Vloggers That I Love | #3

Howdy!

Today I am going back to a short-lived series I created back in 2015, it was called “Vloggers That I Love” as it was a play on another series I did for my favorite bloggers at the moment. Unfortunately, I haven’t been wanting to read anything but I have been watching tons of new YouTube channels lately, so I thought that you would like to know who has grabbed my attention the most and maybe even watch them too!


Hannah Witton | disability, geek, sex & relationship


I don’t really remember how I discovered Hannah’s channel. I saw a video floating around on Twitter of somebody’s favorite disabled YouTubers and I think I watched two of them all the way through and I’m pretty sure that’s how I found her.

One of the things that I enjoy when I watch her videos, is how real she is to her audience. I think the best way to show you what I mean, is featuring the video where she explains her Stoma. I was very shocked on the fact that she was willing to show basically the whole world an exposed area on her lower stomach where her colon is located, to show us how she takes care of it day and night. Even though that was my initial reaction, I was honestly very impressed on how brave she is on doing that in the first place. She likes to talk about Crohn’s disease a lot. She helps spread awareness of it and isn’t afraid to talk about other disabilities on her channel either!

She is sex positive, which means she does discuss her sexuality very freely on her channel. I’ve noticed in the last few years that I would like to talk about sex and relationships not only on here, but in general. I’ve always believed that I am influenced by an 80 year old woman that makes me keep those topics as far away as possible, but I am slowly breaking away from that and trying to find ways to be more open to speak on about sex and relationships in my own way. I feel like she is helping me find that confidence to finally talk about some of these taboo subjects out loud.

The last thing that I felt I needed to mention is that she is a true geek. She loves to play video games with her boyfriend and friends. Whenever she talks about her monthly favorites, there are times where she’ll discuss about the games she’s been playing the most or books she’s been reading lately. So, she isn’t overwhelming you with her disability or talking about sexual things, she has a lot of other interests and that she is as “normal” as everybody else.


Jessica Kellgren-Fozard | disability, history, LBGTQ & vintage fashion 


Since I’m going in alphabetical order apparently, I think I should mention that I found Jessica the same way as Hannah. Actually, I think Jessica helped me find her but I can’t remember, the best thing is that I found them and enjoyed them so much that I still watch their videos!

I think Jessica is a very unique YouTuber for so many reasons. The first time I ever watched one of her videos, I was sort of memorized because firstly her fashion sense. She loves vintage fashion, so much she literally dresses up in 1950’s clothes! Her red hair is curled perfectly and she apparently doesn’t own a pair of trousers at all! She lives in boldly patterned but cute dresses and red lipstick. It was amazing! However, it’s not just her style that is “old” she is like me and also love history! Whenever she discusses history, they are usually very informative, which is what I find kind of interesting since she is deaf, she talks on her videos and she is surprisingly clear in the way she speaks to her audience, but whenever she goes into these historicity figures is crazy, but in a good way! You literally forget that she is wearing hearing aids at all! 

I need to point out that Jessica isn’t just deaf, she has a somewhat long list of other things “wrong” with her. They are Hereditary Neuropathy with Pressure Palsies and Mixed Connective Tissue Disease. Personally, I am still learning about them through her videos but there is a specific video that you can learn more about it on her channel!

Lastly, she loves to talk about the LBGTQ+ community. She is married to her wife Claudia of two years I think. They have two puppies, Tilly and Walter. Claudia does join in her videos from time to time. She also helps her photography on her Instagram and YouTube channel, but really they seem to have an awesome relationship and they are really funny together too!

I hope you enjoy these two ladies and their channels if you check them out. If you know of any other disability vlogger that you think I would like, please send them my way I would love to see what their life is all about as well! 

Do you like to watch people on YouTube, recording parts of their daily life? Who is your favorite?  

A-Z Disability Challenge | H : Asking For Help

Yes, I am going to try to get back to my A-Z Disability Challenge! I have been kicking myself for not doing it for so long but I think I am finally ready to start on it again. If you have missed any of the other letters, I have them at the bottom of this post so you can check them out afterwards.

