A-Z Disability Challenge | J : Just Watch Me

Hello.

I don’t think people will ever understand the importance of this phrase. It is like Nike’s motto, but it’s more straight forward. Whenever you say it that means you already know you’re going to do it, there’s no use of trying to talk you out of it. While the other is telling you to do something, you’re still liable to think about it and see whether or not if you need to do it.

For people with various types of disabilities, this is like embed into their brains. It’s definitely been into my head for what feels like forever. There is nothing like proving people wrong, and I always strive for that opportunity to look at someone and not necessarily say it to their faces, “do not underestimate me.” It’s the most amazing rush, as it’s second to being an adrenaline junkie, which a lot of us will put the two together and that is usually a recipe for both excitement and disaster, but we normally don’t go looking for that other part!

I think a lot of people can learn from people with disabilities, especially if they have a physical disability. We tend to push ourselves harder, because it’s not all about proving others wrong, we’re also trying to prove us wrong too. Our bodies get weaker the older we become because that’s part of life, but sometimes once we realize we’re missing out on something or losing an ability that helps us to do things can help build up our strength within and we try to change it for the better!

Here is something to keep in mind:

There is one thing that I need to speak up about first, we do have our limitations like everybody else. Sometimes those limits need to be tested of course, but it’s all about patience. Nothing you do will come to you overnight. If you’re like me, you’ll be up all night trying to come up other ways to complete something! I do not like to throw in the towel as some people would say but if none of my plans work, there is no shame in letting go. This is a harsh thing to think about, because we as humans hardly ever want to accept defeat, and when it comes to disabled people, it certainly feels like the universe is letting us down. If something is not working out for you, you can either think of it in another perspective or you have to leave it in peace.

When I lost the ability to get myself onto my bed or couch by myself, it was the worst feeling in the world because to me, that was my main thing I could do if I wanted to get out of my floor or room in general. It does continue to hurt (mentally) every once in a while, and in the last few years my parents have been losing their strength in being able to lift me off the floor, and that means I am not able to do anything on the floor like I used to. I don’t like to accept something I can no longer accomplish on my own, but I am able to look at it in a different way, because now that we’ve moved into our new house, I am getting out of my room a lot more because there is so much space between rooms. Being able to move around in my wheelchairs is as good as scooting, plus there’s a lot less pain in my back and hips too!

How are you with proving people wrong with your limited abilities? What is your mindset whenever you cannot do something that you’ve worked so hard to finish?

A-Z Disability Challenge | I : The Real Definition of the Word “Inspiration”

Hello!

Today we will talking about a rather touchy subject, and that is the word “inspiration” when it is used to describe a person with a disability. I’d also like to say a warning before we continue on with the post because I tend to get a little angry with this topic, but only for that it’s super important to show others that because we have disabilities that we do not strive to be an inspiration to anyone. So, I’m hoping you’ll understand where I’m coming from as a person and be able to respect that.

So let’s start with the definition of the word, and I used the first thing that popped up on Google for this.

A person or thing that inspires.”

The synonyms include “influence and muse” and the first things that came to mind after seeing these two words were: art and blogging. An artist can have a muse or multiple of them for he/she to find a sense of creativity that might be lacking for a piece. Now anybody that is using a platform to promote a product is a Influencer, whether they are a blogger or YouTuber, that is the term that’s generally used online. These are real and true ways to describe a person, but it says nothing for people with disabilities, because there isn’t a word for us. We don’t fit in that box and that is the one thing we’re perfectly fine with too!

For us, it’s all about adaptability. We’ve had to find ways to figure out how to do things on our own without any help. If we want to be independent this is what we have to do in order to achieve that way of life.

Unfortunately, it’s usually the little things that gives us the most praise. For me, it was always my art or being able to grab things in various sizes with my feet. When I was in school, I did enjoy the attention I was getting in art class, but once I got into middle school, if you had the talent you were basically taught to seek out perfection, and whenever I couldn’t get there in the same amount of time as my peers, it really hurt me mentally. It actually took about three or four years after I graduated just to feel comfortable to do art again, mostly painting, and I never enjoyed doing that in school so that worked out well!

