I know I’m late on getting this post up, but I have been feeling really lazy in the past few days.
I have always been called “speed demon” because I have my power wheelchair’s speed on high. It’s crazy how much my mom thought the volume was down low while I was in school! Speaking of that, my middle and high schools were attached and had multiple ramps in the hallways. The first time I ever visited, I was probably going into fourth grade and my face lit up. I couldn’t help but race up and down those halls with Blondie and our cousins. Now as an adult, I feel like I have definitely calmed down, and to just seal the deal, the occasional popping a wheelie doesn’t even do it for me anymore. For my parents, this is a blessing and this could be a good sign for other families out there who are dealing with little speed demons at home too, but I feel like I should say that if I was in my power wheelchair for 8 hours straight and there were ramps all around, I would totally go for it in a heartbeat!
Since creating my Instagram account a few months ago, I have been speaking to other people with Arthrogryposis, and it has been really nice to discuss our stories and everything, I also love when parents will follow me too. I get a chance to watch the younger generations grow up and learn how to deal with it in an entirely different era.
There is one little girl that takes me back to starting school for the first time, making what I thought would be long-lasting friendships, and receiving my first wheelchair. The girl’s mother told me once that thanks to her brothers encouragement, she tracked mud all over their house. I could tell she wasn’t thrilled about the incident. There is a big difference between the mini daredevil and I. When I was in elementary school, we left my power chair there and only took it home during summer vacations because our house wasn’t handicapped accessible. So, I never really got to do things like this when I was younger, but this was also at a time where I could scoot everywhere so I didn’t need it too much.
When we did go places that required something more substantial, we used a toddler stroller. It was lightweight so it wasn’t that big of a hassle to put together and take me on trips. I want to say that we used them from the age of seven to probably 11 years old. After I had my surgeries, my body decided that it not only wanted to grow but everywhere! Honestly, for the last five years of being in the stroller, I never wore the seatbelt. I couldn’t. It never wanted to fit around my belly. Thankfully, by the time I started going to middle school, I was riding the bus to the school and home, so we could keep my wheelchair with me at all times but more importantly, this also meant we could finally get rid of our trustee stroller of the early 2000’s.
Once you got your first power wheelchair, were you described a “speed demon” growing up? Do you remember the first time you discovered rolling down into ramps and/or mud?