This week I will be talking about the notion of asking for help. Although it is a fairly popular topic of other disability bloggers and YouTubers out there, I think it’s a good idea to have many pieces out there for people of different generations in multiple point of views to help people learn more about what they should do if they ever found themselves in a situation where they want to help, but are not sure on what to say or do at the time.

I will be firstly talking about why a disabled person will probably never ask for help. It’s honestly a mixture of things, I think the most important reason is because we don’t want to look weak. We actually love doing things for ourselves. Every ounce of independence we get, we relish in it for as long as possible. However, the day it runs out, it is a heartbreaking day. For example, after I had my back surgeries in 2002, I wasn’t able to jump back into my regular physical therapy, we did a lot of moving around and my body wasn’t used to all of that yet. Our main objective for me to learn consisted of how to transfer from wheelchair to couch, chairs and toilet. I finally re-learned how to transfer again two years after I recovered. Unfortunately I never learned how to get on my bed by myself, which was probably the biggest blow out of the whole thing. I can scoot down off, but I do not have the strength to pull myself back up anymore.

If you were raised like me, you basically had full rein on what you could do, and it made you feel “normal” for once. We love to challenge ourselves in our daily lives. and being able to learn something new is the biggest drug we can seek out. Unfortunately, some of these challenges can be more complicated with some of our limited movements. So, we can sometimes be slower than not only we would like, but for other people too. I’ve realized in the recent years is that our families are usually the ones that have the lowest points of patience of the bunch for some odd reason! They don’t like to see us struggling, especially our fathers, so they want to “help” us. What they don’t know is that they’re doing more harm, as it is better for us to learn how to complete a task than leaving it for someone else.

I do understand the reason why people feel like they should help us. Even though you should always ask that person if you can lend a hand, we will try our hardest to make sure to let you know we don’t need you. Something you may not know is that we have a huge sense of pride within ourselves. Giving up on anything that lets us be like everybody else is the worst thing possible ever. So, when we can’t finish what we started, we will reluctantly ask for help. We will not be very happy with ourselves, but at that time it will be something that needed to happen.

I have always had a difficult time accepting help. One thing that I despise is when someone close to me will automatically do something for me, when they know I can clearly do it. I love trying to find new things to do with my feet, nothing really makes more happy in life than discovering new ways to do ordinary tasks around the house or out in public, but it does make people nervous, they think I’m going to get hurt, so they try to dodge that obstacle as fast as they can and yes, it is very annoying but you have to let it go and hope for the next time. You have to realize your patience is not the same as others so in a way, I think both sides need to keep that in mind when it comes to these things. It also ultimately depends on them on if they can learn to grow to trust you with the various tasks you know or learn later in life..

Here are previous letters and their links if you want to check them out now!

Arthrogryposis Multiplex Congenita | Building Trust | Be Truthful To Your Children | Dear Disability Community | Events | Treat Your Friends The Way You’d Want To Be Treated | Long Term Goals

Baby’s First Easter!

Howdy!

It has been a really long time since I’ve blogged about a family gathering or in this case, a celebration. I keep wanting to kick myself whenever we babysit Nolan because I have good opportunities to snap a few pictures of whatever he’s doing, so the night before our Easter festivities, I had my mom charge up my camera because it’s been a couple of months since I’ve last used it and I felt like this was a good idea because I’ve been in the middle of something and all of a sudden my camera goes black on me. This way, I knew I would be good for two hours or so, depending on what I think was worthy because that in itself is a totally different story. Since my nephew has become very mobile either when he is in his “car-car” or army crawling on the couch or floor, the booger is fast. and he changes his reactions quickly that I needed a lot of juice in my camera so I wouldn’t have to depend on anyone else for help if it dies on me.

Nolan is at the age where not only does he put everything in his mouth, but he is very aware of things. When it comes to holidays though, I think we all kept going back and forth whether he would be interested in going on a makeshift Easter egg hunt. He loves colors, mostly red, so we figured he’d enjoy that part but there was the fact that they’re somewhat slippery and they can split apart. These are two things that he hasn’t experimented with a lot lately, so there was a slim chance that he could ignore my mom and I’s best efforts to make the living room into a sea of shiny colors!

