when we can’t finish what we started, we will reluctantly ask for help. We will not be very happy with ourselves, but at that time it will be something that needed to happen.

I have always had a difficult time accepting help. One thing that I despise is when someone close to me will automatically do something for me, when they know I can clearly do it. I love trying to find new things to do with my feet, nothing really makes more happy in life than discovering new ways to do ordinary tasks around the house or out in public, but it does make people nervous, they think I’m going to get hurt, so they try to dodge that obstacle as fast as they can and yes, it is very annoying but you have to let it go and hope for the next time. You have to realize your patience is not the same as others so in a way, I think both sides need to keep that in mind when it comes to these things. It also ultimately depends on them on if they can learn to grow to trust you with the various tasks you know or learn later in life..

Here are previous letters and their links if you want to check them out now!

Arthrogryposis Multiplex Congenita | Building Trust | Be Truthful To Your Children | Dear Disability Community | Events | Treat Your Friends The Way You’d Want To Be Treated | Long Term Goals

Happy Birthday Nolan!

Hello!

So today is a very exciting day as it is my nephew Nolan’s first birthday! As far as I know, we are not seeing him today but this weekend we will be together, with both families, so that should be both chaotic and fun at the same time!

I really can’t believe it’s been a year already, I mean, it just doesn’t seem right. The memories of us being at the hospital past 1am waiting for him to make his debut is still very fresh in my mind. The day (and night) was a long one! Blondie was a real trooper though, she was definitely the one who was the most uncomfortable especially before she received the epidural, that’s for sure! I do remember she was absolutely terrified to have that done, which I would be too, but I think for her I know she didn’t like the fact that Brandon wasn’t allowed to stay in the room with her. Another thing I know she absolutely hated was how many times they tried to stuck her for the IV. Despite her love of tattoos and piercings, she really doesn’t like needles that much! So, this was not something she looked forward to by any means.

When he decided that he was ready to come out officially, my dad and I were forced out of the room. I was okay with this, because honestly somebody needed to stay with him as he was wreck for most of the night! He does not like to see us in any sort of pain, so his youngest daughter going through labor almost put him over the edge quite a few times! As we were making our way out, it finally came to me that once we leave the room, she wouldn’t just be my sister, she’ll be a mommy to a little human. It was such a profound moment for me, because I kept thinking in my head of the times we had together, growing up, and even though I quickly accepted her moving out of the house and eventually marriage to Brandon; she was literally giving birth to her son and my nephew, I realized how different things would be but I was completely at peace with it.

Once we were told he was here, we rushed to the door before telling to stay out a little longer, which was a little cruel because we could hear him just crying as loud as his little lungs would allow him. After like 20 minutes, we were told to come in, but the air suddenly felt different. Of course it did, a baby was just born! I think we were there another for 20 minutes after the birth before going home, but we were back the next day to take more pictures and hold the little guy.

Fast forward now 12 months, and he is a thriving little dude!

Nolan and I have formed a nice relationship. My nickname for him is “cutie pie” and when he was a tiny baby, I would literally sing those words to calm him into dreamland while he was on my bed . Sometimes it worked, while others didn’t, but that was okay! He still likes it when I call him that, everytime we FaceTime each other, he always breaks out a smile to me. He is obsessed with me! He likes to do things with his feet, and I really adore his hugs! He’ll just wrap his arms around my neck and just stay there a few seconds which makes me so happy considering I wasn’t able to hold him as a baby like everybody else, so this makes up for it entirely!

My dad has already told me that he sees us getting into a lot of trouble later in life. I can agree with that in some firm. However, for the most part I am pretty strict with him, especially when it comes to my wheelchair–which is another thing he loves!–I don’t want him to get hurt by tilting over his walker or “car-car” so I have to basically grow another spine and tell him “no” and that’s definitely not one of his favorite words, everytime he gets told that he’ll instantly put his hands over his ears, and make his pitiful face at the same time, so you instantly feel guilty afterwards.

Nolan is a smart cookie though. When he was about six months old he started pointing at things, that one index finger gets a good workout considering the amount of things he tries to touch and mess with, and through this we figured out he really loves the color red a lot. My seat belt has the word “PRESS” in that color and he knows if you push it, something happens. So, he already has that curious mind to discover new things. He loves a number of other stuff besides of getting into things he shouldn’t, like fruit, animals, books, and water.