When it comes to doing things with my feet out in public, it always a depends on my mood, sometimes I don’t care who sees what I can do, but there are also times where I can sense somebody is watching me. Now I don’t mind children or elderly people staring at me or asking questions, but it’s everybody in between that annoys the crap out of me because that’s when I usually hear the word often. As much as I’d like to look at them and say, “I’m not here to inspire or motive you!” I usually give them a nod or smile to them because I know they’re not doing it to hurt my feelings, but when you’ve heard it pretty much your whole life, it’s the least compliment you’d ever want to receive, okay?

So what can you say when you’re standing or watching next to someone who has a disability that you find fascinating? Honestly, there isn’t the perfect solution to this, but my advice is you could smile at them. A simple smile to a person usually makes them happy, so if you notice something a person is doing that’s “inspirational” just give them a smile as a way to say “what you are doing is absolutely amazing!” This will make that person feel so much better, because you’re not focusing all of that unwanted attention on them for something that they had to learn to do at some point in their lives.

I hope you enjoyed this post and take my advice the next time you’re around a person with a disability. Please be respectful to one another, that’s all you really need to do! ūüôā

 

 

Tune Tuesday | Where Does The Name ‘Upon Wings’ Come From? by Anne Erickson

guestpost2018

Howdy!

We’re back with the second Tune Tuesday post featuring Upon Wings lead vocalist Anne Erickson!

Are you loving these pieces so far? Everybody seems to love them, which is really great for the band as the more we do this, people who have never heard of them will grow more curious about their music and eventually want to check them out, which is something that I strive for on a daily basis. That’s what every music blogger wants to do, inspire people to look into this artist or group, so that maybe they’ll start to love them and become a steady fan, if that’s an actual term for musical purposes!

Today, Anne will be discussing how the name Upon Wings came about and I think it’s a very touching story on how different things, like verses or words in general can touch and help us create something entirely new! So I hope you all will enjoy it!


When I was thinking of different band names, I wanted something simple and something that somehow felt right with the band’s sound. I was looking at different places for inspiration, and I looked through the Bible for some inspiration and ideas and I read Isaiah 40:31:

But they that wait upon the Lord shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint.

The phrase “Upon Wings” stood out to me. To me, that phrase implies depending on something outside of yourself in times of need. It could be God, a friend or family member or something else to help you in some way. There are times in life when all of us will need to rest “Upon Wings” of Eagles to soar.


How is that for an answer?! I really loved hearing about this, because I remember the afternoon I found Upon Wings and literally I thought how the band name came about, honestly for most bands with out of the box names, this is usually the first thing that pops into my head!

How to follow Anne and Upon Wings?

Facebook | Twitter | YouTube

 

Top 11 Life Mottos To Live By

lifemotto

Howdy!

I’ve been thinking about writing this post for a while. It wasn’t until I saw fellow blogger,¬†Lisa put up a post about her favorite life mottos that made me get my butt in gear to publish this!

Back in 2014, I really wanted to learn how to deal with life. I didn’t want to get started on anti-depressants, and still don’t honestly! I knew what I was doing, wasn’t the best. I had two big depression spells first was in 2010 and the other was late 2011 into early 2012¬†and at this point at my life, I was fine, but I always felt on edge. I remember being on the website Your Zen Life¬†created by actress Teresa Palmer a lot. I read some of their self-love articles and they really helped me deal with some of my inner demons. I started to learn more about daily affirmations and somehow I managed how to control my patience, which still freaks out a number of my family members!

Blondie and I have adopted a similar way of using life quotes to our advantage. After she got out of a very abusive relationship, one of the things she did to help her find some comfort, was she wrote out different quotes in this small notebook she got after attending a college campus tour. We’ve decorated the back of our doors with quotes and song lyrics that really mean a lot to us in the past, and with doing this, it helped a lot because I was able to see the phrases in front of me on a daily basis and I constantly had them on my mind.