When they first arrived we basically fell in love with his little outfit and gushed on him about it. Blondie and Brandon looked very nice too, but they didn’t get as much attention as him, which I think they were pretty fine with anyways! Personally, I thought he looked like a little farmer with his overalls, and since the redness in his hair is starting to push through more often, he looked like an Irish farmer! After obsessing over how cute everyone looked, we took some family pictures and surprisingly Nolan actually minded really well. Once he noticed the eggs all around though, he began to lose interest with family pictures pretty quick, but we managed to get everyone together before we released him to check them out.

One year, Blondie and I had to settle for an inside Easter egg hunt and we even did one for Halloween too (only because it rained for four days straight!). We weren’t happy about it at first, but I actually enjoyed it because I was allowed to get on the floor and scoot around to the candy. When we officially decided on this idea I was really pumped to bring it back for him. It’s in a controlled environment and leaves clothes very clean afterwards, or it should. I think Nolan enjoyed himself, that is until somebody tried to take away one egg so he could look for others. He didn’t really like that part, but he was obsessed with the eggs though! He played with them all day long.

Nolan also received a couple of baskets from the Easter Bunny as well! The one that came to his house got him a backpack instead of a basket, because the next day he was to start going to the babysitters and it would be an easy place he could put his toys in, and honestly it’s a freaking adorable idea! The backpack came with a few various sizes of Hot Wheels cars that not only can he enjoy but his daddy and his Aunt Meggie can too! The Easter Bunny came to our house too, and asked his MiMi (my mom) to decorate his basket. Next year he might want to consider asking me instead and you’ll understand in a minute what I mean. He got a very cute soft lamb that says the Jesus’s prayer for children. He was also supposed to have a sippy cup but Pa-Pa apparently couldn’t wait and let him try it out a week in advance. He’s known to do this, I was supposed to receive my first cell phone on my 16th birthday but he couldn’t wait anymore and gave them to us two days prior! He’s a soft-y when he wants to be!

After that, we had lunch, the adults had lasagna but Nolan had half an avocado and almost a whole banana! A couple of weeks ago, he decided that he was done with baby food so now he only drinks formula and people food. My dad has never been happier!

I think he had a lot of fun! I know we all did that’s for sure! Nolan has a lot of energy, and I love playing with him. I swear he gives out that energy everytime he comes over. Everything is innocent in his eyes, he’s not scared of anything, he’s not jaded as we are and I think this is a time to really cherish because as he gets older he’ll lose all of that and fear most things and can be influenced in other directions. We’ll get to all of that in a later  date though, right now let’s focus on these moments.

How was your Easter weekend? What were your traditions growing up? Do you have an alternatives when it comes to a rained out egg hunt? Let me know!

Life Lately | Hello Spring!

Howdy!

Since this is the last full week of April, I thought it was only right to blog about life.

Last week I mentioned that it’s been a whole month since I had blogged at all, and I don’t really know why I decided to do take such a long break but it happened. This year I manged to come up with three separate series, two of them are on here and the other on my blog’s Facebook page. I did a lot of work to get everything organized that I think I started to expect a lot of myself that the pressure mounted so much that I began to feel overwhelmed by everything, but once I stopped blogging for a couple of days, I just all of a sudden felt better about things and I didn’t look back.

I’d like to say I got a lot of other things done while I was on my hiatus, but I didn’t. I think the only real thing I worked on the whole time was my “name pairings” Pinterest board! I didn’t take advantage of the time off to read or anything so that’s one thing that makes me angry, because that would have been a perfect hobby to do! I didn’t even watch that very many movies or TV shows either. I was pretty much consumed by Pinterest! It’s so sad to say out loud and of course read it on here too!

One thing that I’ve been really enjoying lately is our weather. Well, technically we had a few strange days where it was producing late spring weather, where the temperatures were like in the 60-70’s and unfortunately, our new house does not have an air conditioner yet. So, for a large number of days we had to rely on opening our windows and leaving our fans on all day long just to cool down. For 4 days alone, my room’s temperature was around 78-80 degrees! At night, it was miserable because when I have my fan pointed one way, but if I wanted to lay on the other side I was hot as hell! I actually spent one day completely in a short sleeve shirt with a pair of very tight shorts. On the day I wrote this post, the temperature had calmed down so much that it was 39 degrees outside! It was also very comfortable in my room too!