When his parents first started him on solid foods, he wasn’t really into a lot of different fruit. However, he really loves bananas, blueberries and strawberries. We recently figured that whenever he says “nana” it isn’t for my mom, which she is called “Mimi,” he might actually be asking for bananas! It took us a few months but whenever we talk them amongst ourselves, he starts saying that a lot!

As far as animals go, when he was first born, I found this cute book that was about baby animals and it included spots of various textures, like faux fur on the bear, lamb, and lion cub. This is where we saw that pointer finger coming out because he loved feeling them. Since his household is basically a zoo, Chipper and the cats have grown to love their non-fur brother. Unfortunately, our dog ChiChi is still not a fan of him. She still growls and runs away when he gets too close to her on all surfaces! There are a couple of times where he has had a chance to pet her on accident when she is close to any of us, but it is always a brief moment between the two of them!

Lastly, he loves water! After he was first born, like all babies, they’re very unsure about taking a bath. He’s never enjoyed the fact that he has to take off his clothes and put on a new outfit afterwards, because he loves being a “nakkey-baby” so much, but getting into a bath is literally his favorite thing ever. Blondie and Brandon are still not very confident about letting him in a tub by himself, so someone is usually in there too. He loves to make waves and splash like crazy! He even enjoys laying flat in the water, and recently he got to go swimming in a pool and he thoroughly enjoyed that too! My sister was the same way, she loves being in the water for a couple of hours swimming and talking with friends.

This first year has flown by, but I have enjoyed seeing the transformation he’s made so far. I absolutely love him, he makes me excited for the future. He has a brought back a part of myself that I felt was fading away, so I owe him a lot for giving me my hope back. I also hope as he gets older he’ll actually want to watch basketball games, because we have yet to do that, blame Mimi because I frequently hear “he doesn’t want to watch that” on too many things I try to play on the TV. So far to her, he doesn’t like basketball, Ed Sheeran or Celtic Woman. I’m just trying to expand his interests in the best way I know how, and she is ruining our fun in that department! I really hope he doesn’t lose his curiosity and continues to be a very happy little guy!

Baby’s First Easter!

Howdy!

It has been a really long time since I’ve blogged about a family gathering or in this case, a celebration. I keep wanting to kick myself whenever we babysit Nolan because I have good opportunities to snap a few pictures of whatever he’s doing, so the night before our Easter festivities, I had my mom charge up my camera because it’s been a couple of months since I’ve last used it and I felt like this was a good idea because I’ve been in the middle of something and all of a sudden my camera goes black on me. This way, I knew I would be good for two hours or so, depending on what I think was worthy because that in itself is a totally different story. Since my nephew has become very mobile either when he is in his “car-car” or army crawling on the couch or floor, the booger is fast. and he changes his reactions quickly that I needed a lot of juice in my camera so I wouldn’t have to depend on anyone else for help if it dies on me.

Nolan is at the age where not only does he put everything in his mouth, but he is very aware of things. When it comes to holidays though, I think we all kept going back and forth whether he would be interested in going on a makeshift Easter egg hunt. He loves colors, mostly red, so we figured he’d enjoy that part but there was the fact that they’re somewhat slippery and they can split apart. These are two things that he hasn’t experimented with a lot lately, so there was a slim chance that he could ignore my mom and I’s best efforts to make the living room into a sea of shiny colors!

When they first arrived we basically fell in love with his little outfit and gushed on him about it. Blondie and Brandon looked very nice too, but they didn’t get as much attention as him, which I think they were pretty fine with anyways! Personally, I thought he looked like a little farmer with his overalls, and since the redness in his hair is starting to push through more often, he looked like an Irish farmer! After obsessing over how cute everyone looked, we took some family pictures and surprisingly Nolan actually minded really well. Once he noticed the eggs all around though, he began to lose interest with family pictures pretty quick, but we managed to get everyone together before we released him to check them out.