If you follow my blog’s Facebook page and been seeing the quotes I’ve posted on there for the past couple of weeks, this is the reason. Here are eleven different quotes and the stories of why I like to use them on a daily basis. Maybe some of them will inspire you to adopt them into your life.

Train your mind to see the good in every situation.

A few years ago, I found this thing on Pinterest that I was thinking about doing, and I mentioned it to my nana and somehow by the end of our visit, we ended making a promise we’d do it together. So instead of looking at your whole day and knit-picking at the negative stuff first, you’re suppose to select three good things that happened within your day and if you can find three things then you have an excuse to say it was a “good day” compared to what you usually say.

This is how I ended up finding this quote, because it was similar to the activity. After a while, you do start seeing the good in your day that maybe you didn’t before. I mean, you’re going to have bad days, but you don’t want to feel stuck in that pattern for days on end, so this is a good way to start anew.

Sometimes the best reaction, is no reaction at all.

It’s funny, this was the quote that inspired this post because as much as I like to use it on a daily basis, the one thing that it doesn’t work on is apparently basketball. Maybe it’s the papaw in me or something, but I have trained myself to not react to everything, except that!

I think the one thing that I still need to work on, is how to deal with my dad. Whenever my mom goes to work, I spend close to six hours with him and we know how to get on each other’s nerves pretty easily. And whenever he says something that I feel like I don’t need to reply back to, he will ask it anyways. So I’ve learned to select my battles and I try my best to not give him any kind of reaction at all.

Everything happens for a reason.

To a lot of a people, this will seem like a cliche quote to use, but I think it’s one of the most popular quotes ever.

Honestly I use it for probably the most random things ever! This actually comes in handy whenever I watch Jeopardy.¬† I’ve had a lot of things that I’ve watched on TV, mostly about art, books, food, history become categories on the show within a week later. I always find it both cool and weird whenever it happens.

Prove them wrong.

This one is just embed into my brain. I started using this one when I was very young, before it was a just a simple phrase I heard other people say out loud to me and somehow I ended up becoming that phrase. I like to prove people wrong with everything I do, it’s part of my disability vocabulary, and I still use on a daily basis.

Strive for progress than perfection.

I wish I knew about this one in school, especially when I was in elementary. As the “prove them wrong” was meant as a positive quote to say around, it also had a drawback to it. When I would take art classes, I would become this “amazement” to my teachers and the rest of the class. I was never teased for it, but I feel like I was my biggest bully to myself because as I got older, I started to really hate wanting to be perfect in whatever I did. It took many, many years to get myself out of that mindset, especially when it came to art.

You’ll do it when you’re ready.

This is a like a timeline on what’s going on throughout my life without even trying!

I think this can be taken in many ways. Right now I have a lot of ideas relating to my writer side. I want to branch out and share some of my knowledge and pieces to other websites, but I have a lot of self-doubt that comes with it. I can talk myself up to it only so far before my confidence fades. So a part of me has been writing, writing, writing as I’m trying to follow the advice of Lucy and have a different array of articles in my drafts, so when I do decide I’m truly ready, I can just pick and chose which ones to give out!

Be open to whatever happens next.

I found this quote, prior to the death of my papaw. I don’t know if this was my sign that something was coming, but I have been increasingly embracing this lesson. I think it’s a good idea, because I know you can’t prepare yourself for everything, even though I’ve become pretty good at attempting this. I usually try to say it in the mornings, and it’s been very helpful!

Perspective is everything.

Perspective really is everything to me, it keeps me grounded I think. I’m not as quick to judge things and people, thanks to this quote. I also like to use it when it comes to art too! I like trying to figure out what the artist was thinking about as they were doing the design in the first place. That’s why I usually like big canvases and abstract art!

You can’t change what’s going on around you, until you start changing what’s going on within you.

Oh, this was a new addition to my life and to this post. I found it back in mid-April, as I was scrolling through my dashboard on Pinterest! I thought it worked well with how I was dealing with life in general.