A feature about our house that I am starting to really enjoy is I get to see the morning sun. I’m such a nature girl at heart, so the morning sun makes me extremely happy! Now there is one bad thing about my room. Since it’s placed so far back, I am around a lot of trees so whenever it storms, I am in a constant state of paranoia because we have some very tall trees in our backyard and we have had some limbs crash down in various places in the past. One large branch was responsible for tearing a hole in our trampoline! So, being surrounded by trees has its bad notes too.

I have been spending a lot of my time hanging out with my nephew Nolan. He’s grown so much since my last update. I have thought about creating another one, but it’ll be his birthday in about two months so I have decided to hold off until then, but I doesn’t mean I can’t share anything with you though.

Do you remember when he was like three or four months old and he was obsessed with my hands? Well, now he’s starting to fall in love with my feet! When he was around two months and he used to sit in this seat, and he would watch me get a drink and put on my blanket – I literally told him once that I would treat him how I do that. At seven months old, the little goofball learned how to put on his own blanket with his feet! He’s such a smart cookie. He loves grabbing things with his feet, and I’m surprised with myself because I figured I would be offended by the fact he was using his feet to do stuff, but I’m not. I’m just proud to see him paying that much attention to what I do because I think it’s just part of my daily life, I don’t like to think of it as a special thing, but he’s made me think about it differently now.

Whenever he was really little though, I was often upset that I wasn’t able to hold my cutie pie (my nickname for him!) the only way I was allowed to be up close with him was when mom or Blondie would bring him into my room, to take a nap on my bed. We would wrap up in fleece blankets and while he got to sleep next to me, I was making mental images of my little buddy. Now he’s somewhat mobile, since he can army crawl around I haven’t had that one-on-one time with him. Well, he recently exchanged that with giving Auntie Meggie many, many hugs! Yes, he is a big hugger! I love it. In a way, I think that makes up for the fact that I couldn’t physically hold him as a itty-bitty baby too.

Well I think I’m done for now. What is your favorite thing about spring? What is your favorite activity out of your normal routine that you like to do?

VISIT MY “NAME PAIRINGS” BOARD ON PINTEREST!

Howdy!

It’s been a while! I have not blogged in a month. Well, technically, if I had held off for another week, it really would have been for a month. The last blog post that went up was my annual post of my papaw’s death and the last post I wrote was the one that’s coming tomorrow! I’m hoping to do another “Life Lately” post next week but we’ll see what happens.

This post is about a project I’ve somehow created while I was on hiatus. You all should know by now how much I love baby names. I’ve talked about my favorite styles on here before, but at the end of March I was looking through Pinterest at various boards of other people who make those adorable wood name signs and as I would continue to pin and scroll through the many, many names I kind of found myself somewhat bored with my limited choices so one night I thought, “well I can’t find what I want, I might as well create them!” I have to add I’m not doing wood signs like them, I’m purely using my Paint software on my laptop to make things easier on myself. What I thought would be a cute little board of my favorite name pairings turned into a board full of 400+ names in a matter of a few weeks!

Originally I made the board of names I have always loved and have in my phone’s notes. After that, I found others on a baby names Facebook group I recently joined and anything I enjoy in the local newspaper, on Nameberry’s birth announcements, etc. Finally, after all of those inspirations, I would even literally come up with in the middle of the night, and yes, it happens a lot! I also went back and forth about creating little mini boards for the different sexes, I even have a board of both unisex and unique styles too! Ultimately it just kind of got out of control to the point now my whole lower half of my body hurts after about an hour or so!

Here are some of my recent uploads to the board.

Click here to visit the official board of baby names!

I myself have a wide array of styles, I always tend to stay in between classical and quirky ones. Since doing this, I’ve also realized that I have a LOT of constantly used names, such as “Catherine,” “Rose,” “Alexandra,” and “David.” I tend to overuse several of my family’s names as well. I mainly do that to see what all could fit with each name. It’s one of the most frustrating thing about older names, sometimes you just get stuck and began to experiment with all sort of combinations.