One year, Blondie and I had to settle for an inside Easter egg hunt and we even did one for Halloween too (only because it rained for four days straight!). We weren’t happy about it at first, but I actually enjoyed it because I was allowed to get on the floor and scoot around to the candy. When we officially decided on this idea I was really pumped to bring it back for him. It’s in a controlled environment and leaves clothes very clean afterwards, or it should. I think Nolan enjoyed himself, that is until somebody tried to take away one egg so he could look for others. He didn’t really like that part, but he was obsessed with the eggs though! He played with them all day long.

Nolan also received a couple of baskets from the Easter Bunny as well! The one that came to his house got him a backpack instead of a basket, because the next day he was to start going to the babysitters and it would be an easy place he could put his toys in, and honestly it’s a freaking adorable idea! The backpack came with a few various sizes of Hot Wheels cars that not only can he enjoy but his daddy and his Aunt Meggie can too! The Easter Bunny came to our house too, and asked his MiMi (my mom) to decorate his basket. Next year he might want to consider asking me instead and you’ll understand in a minute what I mean. He got a very cute soft lamb that says the Jesus’s prayer for children. He was also supposed to have a sippy cup but Pa-Pa apparently couldn’t wait and let him try it out a week in advance. He’s known to do this, I was supposed to receive my first cell phone on my 16th birthday but he couldn’t wait anymore and gave them to us two days prior! He’s a soft-y when he wants to be!

After that, we had lunch, the adults had lasagna but Nolan had half an avocado and almost a whole banana! A couple of weeks ago, he decided that he was done with baby food so now he only drinks formula and people food. My dad has never been happier!

I think he had a lot of fun! I know we all did that’s for sure! Nolan has a lot of energy, and I love playing with him. I swear he gives out that energy everytime he comes over. Everything is innocent in his eyes, he’s not scared of anything, he’s not jaded as we are and I think this is a time to really cherish because as he gets older he’ll lose all of that and fear most things and can be influenced in other directions. We’ll get to all of that in a later  date though, right now let’s focus on these moments.

How was your Easter weekend? What were your traditions growing up? Do you have an alternatives when it comes to a rained out egg hunt? Let me know!

Life Lately | Hello Spring!

Howdy!

Since this is the last full week of April, I thought it was only right to blog about life.

Last week I mentioned that it’s been a whole month since I had blogged at all, and I don’t really know why I decided to do take such a long break but it happened. This year I manged to come up with three separate series, two of them are on here and the other on my blog’s Facebook page. I did a lot of work to get everything organized that I think I started to expect a lot of myself that the pressure mounted so much that I began to feel overwhelmed by everything, but once I stopped blogging for a couple of days, I just all of a sudden felt better about things and I didn’t look back.

I’d like to say I got a lot of other things done while I was on my hiatus, but I didn’t. I think the only real thing I worked on the whole time was my “name pairings” Pinterest board! I didn’t take advantage of the time off to read or anything so that’s one thing that makes me angry, because that would have been a perfect hobby to do! I didn’t even watch that very many movies or TV shows either. I was pretty much consumed by Pinterest! It’s so sad to say out loud and of course read it on here too!

One thing that I’ve been really enjoying lately is our weather. Well, technically we had a few strange days where it was producing late spring weather, where the temperatures were like in the 60-70’s and unfortunately, our new house does not have an air conditioner yet. So, for a large number of days we had to rely on opening our windows and leaving our fans on all day long just to cool down. For 4 days alone, my room’s temperature was around 78-80 degrees! At night, it was miserable because when I have my fan pointed one way, but if I wanted to lay on the other side I was hot as hell! I actually spent one day completely in a short sleeve shirt with a pair of very tight shorts. On the day I wrote this post, the temperature had calmed down so much that it was 39 degrees outside! It was also very comfortable in my room too!

A feature about our house that I am starting to really enjoy is I get to see the morning sun. I’m such a nature girl at heart, so the morning sun makes me extremely happy! Now there is one bad thing about my room. Since it’s placed so far back, I am around a lot of trees so whenever it storms, I am in a constant state of paranoia because we have some very tall trees in our backyard and we have had some limbs crash down in various places in the past. One large branch was responsible for tearing a hole in our trampoline! So, being surrounded by trees has its bad notes too.

I have been spending a lot of my time hanging out with my nephew Nolan. He’s grown so much since my last update. I have thought about creating another one, but it’ll be his birthday in about two months so I have decided to hold off until then, but I doesn’t mean I can’t share anything with you though.