I am the one that everybody comes to for advice, or they did, and I’ve been used as distractions in the past. I’m fairly good at doing both, but it’s when people don’t want to be bothered with either situation, is when it can get a bit difficult. Now when it comes to help for myself, I’m scared to ask for it. I like my independence and hate the fact that I need extra guidance to get through life, so a part of me knows that if I want to get better, I’m going to have to accept this obstacle and basically hitch a ride and hope to God, there’s a light at the end of the tunnel.

Everything is a choice.

I think this is somewhat similar to “when you’re ready” and “perspective” quotes. They all go together with the same outlook, I mostly use them for my articles. I need to remind myself that everything I do is a choice, I don’t have to conform to what other people expect me to do, and if they don’t like it, I can take that piece and send it to another person or site and hopefully they’ll be more open to allow it.

Even the nicest people have their limits.

At first, I wasn’t going to add this quote, because I didn’t think it was like the others, but the more I thought about it and I realized why I wanted to write up this post in the first place, I figured out this was one of the most perfect quote/lesson to keep in mind.

I’m a fairly nice person, I don’t have any drama with people, I get along with most of the population. I’m not racist, homophobic, or anything of that nature. I’ll never really talk about these any subjects but I do have an issue with keeping other things, like serious topics locked up and they can swirl around in my head for many, many years without being discussed and I’m very been worried that one day, I’m just going to explode because somebody’s said the wrong thing to me and I’m going say something that’ll sound insulting and that’ll just break my heart.

So, in the future you might see some very brave posts that I feel need to be talked about on here, and hopefully I won’t sound too much like an asshole. I’m just tired of keeping my opinions to myself. This is your warning I guess to what could come on this blog in the next seven and a half months!

Are there any quotes that you love and keep nearby to remind you to keep going in life? What is your favorite quote ever?

I Break Too

Untitled

I hope everybody is having a wonderful Monday. It’s the last week of the month of July as All That Glitters’¬† Candice reminded me. It also doesn’t help that schools here are going to start back up on FRIDAY! What the crap? When did they start so early? And why? Because you know they’ll be released at the exact same time every year. Our winters are never the same I get, but still if you’re still not going to release the staff and students on an earlier week than you usually do whenever we don’t have bad weather in the winter months then why bother? I feel bad for every teenager who is going to school a few weeks earlier than the average college student. ¬†I’m having one of those Monday’s, can’t you tell?¬†

If you follow me on Twitter, you probably just read or reread my tweet I posted about the boys of One Direction. I’m not that big of a fan of theirs. My sister is, but I have been wanting to see their movie¬†This Is Us¬†since I heard it was being released in theaters. I saw that STARZ was going to be playing it a few months ago, it seemed so long ago actually! I finally found it yesterday morning and recorded it on my DVR. I told my sister that I had taped it and asked her if she wanted to watch it with me. She couldn’t last night but we decided to watch this afternoon instead. I was pretty stoked I’m not going to lie, because truth be told she was the one who made me watch Justin Bieber’s Never Say Never¬†movie with her and yes, I did watch it and actually enjoyed it. So she sat on the floor, while I was under the covers on my bed and we watched the movie together.

Since I don’t know much about these boys I thought the movie would explain about their childhoods along with their journey with Britain’s¬†The X Factor¬†and Blondie and I thought that was pretty interesting. Even though it didn’t really let us in on their childhood I was completely okay with that. It’s kind of sad that we were agreeing of how massive the crowds were in different countries. How the fans were crying and going absolutely crazy for them everywhere they went gave me a sense of like¬†you can’t make fun of them, because you know if it was anybody you heavily listen to, you’d be doing the exact same thing but I digress. Anyways, I tweeted that hell might’ve frozen over since I followed three out of the five members of the boy band. Harry, Niall, and Zayn. ‚ô•¬†Blondie’s totally team Louis if anybody was wondering!