Unfortunately, I don’t really pay that much attention to meanings. It would just depend on the name itself because I have looked up some of them in the past so I have a few stored up in my brain. If you’re interested in a name and have issues what kind of middle name(s) could fit with your chosen favorite, you can always talk to me on my blog’s Facebook page. Send me a message to my inbox and we’ll figure it out together! You could also scroll through the many others in the boards too, and see if you like anything in there too!

What is your favorite of the 6 names posted above? If you’ve visited the Pinterest board already, do you like any in the mini sections? If you want, you could send me requests too!

My New Wheelchair!

Howdy!

This seems so strange to talk about online, because it’s been an incredible long journey getting to this point where I can say “I got a new wheelchair” with a smile on my face! What I find to be even weirder is that, this is the first wheelchair announcement I’ve ever done on my blog! I got my first chair dubbed “the purple chair” when I was four! Honestly, I still don’t think children under the age of four, need a power chair. The only reason why I say that is because of how much of a monster I was driving around in it! I managed to scare everyone I came into contact with, because I was either speeding, not watching out for others, and running over feet left and right. I was a terror on the loose!

In 2006, I received the hot pink chair two days after Christmas. Thankfully, by this time I had sort of grown out of the menace stage, but I still loved to drive fast and threaten people that if they didn’t behave accordingly, I would run over them. So, maybe I didn’t grow out of it after all! If you’re looking at those dates and wondering why there’s such a big gap in between them, honestly, you’re not supposed to have a power chair longer than five years, because of the way your body changes and grows overtime, but after the mess of getting the pink chair, I had both of them passed the five and even 10 year mark! My logic was if it still worked, then why switch to a new one?

For this chair, the journey started back in 2012, when I was in physical therapy for the first time since I was in middle school. My pink chair had officially crapped out on me. It no longer wanted to charge for us. This was also the time where my mom exchanged it with this puny $20 transfer chair, that I would end falling out of close to six times from 2015 to like mid-February! This is why it is literally called, “the death trap” within my family. My dad would do anything to pitch it because he hates it that much! By the end of 2017, I was basically done with anything and everything that had to do with getting a brand new chair, because we kept being stopped by our insurances. It was exhausting and frustrating at the same time!

I want to say a couple of days before we moved into our new house, we got some papers back of things that we wanted included on the chair, that were approved; I was shocked! The only thing that worried us was the fact our wheelchair provider had to order it before the end of the next month. The government doesn’t allow a lot of leg room! And then, we were finally told to look forward to the first week of February, because that was when they were going to deliver it to us! Again, I was stunned! My dad was even surprised on how fast this was now going after waiting almost 7 long years. One of the main reasons why everything was going so quickly was because we had been waiting so long, that we all just wanted a wheelchair that had a joystick on the left side of pedals and it all worked, that’s it. I am supposed to have a whole custom seat put on it soon, but that’ll only happen when the weather improves and my dad can work on the deck and ramp to get me out of the house, because right now I’m a little stuck!


Try to ignore the commode in the background, okay?

The wheelchair itself is very different compared to the previous chairs, because I tend to look at them as the standard powerchair, motor underneath the seat, joystick at the feet. Okay, so maybe that last part isn’t really standard, but is it for me! Anyways, this chair is really bulky. It has a lot of structure and weight, because of the improvements that was put on it,  that wasn’t on my last two.

When I first saw the chair, I was a bit wary of it. After we were told that we would be receiving it soon, I immediately got very nervous of the prospect of having a motorized wheelchair again. I didn’t think it would have been such a big deal at first, because I was mobile while I was in the manual chairs, why was this suddenly becoming an issue? I still haven’t found the answer to that overwhelming question, because I actually haven’t spent a lot of time in it yet to finally feel comfortable with it yet.

Here are some new things that was put on this chair!

  • It has 3 controllers!
  • I have two different speed features – indoors & outdoors!
  • It can lean back while I am still in the sitting position.
  • The joystick and foot pedals can move up and down.
  • I have 6 wheels!
  • While I change directions from left to right, the middle tires stay straight but upper part of chair and little wheels turn instead.
  • The armrests lift up like a Lamborghini
  • I have headlights but no turn signals unfortunately.
  • When you look at the back of it, you’d swear I was a damn Transformer!
  • Oh, and it’s red.