Do you remember when he was like three or four months old and he was obsessed with my hands? Well, now he’s starting to fall in love with my feet! When he was around two months and he used to sit in this seat, and he would watch me get a drink and put on my blanket – I literally told him once that I would treat him how I do that. At seven months old, the little goofball learned how to put on his own blanket with his feet! He’s such a smart cookie. He loves grabbing things with his feet, and I’m surprised with myself because I figured I would be offended by the fact he was using his feet to do stuff, but I’m not. I’m just proud to see him paying that much attention to what I do because I think it’s just part of my daily life, I don’t like to think of it as a special thing, but he’s made me think about it differently now.

Whenever he was really little though, I was often upset that I wasn’t able to hold my cutie pie (my nickname for him!) the only way I was allowed to be up close with him was when mom or Blondie would bring him into my room, to take a nap on my bed. We would wrap up in fleece blankets and while he got to sleep next to me, I was making mental images of my little buddy. Now he’s somewhat mobile, since he can army crawl around I haven’t had that one-on-one time with him. Well, he recently exchanged that with giving Auntie Meggie many, many hugs! Yes, he is a big hugger! I love it. In a way, I think that makes up for the fact that I couldn’t physically hold him as a itty-bitty baby too.

Well I think I’m done for now. What is your favorite thing about spring? What is your favorite activity out of your normal routine that you like to do?

VISIT MY “NAME PAIRINGS” BOARD ON PINTEREST!

Howdy!

It’s been a while! I have not blogged in a month. Well, technically, if I had held off for another week, it really would have been for a month. The last blog post that went up was my annual post of my papaw’s death and the last post I wrote was the one that’s coming tomorrow! I’m hoping to do another “Life Lately” post next week but we’ll see what happens.

This post is about a project I’ve somehow created while I was on hiatus. You all should know by now how much I love baby names. I’ve talked about my favorite styles on here before, but at the end of March I was looking through Pinterest at various boards of other people who make those adorable wood name signs and as I would continue to pin and scroll through the many, many names I kind of found myself somewhat bored with my limited choices so one night I thought, “well I can’t find what I want, I might as well create them!” I have to add I’m not doing wood signs like them, I’m purely using my Paint software on my laptop to make things easier on myself. What I thought would be a cute little board of my favorite name pairings turned into a board full of 400+ names in a matter of a few weeks!

Originally I made the board of names I have always loved and have in my phone’s notes. After that, I found others on a baby names Facebook group I recently joined and anything I enjoy in the local newspaper, on Nameberry’s birth announcements, etc. Finally, after all of those inspirations, I would even literally come up with in the middle of the night, and yes, it happens a lot! I also went back and forth about creating little mini boards for the different sexes, I even have a board of both unisex and unique styles too! Ultimately it just kind of got out of control to the point now my whole lower half of my body hurts after about an hour or so!

Here are some of my recent uploads to the board.

Click here to visit the official board of baby names!

I myself have a wide array of styles, I always tend to stay in between classical and quirky ones. Since doing this, I’ve also realized that I have a LOT of constantly used names, such as “Catherine,” “Rose,” “Alexandra,” and “David.” I tend to overuse several of my family’s names as well. I mainly do that to see what all could fit with each name. It’s one of the most frustrating thing about older names, sometimes you just get stuck and began to experiment with all sort of combinations.

Unfortunately, I don’t really pay that much attention to meanings. It would just depend on the name itself because I have looked up some of them in the past so I have a few stored up in my brain. If you’re interested in a name and have issues what kind of middle name(s) could fit with your chosen favorite, you can always talk to me on my blog’s Facebook page. Send me a message to my inbox and we’ll figure it out together! You could also scroll through the many others in the boards too, and see if you like anything in there too!

What is your favorite of the 6 names posted above? If you’ve visited the Pinterest board already, do you like any in the mini sections? If you want, you could send me requests too!

