Howdy! I am Meg(z)han, which stands for both my real name: Meghan and my nickname which is Megz. I have been a blogger for 10 years in October. I started blogging while I was in school, this is actually my second blog overall. This one is nine years old in early May. I talk about a lot of different topics. This is mainly a lifestyle blog, which mean “anything goes” but with that I also discuss disability and music too. I am a lover of history, fashion, books, cats, etc. All of these types of interests usually make it on here from time to time, so there’s always a variety of content for everyone to enjoy!
What is my disability?
I actually have a blog post where I talk about the main condition: Arthrogryposis Multiplex Congenita that you can look into, but to sum it up, it is a joint condition that makes my joints basically fuse together. I am not able to unlock my elbows, so I can’t use my arms and hands, so I do everything with my feet. I type, write, grab dimes & pennies off the floor with my toes. AMC also comes with its secondary disabilities and I have three separate conditions. My feet are deformed. My right is a club foot, so my toes are basically tilted to the right and the majority of the bones are placed in the other direction. Unfortunately, this foot is the less dominant, but it has become my typing foot so it has a very good purpose. Now my left is called a rockerbottom. We’ve never found a clear definition what it means, but I use this one the most to write, text, and draw.
The last one is Scoliosis. There are a lot of other children and adults who suffer with this too. Some people can either develop it as you get older or in my case, you’re born with it. For the most of my childhood I had to wear a brace and it was really uncomfortable! In 2002, I had three separate surgeries to fix it. I am a Shriner’s kid, so my family and I are strong supporters of the organization and are forever grateful for them! I had a metal Halo screwed into my skull. The second consisted of the doctors basically removing one of my ribs on my most effected side (which was my right) and they took out the cartilage in between the bones in my spine, so for a few weeks everytime somebody unleashed me from the straps of the halo to the tops of the contraption attached to my wheelchair, I felt like a slinky toy! During my final surgery, they removed the halo and placed a long titanium rod into my spine and put metal pins into my hips to help keep it in place. Over the years, the scars have all but disappeared. I still have lots of pain in various places, mostly in my hips and lower back.
What is the reason for creating this blog?
This blog has always been my sanctuary. I created it to give other disabled people, mainly speaking to the younger generations that you can have a life outside of your condition. I think many people assume disabled people, including young teens with a serve disability and their families worry they cannot go out and have adventures; not to mention have meaningful relationships, sex, and eventually children later in life! This is completely not true, so I wanted a place to show it all can happen and bring some hope and maybe even guidance to them too!
Overtime, my blog’s message has changed a bit. I still want to show the world that you can have an exciting life, but I want to be here for all. I am speaking to everybody. Disability people strive to be relatable and understood by their own peers. I am still a human being, but I have always had a rough time figuring out if I should just be a disabled person who only discusses those types of subjects, but then I have felt like I was burying myself into this hole where there are no other tunnels to escape, so I kind of had to branch out and figure out how I can talk about disability with other things. The disability message itself is still there, it’s just not the big image I’m trying to create in each post. That’s why I love talking about fashion, music, history, photography, TV, and crafts. I like being able to step out of my comfort zone and try new things, but also be able to show people what else I can do and who I am as a person. We are all people, and we want to feel acceptable among the rest, so that’s why I chose to blog about what I truly want and I really hope you appreciate and understand where I am coming from too.
If you have any questions about my disability or my blog in general, please ask away! Thank you. 🙂