I think the two things that has everybody freaking out is first the fact that I can lean all the way back. I could actually sleep in my chair! Once I get my new seating, I might just be doing that if it’s really comfortable! When I sat in it, that was one of the first things that I was shown because the dude that helped us get it, Shelby, is as much of a goofball as I am! However, since I was already nervous about having a wheelchair again, this happens.

I was way too happy to be back to normal, sitting upright again, after he showed us the rest of the changes made to it. The “main” controller really is cool, because a lot has changed since my first chair where I only have the color coordinated lights of how much battery there was, and knobs for the power, horn and of course the joystick. These newer models are progressing to the point where they have a good quality screen, it’s easier to read and understand. You can apparently hook it up to your phone to move it even if none of the controllers want to work for you! Even though, I have one controller that is situated on my left armrest that is purely for what I’ve just explained a little bit ago, I can also do it on my own screen using the buttons and stick to alternate how back or forward I need to be. This feature is on all three controllers on the chair!

Now we get to discuss the color preference. This was actually really easy compared to the second chair, which I will stand here and tell you that I never picked one out. I would never chose hot pink for anything! I even tried to talk my sister out of having me wear baby pink for her wedding! I thought since I was her maid of honor, that I could get away with wearing it in silver, but nope. I lost the battle. So, this time I was determined to pick a color for this chair to hopefully avoid this disaster again.

This time around, there wasn’t a large amount of colors to pick from, but even then I still felt obligated to get purple because I love dark purple, but then I saw both the electric blue and red. I thought about having a blue chair for my love of Butler basketball and of course my papaw, but once I saw the red, I knew I would automatically go for it. I was asked twice how color I wanted my chair and both times I said red. If you’re unsure why I decided on red, well it’s for my love of another basketball team: Houston Rockets. Even though I love and watch four separate teams, I just felt like I needed to choose a team and color that I know I enjoy watching during the colder months. Since I picked out the color back in October, you should have seen my reaction to the color of my new camera I got for Christmas! It’s navy blue like Butler!

What do you think of my new wheelchair? For those of you wheelchair users, were you ever nervous before getting your chair? Do you have any special reasons for the color of it too?

A-Z Disability Challenge | G : Long Term Goals

Howdy!

For today, this post will hopefully be lighthearted; the kind to make you smile with some of the things that I’ve been collecting as part of my long term goals to accomplish in the future. It’ll have the same format as the other post about my goals for 2019, but I’ll explain a little more about each one, so you will understand why they are important to me.

I like to think there’s a big difference between a bucket list and long term goals. In my Pinterest board for my bucket list things, are not very realistic. You’re wishing to do them rather than actively trying to seek them out. Now, I’ve seen a lot of people who make bucket lists and actually cross off certain ones, but not everybody is that lucky. I’ve never thought about having or even listing out my own personal long term goals like this before, but since I wrote out my other top five goals for the year, I figured maybe I’d be lucky and actually push myself a little bit to actually make a dent in my list. I’m hopeful that’s all that matters to me!

When I created this list, I tried to list them in some kind of order, but we all should know that life doesn’t always follow this rule all the time, but at least it’s organized for me to explain each one for you below!

Write A Cookbook 

I’ve always wanted to write a cookbook, between being my dad’s guinea pig for years and the beloved recipes that my nana was taught by her parents, and then papaw’s family, I just feel like this is the next step! What I find interesting is that I have these big plans of writing it and including inventive gadgets that could help other disabled aspiring cooks and/or bakers, but I still have yet to actually do anything in the kitchen.

When I was with my nana, I could convince her to let me help her mix or pour the various things into the bowl, but I can’t even do that with my own parents! Recently, I went out into the kitchen to watch my mom make broccoli and cheese soup and she would not let me do anything. In her defense, she hadn’t made it in a long time so she was basically panicking making sure she had everything and it was all coming together. I was basically there to express my cooking knowledge with her, which that part was fun, but I yearn to actually do something. I’d love nothing more than to make my parents dinner one day, but these two goofballs won’t let me!

Go To The AMC Convention 

In 2012, I found out about the Arthrogryposis Multiplex Congenita Convention. This was also the same year, I found the whole mother-load of fellow AMCers and the fact that we even had an awareness day for us! I was extremely happy because I love to talk to people, especially family members of kids that have various types of disabilities. Parents and guardians are always looking for others that may have experienced similar situations, and I enjoy being a voice to the younger generations to gain some independence and be who they want to be. This was one of the main reasons why I created my blog in the first place!