Dear Papaw III

Dear Papaw,

Tomorrow marks three years you’ve been gone. It may have been years, but it honestly still feels like yesterday. The whole week before and the days that came after play on a loop in my head. Originally, I had a totally different way about how I wanted this letter to go, but I’ve never wanted these to be too snappy. You wouldn’t have liked that anyways. I miss you a lot, even if some people don’t think I do. I think of you whenever I watch basketball, and I often wonder what you’d think of my knowledge about it and the four professional teams I watch on a daily basis. I think you’d be like dad and hate on the Lakers because of LeBron. I don’t blame you. I don’t care for him being on the team either. I wonder if you’d like the Rockets though since they’re the ones I seem to watch and root for the most of course! I understand why you didn’t like it because of how many attempts a player will take to shoot the ball and the whole scoring process, I’m still not understanding that part yet, but I’m slowly getting there.

On the day I wrote this letter, I went looking for a picture for the banner. I was going to attempt to find one of “Alex” with your old Butler shirt but then I found an album that nana made for us in the family to share memories and old photos, and I found one dedicated to you. I had array of pictures to choose from, but once I saw this one, I knew I had to use it. You’re wearing a Butler shirt and if you’ve been watching them from heaven, you know they’re in a desperate need of a miracle, getting through the Big East tournament and March Madness, which will all probably be over with by the time this post goes out, but you know!

I always thought it was funny how Rick would continue to buy you a Butler shirt for your birthday or Christmas and you’d wear it once maybe and then stuff it back in the closet. You were pretty consistent with your fashion in your old age. We all thought you looked adorable in anything you wore, even if you had food spills down your shirt and pants, we didn’t care. We laughed at you, and apparently you’ve been getting back at us for doing so, because we all tend to spill our food on our shirts a lot more than we usually do.

We are all in agreement that you visit little Nolan. Em posted a video of him reaching up to an invisible spirit; it gave me goosebumps! He is so smart! He actually reminds me of you in the fact that you wouldn’t really flaunt your smarts, sorry, I couldn’t think of a better word there! I think you would have loved him dearly. Now, if you can talk ChiChi into letting him pet her easier, that would be nice. He is so curious about his surroundings, and ChiChi is the only animal that is afraid of him. Honestly, if you saw him in his walker or “car” as we call it, you’d be terrified too! The best way to compare the experience is a four year old me racing around the house in my wheelchair!

Hope you are enjoying yourself wherever you are, and watch over all of us down here too, not just the youngsters. We’re still a quirky bunch but we all need an angel at our side sometimes. Although, I feel like you’d be like a bit of a jokester still, so be good too. You don’t want to get on God’s bad side! So no pranks with some of your friends up there. You told me way too many stories of you growing up with them to know that you all can get into some mischief. Anyways, I love you.

Your granddaughter,
Meg-han.

My New Wheelchair!

Howdy!

This seems so strange to talk about online, because it’s been an incredible long journey getting to this point where I can say “I got a new wheelchair” with a smile on my face! What I find to be even weirder is that, this is the first wheelchair announcement I’ve ever done on my blog! I got my first chair dubbed “the purple chair” when I was four! Honestly, I still don’t think children under the age of four, need a power chair. The only reason why I say that is because of how much of a monster I was driving around in it! I managed to scare everyone I came into contact with, because I was either speeding, not watching out for others, and running over feet left and right. I was a terror on the loose!

In 2006, I received the hot pink chair two days after Christmas. Thankfully, by this time I had sort of grown out of the menace stage, but I still loved to drive fast and threaten people that if they didn’t behave accordingly, I would run over them. So, maybe I didn’t grow out of it after all! If you’re looking at those dates and wondering why there’s such a big gap in between them, honestly, you’re not supposed to have a power chair longer than five years, because of the way your body changes and grows overtime, but after the mess of getting the pink chair, I had both of them passed the five and even 10 year mark! My logic was if it still worked, then why switch to a new one?

For this chair, the journey started back in 2012, when I was in physical therapy for the first time since I was in middle school. My pink chair had officially crapped out on me. It no longer wanted to charge for us. This was also the time where my mom exchanged it with this puny $20 transfer chair, that I would end falling out of close to six times from 2015 to like mid-February! This is why it is literally called, “the death trap” within my family. My dad would do anything to pitch it because he hates it that much! By the end of 2017, I was basically done with anything and everything that had to do with getting a brand new chair, because we kept being stopped by our insurances. It was exhausting and frustrating at the same time!