I don’t know what tomorrow has in store but I hope it’s a smooth sailing kind of day that’s all I’m hoping for at least. I can make it a Hemsworth brothers day since I have both¬†Thor: The Dark World¬†and¬†Love and Honor¬†in my DVR as well. I could also try to get passed 60% on¬†The Fault In Our Stars¬†by John Green too. I have no idea at the moment. I’ll figure out when it gets here. Have a good night and great Tuesday! Come back for tomorrow Tune Tuesday, where we head to INDIA!¬†

Monster In Laws

lessonsI don’t know why but I’m on this kick to watch only but Everybody Loves Raymond¬†whenever I’m eating. I’m surprised I haven’t got choked on my food considering of some of the episodes that my mom has on her DVR. Within the last two days I’m seriously surprised that I didn’t get choked because they were just hilarious! When my family got on ELR kick I fully stayed away from it, because I did not like Frank and Marie. They annoyed the living hell out of me and so I basically stayed away from it, but I have been a little bored with the shows on my DVR so thankfully I can switch over to my parent’s shows on their DVR and watch them in my room. I swear for like the last two or three weeks that’s all I have been watching. Majority of them have been there since last Christmas and Thanksgiving so there are holiday episodes and I’m happy to say I’m finally over those, but I just watched this episode where those quotes came from yesterday afternoon and so I thought they would be the perfect way to bring a little bit of humor to this post!

From the time I was thirteen, I have dreamt of having a family and have been thinking of different names to give to my future kids. It’s a normal thing at that age, as long as you don’t end up pregnant around that age it was normal back then. When my papaw started watching the show and talking about it with my mom and dad, I started to pushed myself away from it. Because I thought it was stupid, the over-bearing mother who gives more attention to the younger son than the other and the husband who is a stubborn ole goat with no manners for mankind, but has a gentle side like a kitten. He’s just selective on when he wants to open up like that. Whenever I’d think about getting married, I’d totally forget about the in-laws. I mean, come on! If anybody has watched ELR and is still single, you are trying to avoid marrying a person because you’re afraid you’re going to end up with in-laws like Frank and Marie Barone. Don’t blame you though, because that’s mainly my reason why I don’t want to get married. From a young age, I never really saw a wedding in my near future, if I did it was always blurry and too perfect for my taste. It just wouldn’t happen that way. In my head, I never met my in-laws because I haven’t exactly met “the one” yet either so I have nobody to see just yet or get a feeling if they’re going to be the Barone family or not.

I am afraid of marrying somebody though, because they not only get to deal with me and my baggage but my family is a hoot too. We’re like a package of brownie, we’re full of nuts! I don’t think we’re as bad as the Barone family but I think we’re close. We don’t have a “Marie” character, all of the women in my mom’s side have motherly sides to them but it isn’t as bad as I guess it could be. I don’t think I should say anything about the males because I’ll just get into trouble but at times they did have some characteristics of Frank. For example, wearing stretching pants at the dinner table, addicted to sports, and stubborn as hell at times. Frank said everything that he had in his head and Marie was quiet to him. Something that nobody in my family would actually do. I feel like my family is more like Ray and Debra than anybody else. Ray and Debra had a strong connection but weren’t afraid to say what was on their minds. I know in different generations it’s different in general. You’re raised to do different things but I know I just don’t want to deal and I’m pretty sure my future spouse doesn’t want to deal with anybody like is the Barone family.

Bonding Time

It’s been a very fun last few days, I actually got to hang out with my family and some friends. My sister proved herself twice this weekend. It mostly started on Friday morning. I have had a rough week gaining back my sleep schedule again. She got me up at like 10:30am and I hadn’t gotten up like that for a while. Our aunt and uncle came down for two days and since mom had to work, Blondie took me over to my nana’s house to visit while she was at work too. She got me dressed and put my hair up in a ponytail for me. It was very different to have her do that kind of stuff on her own, because she doesn’t usually do it. It’s not because we don’t allow her, she’s just very timid and she thinks she’ll hurt me but she won’t. I went over and when we came back home, she went to push my wheelchair back into the living room from my room. Not kidding, she did everything right but it didn’t stop her from running into the both halls and Oliver’s litter box. It was most funniest thing I had seen all day! I tried telling her to use the bathroom to turn it around but nobody wants to go the easy way.