It wasn’t until 2017, when the AMC group basically announced to everyone where they were going to host the next convention – because they go to a different state every year, so it keeps things interesting for everybody that attends. Well, I usually like to look on their Facebook page on the last day to see where they will be going to, and for 2018 they were going to Louisville, KY. I was happy! I showed it to my mom, who basically told me “if you can talk your dad into it, then maybe.” Now this came out at the end of July, my sister announced to us in October that she was pregnant and that she was possibly due at the beginning of July… So, my nephew was the reason why we basically dropped that idea from ever happening.

I would love to go to the convention one day, which is why I have included it onto this post. I would love to meet other people to see how they’ve managed to do things. I also think it would be a good thing for my family too, because I’m always hoping that they’ll want to help other families, especially my sister, she’s very helpful and I think she’d enjoy meeting the siblings and basically talk to them about her experiences of being the younger sister of someone with such a physical disability. I just think it would be a great experience for all of us!

Speak On A Panel At AbilitiesExpo

A couple of years ago, I heard about the AbilitiesExpo. I know there is one in Chicago and the other is in Los Angeles. I saw a vlog on YouTube of an attendee that jacked a tripod onto the foot pedals of his wheelchair so he didn’t need somebody else holding his camera for him. I was stunned at this, and I immediately showed it to my dad, we’ve been tempted to do something similar to mine. Anyways, I think the expo is very cool! It is usually for three days, and includes small sections of different companies for fashion, wheelchairs, biotechs, etc.

I have had the same recurring dream of speaking on a panel with other wheelchair users, it usually included Tiphany Adams, Jordan Bone, and myself. These ladies are very special to me as they’re always talking about their experiences of becoming a wheelchair user, and what keeps them going and thriving! I think being able to speak to a large crowd with several other fellow disabled ladies would be interesting! We could discuss real topics like sex and relationships, and give people another outlook to women with disabilities. I don’t know if AbilitiesExpo has ever done anything like this, but I thought it would a cool idea to do in the future!

Visit England

I think everyone knows about this one. I actually didn’t have it in the original line-up, I had a totally different goal but I realized that it kind of went with the first one, so I switched it out.

I’ve talked about how much I love England, and yes, most of it goes with the royals, but I have become kind of obsessed with the overall history of the country. I love the cities, London being my favorite! Bath and York are two of my favorite cities that like to show off their impressive structures, from the cathedrals to a row of houses.  Recently, I’ve been loving various pictures of the countryside. The villages are beautiful, they’re completely different compared to what I see here in the United States. Buildings and houses that were built in the 1600’s still being used to this day, the architecture is gorgeous! If you’d like to know all of the places I’d like to visit one day, click here.

Have A Baby

For a long time, this was the only long term goal I ever had and as the years go by, it continues to go further down the list. I’ve talked about this in the past, so I’m going to attempt to keep this as short as possible.

Years ago. I did include the words “get married” before it, but I’ve sort of lost my interest in wanting to do that. Even though I have my parents and sister’s marriages to look at for inspiration, marriage as a whole in this day and age doesn’t appeal to me. People make vows and sign a certificate but will cheat on their spouses anyways. I don’t want to say because of my disability, I’d always be faithful, because I am not invincible to anything, especially my own temptations.  However, being attached to someone that could be the one to give a child frightens me, because they could always come up with a story that I could be a bad mom, adding to the stereotypical image of people with disabilities can’t bear and raise children.

I’ve always wanted to be a mom. My maternal instincts come out whenever I am around young children. I want to teach them how not to be afraid of someone like me. It is hard sometimes to be around my sister and nephew together, I still get fairly jealous that she has a son to call her own, but I also have to tell myself that I get the easy job as an aunt, but I’ve always wanted to do the things that she does on a daily basis. I have met with other disabled moms out there and they do ease the questions of whether or not, if it’s possible to have a child, but it’s getting to that point where I can fulfill that dream of mine that feels impossible. Hopefully one day it will happen.

Do you have any long term goals? What have you done to try accomplishing them?