I want to say a couple of days before we moved into our new house, we got some papers back of things that we wanted included on the chair, that were approved; I was shocked! The only thing that worried us was the fact our wheelchair provider had to order it before the end of the next month. The government doesn’t allow a lot of leg room! And then, we were finally told to look forward to the first week of February, because that was when they were going to deliver it to us! Again, I was stunned! My dad was even surprised on how fast this was now going after waiting almost 7 long years. One of the main reasons why everything was going so quickly was because we had been waiting so long, that we all just wanted a wheelchair that had a joystick on the left side of pedals and it all worked, that’s it. I am supposed to have a whole custom seat put on it soon, but that’ll only happen when the weather improves and my dad can work on the deck and ramp to get me out of the house, because right now I’m a little stuck!


Try to ignore the commode in the background, okay?

The wheelchair itself is very different compared to the previous chairs, because I tend to look at them as the standard powerchair, motor underneath the seat, joystick at the feet. Okay, so maybe that last part isn’t really standard, but is it for me! Anyways, this chair is really bulky. It has a lot of structure and weight, because of the improvements that was put on it,  that wasn’t on my last two.

When I first saw the chair, I was a bit wary of it. After we were told that we would be receiving it soon, I immediately got very nervous of the prospect of having a motorized wheelchair again. I didn’t think it would have been such a big deal at first, because I was mobile while I was in the manual chairs, why was this suddenly becoming an issue? I still haven’t found the answer to that overwhelming question, because I actually haven’t spent a lot of time in it yet to finally feel comfortable with it yet.

Here are some new things that was put on this chair!

  • It has 3 controllers!
  • I have two different speed features – indoors & outdoors!
  • It can lean back while I am still in the sitting position.
  • The joystick and foot pedals can move up and down.
  • I have 6 wheels!
  • While I change directions from left to right, the middle tires stay straight but upper part of chair and little wheels turn instead.
  • The armrests lift up like a Lamborghini
  • I have headlights but no turn signals unfortunately.
  • When you look at the back of it, you’d swear I was a damn Transformer!
  • Oh, and it’s red.

I think the two things that has everybody freaking out is first the fact that I can lean all the way back. I could actually sleep in my chair! Once I get my new seating, I might just be doing that if it’s really comfortable! When I sat in it, that was one of the first things that I was shown because the dude that helped us get it, Shelby, is as much of a goofball as I am! However, since I was already nervous about having a wheelchair again, this happens.

I was way too happy to be back to normal, sitting upright again, after he showed us the rest of the changes made to it. The “main” controller really is cool, because a lot has changed since my first chair where I only have the color coordinated lights of how much battery there was, and knobs for the power, horn and of course the joystick. These newer models are progressing to the point where they have a good quality screen, it’s easier to read and understand. You can apparently hook it up to your phone to move it even if none of the controllers want to work for you! Even though, I have one controller that is situated on my left armrest that is purely for what I’ve just explained a little bit ago, I can also do it on my own screen using the buttons and stick to alternate how back or forward I need to be. This feature is on all three controllers on the chair!

Now we get to discuss the color preference. This was actually really easy compared to the second chair, which I will stand here and tell you that I never picked one out. I would never chose hot pink for anything! I even tried to talk my sister out of having me wear baby pink for her wedding! I thought since I was her maid of honor, that I could get away with wearing it in silver, but nope. I lost the battle. So, this time I was determined to pick a color for this chair to hopefully avoid this disaster again.

This time around, there wasn’t a large amount of colors to pick from, but even then I still felt obligated to get purple because I love dark purple, but then I saw both the electric blue and red. I thought about having a blue chair for my love of Butler basketball and of course my papaw, but once I saw the red, I knew I would automatically go for it. I was asked twice how color I wanted my chair and both times I said red. If you’re unsure why I decided on red, well it’s for my love of another basketball team: Houston Rockets. Even though I love and watch four separate teams, I just felt like I needed to choose a team and color that I know I enjoy watching during the colder months. Since I picked out the color back in October, you should have seen my reaction to the color of my new camera I got for Christmas! It’s navy blue like Butler!

What do you think of my new wheelchair? For those of you wheelchair users, were you ever nervous before getting your chair? Do you have any special reasons for the color of it too?