Later on that night, my parents went out with our neighbors to a little restaurant and bar, I don’t know what it really is honestly! I kept my eyes on the clock and when it was like 11:30pm I was like “ok, I’m ready for bed.” I had the poor thing take me to the bathroom. We got our handy-dandy commode early last year, it was my mom’s idea and at first I hated it, but now I actually love it because it’s so much easier than the old way. Well, mom is the only one who will use it. Dad and Blondie have to be stubborn and go the old way, for my sister to be kind of small arm wise. Don’t get me wrong, she’s strong! She lifts weights for fun! So I’m basically a piece of cake for her but I was very uneasy about her carrying me from my room to the bathroom with nobody to help her, but I was impressed again and she did a really good job. I was pretty proud of her! Today she asked me if I wanted to help her decorate her door. When she was younger, she had her entire room decorated, had pictures up of her and friends and family. She even had hot pink polka dots and streamers hanging down from the ceiling. She wanted to make over her the back of her door. She has an obsession with quotes and lyrics. I went into her room and we literally covered that sucker up!

This was during one of our breaks, I did about 18 quotes/lyrics and she did the rest.
This was during one of our breaks, I did about 18 quotes/lyrics and she did the rest.

This was the finished project. I'm pretty proud of ourselves, now we just gotta do my door. I need to create some room first!
This was the finished project. I’m pretty proud of ourselves, now we just gotta do my door. I need to create some room first!

Yesterday and today, we basically hung out with our neighbors. I love kids very much and our neighbor has a young one named Chevy, she is in that stage where likes to climb almost everything. Well, she finally figured out how to climb up to the seat of my wheelchair. Now if she could only figure out how to hold on to the sides to turn around to sit on my actual legs by herself she’d be fine. Somebody actually has to lift her up to my lap. I have always wanted to hold a baby before in my arms. It’s something that I may or may not be able to experience one day because of how my arms are anyways. Well, last summer my dad found a way where she could sit on my lap and ride around too. He just attached his belt around us because my seatbelt could barely fit the both of us. She loved it! Now she’s not that small but still pretty fragile, I’m pretty protective over her. I’m always up to help her and she’s starting to realize that I do things with my feet and she hands me things to my feet. it’s so sweet when she does it on the first try. She loves to just sit on my lap. She moves her head to the sides to tease me. Today, while we went on a walk she walk besides me and held on to part of my armrest. I did my best to slow down, I was already slow to begin with because I was running out of juice in my battery.

Now I’m at home hurting in different parts of my body, mainly my neck right now. Earlier while I was writing different quotes, I realized I hadn’t really written anything out in like a year. I never have to write out anymore. It’s kind of sad really, but good news is my foot writing isn’t as bad as I feared. I still can’t write straight across on unlined paper. It was a bit difficult to find the right kind of markers to use when my sister picked out neon colored sheets of paper. I literally had trouble seeing after staring into the orange and pink. While we were working, my dad was out visiting outside and my mom saw all of our new kittens on the back porch and brought them inside and put them in my sister’s bed. I think enjoyed themselves, but Silver and the little gray and white still have stuff in their eyes. So mom and Blondie had to wipe them a couple of times but they moved all over the place. They didn’t know what to think of the music we were listening to though. I think I spent a whole hour in there with her listening to a mixture of pop/country/rap music. I was proud though she does like one Five Finger Death Punch song and she did hum and sing along to it so I was happy! After we were done though I had never been so happy to listen to metal music. It was fun though! Oh, and my friend Sammy got ice cream from the ice cream truck and brought me one. Now I’ll be surprised if it’s still there tomorrow afternoon.

I hope everybody has enjoyed their Sunday and hope all of the father’s out there enjoyed their father’s day. Tomorrow starts another week, but that’s okay though! You’ll get through! Keep positive thoughts in my mind and you’ll be fine! Good night and sweet dreams.